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Hep C Discussion Forum -> Clinical Trial Participants -> AlmosT Half way!!!!
Post Info TOPIC: AlmosT Half way!!!!
balagan51


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RE: ABT phase 3 ABT 450\Ritonavir/ABT267 & ABT 333 with Ribavirin
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wishing you nothing but the best. i truely believe we are all blessed to be in any trial with

 

test



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Matt Chris


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Hey Balagan51

Thanks for sharing, great stuff.

Having a thought out method is a great approach to therapy.

Meditation is something I also use to get my body insync with my intentions, its very powerful in all areas of healing.

Your healthy eating habits can serve all of us a lesson, my personal favorite liver healing foods are Avocados, Walnuts, Garlic, Grapefruit, all sprouted grains, nuts and veggies , fresh green vegetables and juicing Fresh Kale with carrots. Over 60% of my diet is made of these great foods.

I agree on your thoughts about the importance of alkalizing our bodies. My personal favorite way is to start every day with a half of lemon cut from the rhine put in a blender with several drops of cayenne extract. My Liver loves the lemon and the cayenne dialates my blood vessels to wake me up.

All of us have different ways that can workout for our long term benefits, so to each their own. We respect the right and opinions of all our members to choose there own course.

Matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
balagan51


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 Except for a heat rash at the beginning of treatment, I have virtually  no major side effects on the Touquoise  Trial

I attribute this to the following per my trial coordinator

i only use oatmeal soap. after my shower , i pat down and apply a liberal amount of aveeno oatmeal lotion.

 when I take my meds i use no wheat bread. i toast it and spread both   organic butter , (i can get away from my Jiff) peanut butter and honey. i eat a slice before taking every dose, then lie down for 20 mins and mediate.

I drink between 3 and 4 qts a water every day. I use at least 3 packets of EMERGEN C to replenish the electrolytes lost with increased water intake.

I had cut out sugar , most meat, and processed foods. (some time ago)

I drink a fruit/veggie smoothie for breakfast and drink at least one alkalizing green juice drink a day.

 i believe that an alkaline state doesnt make a friendly host environment for any virus .

 Water prevents dry skin, facilitates excretion of everything, and prevents headaches.

taking meds with fat increases absorption and prevents nausea.

emergen c stopped night  leg cramps.

take this stuff for what its worth. we all have our "systems.' this one is working for me and id thought id give it a share

 we all went to different schools together but all share a common bond.

best of everything for everyone here.

 



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LUV2RYDE


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Balagan51,

 

Wooo hoooo I am so so happy for ya brother! Amazing news! So keep coming I want to hear the same from the rest of you. I have 13 days left till I find out if I am placebo or the real thing. Ya put a big smile on my face!



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Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 
scott


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Well Hi there,

Im scott and I am glad to have found this site and the thread here, I am 47 yrs Geno 1a, null-responder was diagnosed back in 2008 and have probably been living with the virus for about 15-20 years. I had tried the SOC and at 6 weeks didnt achieve the log drop necessary to continue on, just as well as I hated those bloody shots. n

Anyway I live in the UK and after the initial SOC, my doctors basically put me on a wait and see scheme, this means dont do anything and be good.. lol  How can you??

Well 3 weeks ago I got a call from the trials team at King's College in London and someone had failed the requirements for a study and was I interested? I had been offered this trial at phase 2 and turned it down as I was sceptical and not feeling like guinea pig material, but this time a year on and nothing else in the future I decided to go for it!!

Treatment started on March 11th 2013, the Abbott double blinded trial that it sounds like quite a few of you are on. All the same parameters, I will get them hump if I am on placebo, however after the first week there aint no way, definately getting the headaches. but they came at the end of week 1 and I didnt do a good job of hyderating that week so take note, they felt like I had been out the night before on the piss big style!, so the first one came on Friday, I started meds on the Monday so Five days of meds, and when it came F**k it was like a locomotive. I hid in the darkest room in the house. No meds to offset, didnt even know if I could take paracetamol.

Sat and Sunday were about the same, then Monday I had to check in so an hour and half train ride and I make it to my appointment just as I sat down hot flashs started happening, headaches, nausea but only temporarily though. The nurse gave me paracatamol after my bloods of course and then prescribed something a little stronger to offset them. The headaches seemed to arrive about 4-5 hours after dosing..

Other than that little hickup I am here on Friday of week 2 and feeling right as rain (hoping not to jinx it by saying this) I am optimistic and feeling like this might be the beginning of a great futrure without hep C.

I managed to get to the gym the other day and it helped relieve some stress, I have told people at work and this also has helped relieve stress. My partner is very supportive, we are fairly new but she says she is in it for the long haul, thanks honey!!

I will keep you updated with my progress.

Keep the faith and pray please, mind over matter!!



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Karen


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WooHoo!!!



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
Matt Chris


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All right!  Balagan51

Thats has got to be the greatest news you have received in years.

You are on your way, your ship has wings, you can now soar with the eagles.

Now all you have to do is land on your feet and keep yours healthy ways of living.

Congrats to all of us Cirrhotics that have a real chance at clearing HCV without enduring the current SOC if we can wait that long. I hope I'm not being over optimistic about this, but better to be forward thinking than negitive.

Though we realize it is early in the Abbott's HCV DAA Cirrhotics study it's very encouraging to hear good results after six weeks.

