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Post Info TOPIC: Guide to Stigma and Hep C, updated April 2013


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RE: Guide to Stigma and Hep C, updated April 2013
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Hey Jill , thanks this is something we don't always like to admit to

Very important article to make us aware of how the uneducated and uninformed people can think. (Very Stupid) 

In my opinion it emphasizes that you have to be very selective in who can handle correctly the knowledge of knowing what HCV is,  and what it is'nt. 

Very few people will truly go through the trouble of getting the facts about it, so why should they be privy to something that they have no knowledge of or willing to learn about.

Perhaps if they had the correct pre disposition we could slowly explain to them all things HCV     one on one with supporting documentation,  then remind them this personal information is confidential and is for there ears only.

Everyone with HCV has to make there're own decision on who deserves to know, it's a very personal decision and its there's only.

Just my opinion,  everyone has a right to there own.

Matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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Hi Jill,

Great article and thanks for posting it.  I personally have not been aware of any stigma, but I'm thickskinned so may have missed it. In the Medical Profession, we have to disclose such diseases to our Medical Board. I did, in 1991, and never had any restrictions placed on my practice.  My partners and staff were very supportive.  I know some HCV patients who hate being 'lumped in' with the drug-users- who cares?  It's only your own opinion of yourself that matters. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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Loopy, you need a pdf viewer, like adobe reader or what i use is free PDF-XChange Viewer.

http://www.tracker-software.com/product/pdf-xchange-viewer

 



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~



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I can't open it?



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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Thank's Jill, good article. As i hate the stigma.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~



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A Guide to Stigma and Hepatitis C, updated April 2013

A Publication of the Hep C Support Project, by Lucinda K Porter, RN

An often overlooked and painful component of HCV is stigma.  Although invisible, stigma is a harsh reality for some.  This guide discusses the ways in which HCV is stigmatized and provides tools for confronting and living with HCV`s senseless labels.

Link to pdf file...

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Stigma%20Guide.pdf

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 

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