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Hep C Discussion Forum -> New Members Area -> Newly Diagnosed HEP C 1A - desperately needing advice
Post Info TOPIC: Newly Diagnosed HEP C 1A - desperately needing advice
LUV2RYDE


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RE: Newly Diagnosed HEP C 1A - desperately needing advice
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Mike,

I learned so much here on this forum. I am also in a clinical trail for treating my Hep C and if you don't have insurance a clinical trial might be a great choice for you. Educate yourself and just know there are so many wise tales about HEP. The more you know the better you are. Good luck.

 



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Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 
Bouba


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Hey Mike

As Guru Malcolm said you need to know your liver condition first.

My hepatologist advises his Genotype 1 patients upto F2 (case by case of coz) to wait a year for Sofosbuvir.

Financial aspect is unknown though and afraid it may be an issue, taking into account billions Gilead spent on it.

 



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58 yo male, HCV since 1981. Gen 1B (IL28B, CT). Diagnosed 1999,  VL before tx 100'000. Biopsy A2, F3 fibrosis. Naive, SOT (with Incivek) Oct 26, 2012. UND @ week 4, 12, 18, 24, UND 12 and 24 weeks post-RX
Matt Chris


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Hello Mike

Welcome to the board , best advice I can give is do alot of research.  There are some options now and many more to come.  READ READ READ

Matt

 



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
mallani


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Hi Mike,

Welcome to the Forum. I don't like the 'I am aging' bit of your post! I'll be 70 in 12 days and have just completed 48 weeks of triple Rx with Victrelis.

You need to know the state of your liver. The only reliable way to do this is by liver biopsy. When you have these results, you can decide whether you want Rx now, or can afford to wait for a non-interferon treatment regime. At your age, I would advise Rx now. The Forum Members are getting excellent SVR results from Triple Rx (Peginterferon, Ribavirin and either Victrelis or Incivek). There are side effects but these vary from person to person. Keep us informed and good luck. Cheers



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Biggyb


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MikeJJ wrote:

I recently was confirmed with Hep C 1A after a routine blood test by a life insurance company,

 I too am 1a and i chose to due treatment with Victrelis, alot less side effects. Good luck



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
MikeJJ


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I was told it was genotype 1a



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MikeJJ
LC


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I am waiting, but I have a low viral load and my liver isn't in too bad of shape. Hopefully there should be better meds available next year. At least we picked a good time to be diagnosed with this! Check out the News and Events section in this forum because there are a lot of updates about what is coming on the market soon. I would see what your doc thinks about you waiting and whether he or she thought it would be ok for you.

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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
GodsGrl


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Welcome! We are all here to help and offer support. Do you know what geno type you are?



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Geno Type 3A  Double TX 1-30-13 2 1/2 week labs VL >43 Lab error on 12 week VL no result

 
Iris Dragonfly


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Hey Mike ...just wanted to say hi. There are lots of folks here on treatment who can give you loads of advise.

I have choose for the time not to treat....waiting to see less toxic stuff.

Blessings in your information quest....smile Iris Dragonfly



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naďve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
MikeJJ


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I recently was confirmed with Hep C 1A after a routine blood test by a life insurance company, which declined me. My viral count is roughly 14,631,000. I very likely have been living with this 20-30 years. I have had several blood tests and a sonogram. My liver function tests are all pretty much normal or barely out of spec, and also my sonogram except for a small cyst on one of my kidneys.

I am not sure if it is related to the HEP or not , but I have frequent dull pain (daily) under my rib cage in front and around the back on the right side. I have fairly frequent fatigue, and possibly other issues. Since I am aging, I will be 58 this month, I am not sure if some of my forgetfullness, depression, irratability etc. is age related. For instance, in the last few months I have found it hard to spell words that I don't frequently write when I used to be a dynamo at spelling...just seems weird.

I have had the pains in my rib cage for years, and had tests run for gall bladder, sonograms etc. which were all inconclusive so I thought it was no big deal. They never tested me for HEP C.

I was referred to a Gastroenterologist and he has stated that I am an "excellent candidate for treatment" I have no idea why I would be excellent.

The treatement he is referring to is the interferon ****tail for like 24 weeks.

I am not sure what to do or who to trust. I really need some honest advice from anyone who knows what I am going through.

I have read that the current treatment is very tough, and even dangerous. I have also read that there are new treatments in the works, but there are no guarantees when they will be available and, even when they are available, if they will be effective for a 20-30 year persistent HEP C 1A case.

Any advice anyone has the time to share will be greatly appreciated...God Bless.

 

 

 

 

 

 

 



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