2013 is going to be a great year for slaying Dragons

Matt



-- Edited by Matt Chris on Friday 22nd of March 2013 04:52:07 AM



-- Edited by Matt Chris on Friday 22nd of March 2013 04:54:00 AM

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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Zlikster


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congrats! ;) 



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
balagan51


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I just recieved a call today from the clinical trials coordinator

 At 6 weeks she   gave me the news..  She said I was Undetectable.......

all my other labs are WNL, even my platelets.....

I could never have imagined an Email to the Head of the GI dept, asking him if he was in Boston last Oct. could have  led me to this.........He got back to me and indeed he was. I asked him if was he hearing about anything that may help me. He emailed me back that night and put me in touch with the trials coordinator.   I have so much to be grateful for, so many people,  including the folks on this site.

I just cant wait to hear this same news from my new friends online here  

 

 

 

 

cautiously optimistic



-- Edited by balagan51 on Thursday 21st of March 2013 07:28:02 PM

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balagan51


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Matt,

 The rash apparently was from getting overheated. Its resolved .

I would suggest if you arent already doing so, is pound water and add some EMERCEN C to replace electrolytes with min sugar exposure.

When I saw my rash  I began to   Use Oatmeal soap and Aveeno Lotion religiously.  All this has helped with resolving my skin problems.

  4 week it my VL was still <25 but the coordinator said they could still see "copies "

all other labs were WNL

 

Going down tommorrow for 6 week draw

 

Wont know anything till Wednesday or Thursday of next week.

 

Hope this finds you doing well

 



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Matt Chris


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RE: Hey Balagan51 how are you doing with the rash issue?
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Balagan51

Last week you posted "Does anyone here have any experiences with rash issues?"

How are you doing this week?

From your brother in the same Abbott trial Turquoise II

Matt ( starting week 4) 

 

 



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Matt Chris


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RE: ABT phase 3 ABT 450\Ritonavir/ABT267 & ABT 333 with Ribavirin
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Hey Balagan51 are you still there?

Matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Matt Chris


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Hey there Balagan I am also on the TURQUOISE-II Abbott study. Just had my one week visit with blood draw. The meds. are no problem, but the whole process of qualifying and the possibility of being disqualified because of some bad lab results brings unnecessary stress and worry. But like one great quote I read from one our members said "Feed your Faith and fears will starve to death" Anyway keep the faith and all will turn out well Matt

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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
LUV2RYDE


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Hi Balagan,

I am doing well. No sx for me... Been going strong since Jan 11th. Matter of fact taking my meds now. I have been working out 3-4 times a week. Although been lazy this week so gonna hit the gym the rest of the week.  I am praying I am on the real stuff. I will know April 5th. I don't get to find out anything till then. Even my RN who is heading this trial along side of my Dr they both don't know anything. I was actually asking my RN how everyone else is doing....he in return said "Trish you know I can't talk to you about the other patients"hmm I actaully have a really good realtionship with him....he cracks me up sometimes. I told him I thought it would be neat if all of us inthe trial could compare notes.....he said no because what if patient "Z" has bad flu like symptoms and then that clouds your perception on how things are going. It's all blinded and at times it drives me nuts!

 

Your only on week 2? I will start updating on my sticky once a week. Is your trial blinded as well? I hope you feel better and your se go away.

 



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Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 
balagan51


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Just an update

I go to have my 2 week blood work in the a.m. i am on abt 450, 333, and ribaviran. (Turquoise Trial)

so far, im a little spaced, and am noticing i get SOB with excercise.

anyone else get that with ribavirin?

but little else with side effects

im hoping that i get some news on y viral load tommorrow.

Trish, havent heard much from you and pray all is going well.

geno 1 CT Cirrhotic. null responder to IFN & Riba.


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balagan51


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LUV2RYDE ,

I am stoked you are doing so well! You dont need to talk with other patients.wink you have one here!!

 I have noticed that if I overdo things right now that i get a bit more fatiqued than before tx.

Ive got some insomnia, but i had that before  tx! other than that, for whatever reason i feel as good, better than i have in years.

everyone in our trial is on the drugs , there are no placebos

im drinking a swimming pool of water everyday.

have to get up and drive the 3 hours for my 2 week checkup manana. i hope they have some news about my viral load.

 actually being spaced has mellowed me out quite a bit. I have a bunch of restaurant employees and they want me on treatment forever! 

take care  



-- Edited by balagan51 on Wednesday 13th of February 2013 01:52:38 AM

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Cinnamon Girl


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Hi Balagan, and welcome from me too.  

Here`s a link to `LUV2RYDE`s trial thread...

http://hepcfriends.activeboard.com/t52228387/just-started-my-abbott-clinical-trial-11113/

Wishing you all the best of luck...do keep us updated as we would love to hear how it goes!  smile ~ jill

ps - I`m making this thread as `Sticky` too. 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Hi Balagan,

Welcome to the forum. Sounds like a good trial with 3 DAA's. Another Forum member (' LUV2RYDE') is on the same trial, and we created a 'Sticky' for her in the same section. We're interested in your progress. Good luck.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
balagan51


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I am new here and I start this Wed & was hoping to find some people that may be doing to same. I am a cirrhotic non responder G1 CT If there are any of you guys out here that are beginning the ABBOT trial I would like to hear from you. I understand this trial isn't enrolling a large group, but thought I would just throw this out there. It would nice to have someone to bounce things off of. Thanks

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