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Post Info TOPIC: New member checking in....
mallani


Guru

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RE: New member checking in....
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Hi and welcome Marcy,

I presume you are Genotype 1 and may be looking at starting treatment.  We have a bunch of Members on Victrelis and Incivek, and an increasing number are on clinical trials.  Can you tell us your VL and biopsy results?     We are happy to answer any questions you may have as we're a pretty experienced bunch. Good luck with whatever you decide to do- after having HCV for such a long time, perhaps you have some liver damage. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Matt Chris


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Posts: 1781
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Hello Marcy and welcome to the forum.

Yes it's easy to put off what does'nt bother us , but I guess there is always a time when we have to deal with things of importance.

Your patience has really paid off, the HCV treatments are improving vastly and there will all oral treatments within a years time.  There are many phase III trial studies going right now that will lead into FDA approval.  I am on the Abbott study and so far so good.

Keep on posting and interface with the members, they will give you extra strength to deal with all that comes with being on treatment.

When you get your latest test results you can ask for help in understanding your options for treatment.  

Whatever happens you have found a place that understand all things HCV the ups and downs and the journey of many questions.

Use the search engine for extra fast answers.

All the best 

Matt





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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Milliganus


Senior Member

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Posts: 168
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Hi Everyone,

So glad to find this site.  I'm going to be using it alot (I think) in the future as I try to find out the info I need to manage my condition.  I've had Hep C for almost 40 years with very few symptoms.  I used to have the occasional liver biopsy and usually get my alt levels checked every year or so.  For about the last 6 months, I've been have pain and stiffness in both hands and fingers, knees, elbows, etc.  Hubby & I travel fulltime now and he has had medical issues for the last 2 years and we are heading to the Cleveland Clinic.  I've made appts with rheumatologist and a gastroenterologist.  Last time I had my bloodwork done, I had them do a viral load and my load had gone up, though not really high.  This was about a year ago.  So somethings goin on....

 

For years I thought if I ignore the problem, it wouldn't be an issue.  Dumb I know, but I have the genotype that is hard to treat and was raising a family, job, etc.  I still would rather avoid it, but that would be selfish of me.  Anyway, just wanted to introduce myself and so appreciate all the information and hope you all provide.

 

Thanks

 

Marcy



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Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
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