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Post Info TOPIC: Hello Everyone


Senior Member

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RE: Hello Everyone
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Welcome and we are hear to answer questions and offer support!


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Geno Type 3A  Double TX 1-30-13 2 1/2 week labs VL >43 Lab error on 12 week VL no result

 



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hello easter and welcome,

I to was very nervous when starting back in Sep.Not knowing is scarry. You got to go through it while you got the chance. You will be glad you did in the end.It seems long but it will go by, yes it is hard, be strong and you will beat it.....you will find support here.

again,welcome and best wishes...............



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Ted...HCV genotype 1 cirrhosis stage 4  PEG,RIBA,INCEVEK taken off treatment after 20 weeks,low platelets,playing the waiting game..



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I start treatments tomorrow at 10am, I am having serious doubts because as we speak it's a full fledge fight just to get some uninterupted much needed time with my family. They don;t seem to understand the emotional needs I do have before starting all this tomorrow. I'm at a loss and don't know at this point if I even want to start the treatments.



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Thank You everyone for the warm welcome!!!! It's such a breathe of fresh air these days.

 

I know I'm doing the 3 drug treatment...pegasys being one the ribo and i can't remember which the last pill is called but fairly new I've been told. I had them written down but after not sleeping very well last night my memory has been fading along with my energy levels lol.

I am going to take it one day at a time, that's all any of us can do in order to get through it all. So far everything that I have read has helped a great deal. I'm not the type to put on the blinders, I'd rather see what I'm gonna face head on and avoid being blind sided. 

 

Again thanks everyone.



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Senior Member

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Welcome, dealing with the sides is doable. As Mark mentioned everyone has a slightly different experience. My advice is to check in often and share what is going on. Even though your new, some little thing that you might share about yourself or giveing support to another can make a big difference. Keep on Truckin

Captian B. Rash aka Vern W.



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.



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Which route of treatment will you be doing? The sides from every SOC vary greatly. Everyone is affected differently by the sides, many sail right through it, others have problems. Hopefully you'll be one that sails right through but the most important thing about any sides is to stay on top of them and be very proactive in there prevention and care. This is a great support group, at almost any given time there will be someone here that's been through the same things you may encounter. Good luck and above all else take care of yourself.



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KCCO

 

 



Guru

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Hi Sarah,

Welcome to this wonderful crazy place.

If you weren't nervous I'd be worried about you....lol As far as work goes I worked 6 days a week most weeks and I made it through. Lots of naps.

It's not easy but it's doable and it's worth it. I think you'll do fine.

Good luck!



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 



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Welcome Easter. You found us just in time. A wealth of knowledge you

will find here and very helpful people. One day at a time is the only way to

approach this. Good luck.



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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.



Newbie

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Hello all from Illinois. My name is Sarah and new here and to the Hep C thing, well as far as the one who has it. My doctors believe I contracted the virus while I was a volunteer medic. I tested positive and my viral load from my understanding was through the roof and the biopsy showed stage 2, so they don't want to delay treatment at this time. Due to the medicine having to be approved through medicaid here in Illinois, I thought I had a couple of weeks (they said about 2) before it would start. I got a call from the pharmasist saying they had approved it and I should be hearing back on when to come in for training on how to inject etc etc......

I am right now a nervous wreck with starting a new job that is very demanding, and now realizing I don't have the emotional support at home that I thought I did, and reading some of the things I have on here about the treatments side effects truly rock me to the core but there isn't really a choice left to make here, it has to be done, just nervous I guess. 

Hope everyone has a great night and look forward to new friends who understand this whole thing.



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