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Post Info TOPIC: New here -- checking in
Loopy Lisa


Guru

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RE: New here -- checking in
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Hi Tzunamie,

Good luck with treatment, you're find a lot of support here.

Don't worry, I don't know exactly how I got it either, and frankly the disease doesn't care.

All that matters is you know and are treating it. :D

 



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Tzunamie


Newbie

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Thank you for the warm welcome, all !  I haven't started Victrelis yet, but it's in The Plan.  I look forward to "meeting" all my new friends and morale-boosters here.   Only my husband and one close friend know of my diagnosis and treatment, and I'm hoping very much I can keep it that way.  So much fear and negative assumptions still prevalent in the community.   I was really, really offended when my longtime general physician (who is my age) continued to grill me about how I possibly could have contracted this condition.   Finally asked him, "Does identifying the source of my infection govern the decision whether or how to treat it" ?  I'm glad now to be dealing with the specialists who at all times have been focused on the present and the future.  Most of us will never know when or how we contracted it.



__________________

~ Tzunamie

Gen. 1, Dx 2/12, Tx 4/13.  PegIntron, Riba, Victrelis 
mallani


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Hi and welcome to the Forum, Tsunamie.

Good luck with treatment and I hope your side effects are few. I finished 48 weeks of the Victrelis 8 weeks ago and although it was tough at times, I survived and am almost back to 'normal'.

Feel free to ask any questions and let us know your progress results. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Biggyb


Guru

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Posts: 820
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Hi Tzunamie, Welcome to the forum.

I also am on Victrelis. I see you gen. 1 so you probably be doing 48 wks like me. I coming up on week 40 now. SX alot better on Vic. Still awful treatment. I Almost quit a few times. Thank god i didnt, cause at age 58 this is about my last chance. 



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Cinnamon Girl


Guru

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Hi Tzunamie, welcome to the forum!   Congrats on starting treatment, your sx (side effects) sound fairly typical so far, although it does vary from person to person.   Sounds like you timed it well waiting for your retirement, you`ll be able to rest when you need to which will be a great help. 

We have other members also doing the triple therapy with victrelis, and plenty of helpful friendly people here with tons of experience. 

Best of luck, hope your 2nd shot goes well for you, the 1st one is usually the worst!  

Keep in touch! smile  ~ Jill



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tzunamie


Newbie

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Posts: 4
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Greetings all.  I'm Tzunamie.  

I was diagnosed a year ago but deferred treatment till I retired this year.  I'm nearing the end of week 1.  PegIntron and Riba.  Got  horrible aches and chills that first night, but no dramatic side effects since.  Just fatigue, shortness of breath, some coughing, lightheadedness.  I went like gangbusters the first three days after initial injection, but have been slowing down since.  Tomorrow will be injection number 2.  I'm cautiously optimistic.  So much to learn.

Glad to have a group.  



__________________

~ Tzunamie

Gen. 1, Dx 2/12, Tx 4/13.  PegIntron, Riba, Victrelis 
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