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Post Info TOPIC: Hi Everyone
JoAnneh


Guru

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Posts: 1077
Date:
RE: Hi Everyone
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If you are on Invicek you need lots of rest.
Welcome to the forum! Ask any questions as
We are all in this together.
Thankful we have a chance to beat this virus.


__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Biggyb


Guru

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Posts: 820
Date:
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Welcome HazeySask,



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
JIme


Guru

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Posts: 733
Date:
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Hey Hazey!  Hello and welcome to the sandbox. A moving target is harder to hit. Keep moving. :)

Good luck!



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Mary Jane


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Posts: 523
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HazeySask wrote:

Last Summer (2012) I was getting some routine blood/urine work done when my urine came back funny. Upon checking my liver enzymes it was discovered that I was carrying Hep C. By a stoke of luck, I had recently received a bunch of medical documentation from when I was born and in it was a letter from the head of pediatrics department stating I had received multiple blood transfusions.

At first I was sort of in shock and had no idea what Hep C was. My doctor explained that treatment will start within the year and that it will not be any fun. That's sort of when my heart sunk in my chest and I realized this was more serious than a simple flu.

One of the blood donors was eventually tested and came back positive for Hep C.

My viral load in August 2012 was roughly 300,000. In October it was up to 400,000. I never got the results for January but I will tomorrow. As well as my weekly blood work lab reports. So relatively low count compared to others which will hopefully help me.

Didn't need to do a biopsy, and got to do a fibroscan (in November) instead. Got a score of 8.7 which is nearly a level 2 for Hep C. Pretty healthy.  

I started treatment January 9th. Triple Drug Therapy with Telaprevir.

I'd be lying if I said I was doing fine... Every day brings it's challenges and "symptom of the day" I like to call it.

Tomorrow I go into my 5th week of treatment... with 19? more to go.

I'm thankful to have a family that's supportive... but they have no idea what I'm going through right now --- day in and day out. I do my best to not complain or show that my side-effects are bothering me and when I do I somtimes feel as if they're annoyed... like "you were fine yesterday, and you had your shot last week... you should be fine today." It's difficult to explain that side effects are not consistent or happen in any particular order for me and it's not something I can plan ahead for (except for interferon.)

Anyways, thanks for creating this community... It'll be nice to find advice, help others, and have a place to vent my frustrations!

Thank You!

 Hey Bradley,

Welcome ... breath, stay connected to this forum they have been a lifesaver for me.. There are so many wonderful folks on here willing to share and give their experiences.  I quote all the time if you ain't wore those shoes you have no idea..Others will join in and give advice on your other post about the Incevick RASH, quite of few members on here can offer what worked for them.. I thank GOD I did not have it , many other things but not the RASH.. If you go to the top of the page and type in a subject and do a search..  I wish you relief and to many of us everyday is a NEW day with side effects like guess which one is going to show up today... We understand... all the best   peace and love MJ



__________________

Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
HazeySask


Member

Status: Offline
Posts: 21
Date:
Permalink  
 

Last Summer (2012) I was getting some routine blood/urine work done when my urine came back funny. Upon checking my liver enzymes it was discovered that I was carrying Hep C. By a stoke of luck, I had recently received a bunch of medical documentation from when I was born and in it was a letter from the head of pediatrics department stating I had received multiple blood transfusions.

At first I was sort of in shock and had no idea what Hep C was. My doctor explained that treatment will start within the year and that it will not be any fun. That's sort of when my heart sunk in my chest and I realized this was more serious than a simple flu.

One of the blood donors was eventually tested and came back positive for Hep C.

My viral load in August 2012 was roughly 300,000. In October it was up to 400,000. I never got the results for January but I will tomorrow. As well as my weekly blood work lab reports. So relatively low count compared to others which will hopefully help me.

Didn't need to do a biopsy, and got to do a fibroscan (in November) instead. Got a score of 8.7 which is nearly a level 2 for Hep C. Pretty healthy.  

I started treatment January 9th. Triple Drug Therapy with Telaprevir.

I'd be lying if I said I was doing fine... Every day brings it's challenges and "symptom of the day" I like to call it.

Tomorrow I go into my 5th week of treatment... with 19? more to go.

I'm thankful to have a family that's supportive... but they have no idea what I'm going through right now --- day in and day out. I do my best to not complain or show that my side-effects are bothering me and when I do I somtimes feel as if they're annoyed... like "you were fine yesterday, and you had your shot last week... you should be fine today." It's difficult to explain that side effects are not consistent or happen in any particular order for me and it's not something I can plan ahead for (except for interferon.)

Anyways, thanks for creating this community... It'll be nice to find advice, help others, and have a place to vent my frustrations!

Thank You!



__________________

Genotype 1 :: Treatment Started 09-JAN-2013 :: Ribavirin - Peginterferon - Telaprevir :: VL UND Week 6
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