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Hep C Discussion Forum -> New Members Area -> new to forum and my name is Ed.
Post Info TOPIC: new to forum and my name is Ed.
edmed


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thanks, In 96 i found out i had hep c. back then all they had was interferon 3 time per week and that was brutal. I took me a long time to find the courage to go on tx again. In 04 my vl was 2.6 mil and still det at 8weeks so dr. took me of meds because i was'nt responding to treatment. My last bx in 09 i was at [stage 0/ grade 2] thanks god,  but vl was in the climbing up and up. I'm 50 and i've lived with this along time. somewhere between 17 and 22 is when hep c came into mylife and my hope is someday i will totally beat this disease because i will never give up hope.smile.gif



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Cinnamon Girl


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Hi again, Ed, so it was a dose of incivek you missed, not your peg.  I see you`ve edited your post to correct it since my original reply, it makes more sense now!  As JoAnne pointed out, it`s quite usual to get a bit of `brain fog` while on tx.  Stay in touch, you`ll find plenty of support and advice here.  smile

Cheers, Jill

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Biggyb


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edmed wrote:
This is my third time on treatment 1. in 1997 with no success, second in 2004 with no success, and now with triple therapy starting 3/1/13 .

 Good luck Ed, your treatments have been about the same time span as mine. Hoping this 3rd time works for us cause i getting to old for any more after this. Good luck.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Matt Chris


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Hello Ed and Welcome to all things HCV

Power to all your efforts,  some say the third time the charm.

Keep on posting and interface with the members, they will give you extra strength to deal with all that comes with being on treatment.

Also eat as healthy as possible.

Matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
edmed


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thanks i will give incivelk a call. I'm very glad ther's place for me to share and to recieve wisdom. thanks..

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JoAnneh


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Here is the phone number for Invicek that I have:
1 (855) 546-2483
It is normal for platelets to Drop.


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
JoAnneh


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Did you miss one dosage of Invicek yesterday?

Are you around 6 weeks?

You can call Invicek hot line and speak to their nurse,

they are highly informed! 

The medicine made me very absent minded or as we say on forum

it causes brain fog. I kept my meds on my night stand.

I set my alarm to go on scheduled doasge times daily. My husband had to help

me study focus, the exhaustion was so overwhelming.

 

 



-- Edited by JoAnneh on Sunday 14th of April 2013 12:25:40 AM



-- Edited by JoAnneh on Sunday 14th of April 2013 12:26:30 AM



-- Edited by JoAnneh on Sunday 14th of April 2013 12:28:48 AM

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Hi Ed, welcome to the forum!  You should be ok missing 1 dose of ribavirin, and according to the pegasys information leaflet you can still do your peg shot up to 2 days late, and then return to your normal schedule next week.

You must have a lot of determination going through treatment again, and I wish you the best of luck this time round with incivek.  I hope you get your undetectable result at 8 weeks.  smile  ~ Jill

 



-- Edited by Cinnamon Girl on Saturday 13th of April 2013 08:47:02 PM

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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
edmed


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smile Hi all. New to forum but not new to being on treatment. This is my third time on treatment 1. in 1997 with no success, second in 2004 with no success, and now with triple therapy starting 3/1/13 . i have to admit this is brutal on the body but im not a quiter. thanks to forum i've learned to manage my side affects. I've never posted before but today i cought my first bo' bo' with my treatment.  I dont know how but missed my morning dosed of riv and  incivek together yesterday morningno.gif. i hope this does'nt  set me back with the virus regenarating. 

 

geno 1a started 3/1/13 at 7.9 mil, test at 4 week, at 3.3 mil. when i saw the doctor he tolded me this means when you finish incivek your're going to be on treatmen for 9 months instead of six months.  hope at my 8 weeks blood test that i'm undetectable. Dr also said uric acid is on the high sideconfuse.gifwhat does it mean??  and my platelets are going down alsoconfuse.gif?



-- Edited by edmed on Saturday 13th of April 2013 09:58:37 PM

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