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Post Info TOPIC: newbie
ucbgal


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RE: newbie
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mallani,

     thanks for all your advice. 1st thing tomorrow i have a dental appt. to chart the last course of my implants in a jiffy. actually all i need are 2 abuttments and the crowns. my main concern is that my hepc dr. already called in for the meds. well i'll just start them either 6/15,or 7/1 to not lose my teeth!

     since i have the dry mouth disease i can highly recommend the following 3 products: act-total care for dry mouth,1.1% sodium fluoride tooth paste,and 0.12% chlorhexidine gluconate oral rinse. the last 2 are prescriptions and buy a ph saliva kit tester! god forbid the dentists could inform us of our conditions. i googled everything and told him what i needed!

     yes i've had a liver biopsy and luckily only have a small amt of fatty infiltration. thus i'm hoping my liver enzymes will return to normal levels. i'm sorry to hear that yours haven't after all that painful treatment. we just have to keep the faith and never give up.

sandy



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Cinnamon Girl


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Hi Sandy, welcome from me too!  smile 

I must say I agree with Malcolm about your dental situation.  In your position I would definitely wait until the implants have completely healed before starting treatment.  For the sake of waiting a few more weeks I wouldn`t think it was worth the possibility of slowing down the healing process, and also the risk of infection, once treatment has begun and your blood levels start to fall. 

Best of luck with whatever you decide to do, we`ll be here for you!



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Hi and welcome.

I'm the expert in losing teeth from treatment. I've had 3 courses of treatment with Interferon and have lost 3 molars. I finished 48 weeks of triple Rx with Victrelis 12 weeks ago. The day after I finished Rx, I broke off another molar at the gum line. As my platelets and white cells were so low, my dentist wouldn't extract the roots. My blood counts are now up, so I had the roots removed last week.

Interferon has a direct effect on tooth enamel, and with the decreased, acidic saliva and low white cells, dental caries is a real problem. Even though I had a dental checkup before Rx, and at 3 monthly intervals, I'm still another tooth short. I will be getting 3 implants later in the year.

In your situation, I certainly wouldn't start Rx until the implant was well and truly healed. I would also advise regular checkups while on Rx, together with intensive tooth brushing and alkaline mouth moisturisers.

My liver enzymes never became normal during Rx. This is is not unusual in cirrhotics. Have you had a liver biopsy to assess your level of fibrosis? Good luck for when you start Rx. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
marktrux


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I had a tooth pulled in late Dec. and it took 4 months to heal over. I did everything the dentist told me to do and I normally recover from a pulled tooth within 2 weeks. I was on treatment at the time and would have preffered to wait until I was done but I didn't have a choice, it had to come out. Your Dr and dentist should probably know what the other has going on, to help you make an informed decision. Best of luck with TX, it can be tough but it's worth it.



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KCCO

 

 
Greg


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Hi Sandy,

Glad to have you on-borad, just wanted to say hi and welcome, wish you all the best on your journey to beat this dragon.

Cheers,

Greg



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
ucbgal


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alan,

     thanks for the encouragement. it's unfortunate the drs. aren't as well informed as the people in this community. also tomorrow i will be speaking with my implant specialist to inform him of the oral side effects. actually i'm wondering if they're related to platlette counts,or anemia. i'm so pleased to hear you've won the hepc battle.

sandy



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ucbgal


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biggyb'

     thanks for the insight! so relieved to hear i could possibly have normal liver enzymes that quickly. i wish the dr. could answer my questions as well as the people in this community.

sandy,ucbgal



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ucbgal


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12stepguy,

     thanks for the insight. funny you should mention losing teeth due to weakened immune system. one of my implants is a replacement because my immune system was out of whack last summer when 1st done. it was so bad that i had a severe skin rash for 1.5 months until i found an allergist who recommended zyrtec. good luck with your dental work.

sandy,ucbgal



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ucbgal


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dillo,

     thanks for responding and i'll take your advice. 1st thing tomorrow i'll call pricey implant specialist and let him know the oral side effects. i guess i'm just in panic mode because i got my intro packet and read all the horrid side effects.

     sorry to hear you have elevated enzymes as well. have you tried treatment to resolve them?

sandy,ucbgal

 

 



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12Step Guy


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Welcome to the class. My lowered immunity played hell with healing from dental issues. But I would expect that your immune system will be adequate to deal with past dental work for a month or so into the treatment. I lost a implant tooth and then had three more root canals done in the past 46 weeks. Malcolm thinks the drugs have played a role in his issues too. Maybe he can chime in.



__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Biggyb


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ucbgal wrote:
will treatment resolve the elevated ferratin,ast/alt?


 It should, my ast/alt were high for years, very high the last couple years. After 4 wks of treatment they were normal. Weird stuff..



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
news


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The Incivek triple therapy should bring you AST/ALT numbers down fairly quickly, and by the time you finish they may be perfect. Can't say much about the dental implant, but I don't see why you should have to wait. But just make sure your doctor knows all about it.

I tracked my bloods during an Incivek triple, with 12 extra weeks of Riba/Pegasys, in a spreadsheet, which you are wlcom to view. The link should be in my signature, below.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Dillo


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Hi sandy.

I don't know how your feeling from your implant surgery so that hard to call. Have you asked your doctor about it? If it doesn't take much longer to heal I'd say wait but your doctor would know best.

I can't tell you if treatment resolve the elevated ferratin,ast/alt but mine are high too. What we all hope is after treatment our livers will get better and elevated results will go down. 



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

ucbgal


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     hi,i'm sandy and joined today for i'm going to start incivek soon and need advice. i'm 55 y/o and was diagnosed 11 years ago. my viral load is 1.3 million,but have elevated ast/alt and 66% iron saturation. i've only started to become fatigued recently therefore i decided to become a fighter and deal with therapy. will treatment resolve the elevated ferratin,ast/alt? also i have 1 more month to heal from dental implant surgery. would you people recommend i wait till i have the tooth situation resolved? i look forward to any advice. keep the faith and have a great day.

ucbgal

p.s. here's a tip for fat in diet. atkins shakes have 9 grams of fat,10 grams of protien,7 grams of fiber and high in pottassium!



-- Edited by ucbgal on Sunday 5th of May 2013 08:00:18 PM

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