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Post Info TOPIC: New Here
mallani


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RE: New Here
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Hi ted,

It amazes me how American  Insurance can refuse to pay for a biopsy. It is an essential part of Rx planning. Testing the sample for haemochromotosis takes 5 minutes . You mix some Prussian Blue into a sample and look under the microscope. Haemosiderin stains blue- end of story.  If you have cirrhosis its 48 weeks of Rx , but still a good chance of SVR. Good luck.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tedlandry


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Thanks Guys

Found out yesterday that they are delaying my start until they get my Biopsy back from the Mayo Clinic. I didn't even know they sent it. Seems that they want it tested for Hemochromitosis. They tried to have it ran locally, but my insurance denied the test. I guess this was an "end around" to get it done.  Hope I can start next week.

Ted



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Ted Landry
Dillo


Senior Member

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Posts: 227
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Hi Ted
Treatment I am going through is the first time for me but sounds similar to yours.
Looks like you have the knowledge, the attitude and the support system.

Good luck and the best to you.

Let us know what happens.

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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

edmed


Veteran Member

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Posts: 60
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welcome to forum Ted, never give up the fight.  this is the third time on treatment for me and i pick up all the info  i need to deal with side affect here in the search area. keep on posting your progress.



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tomyboy


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Welcome to the forum.  Hope you begin your treatment shortly.  Best of luck to you!!!



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Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

JoAnneh


Guru

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Ted,
It took weeks for my insurance too.
This is normal which is unfair I agree!
Triple tx gives non responders or null responders
Much HOPE! It is working

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Tedlandry


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LOL. She spoils me anyway.

Just heard today that my insurance company hasn't ok'd the treatment yet. I may have to wait another week. I'm psyched up now and ready to tackle this. Hope I don't have to wait.

 

Thanks to all of you guys for the encouragement. I hope to be able to provide the same to those here now and yet to come.



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Ted Landry
Loopy Lisa


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Good luck, I had better not let my husband read about the "den" he might get some ideas! ;)



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
mallani


Guru

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Hi Ted,

Welcome from me as well. I finished 48 weeks of the Victrelis triple 12 weeks ago, but have just about recovered.

I also had 2 courses of treatment in the late nineties using the old Interferon, 3 x weekly. The Peginterferon seems to be much more potent. Good luck with your treatment. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Bloomster


Senior Member

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Posts: 235
Date:
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Welcome to the forum Ted.  Loads of great info. 



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
Biggyb


Guru

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Posts: 820
Date:
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Welcome Ted, stick around. Great people here.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Cinnamon Girl


Guru

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Hi Ted, welcome to the forum!  Sounds like you`re well prepared, and your wife is an angel setting up a `den` for you to retreat to when you feel the need.  As you`ve already seen, we`ve got an amazing bunch of people here with a combined wealth of info, and big hearts to share.

Feel free to look around and join in, and if you have any questions...just ask.  All the best of luck this time round!  smile  ~ Jill



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tedlandry


Member

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Posts: 21
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Thanks, I would love to say that I'm not worried, but that's a lie. My wife was not with me when I went through this before. I've tried to explain it, but it is just hard to describe. We are in a "great place" personally so I am very positive about starting this process, especially seeing all of the positive results. Our kids are all grown and gone, so no stress there and she has set up a room with a bed, recliner, Big screen TV for me to disappear to. lol I'm a Security Manager with Homeland Security and my bosses have agreed to change my schedule so I'm off the 2 days after the shot. I think we are as ready as we can get. I love the posts about the diet and recipes. My doc said that eating 20gr of fat 30 minutes prior to the pills is critical so that it works. Lucky for me, I love to eat! lol
Thanks again for the welcome and encouragement. You guys on here are great.

__________________
Ted Landry
JoAnneh


Guru

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Posts: 1077
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I made it thru 48 weeks, triple w Invicek.
Those 1st months on Invicek were a roller coaster ride.
I found the weekly interferon much easier
To handle than the 3 times a week when I
Was on combo in 2001.
Drink lots of water. Be prepared for with
Supplies to treat side effects. Rectum and itching!
I am now post three times and improving.
Lots of people are achieving SVR.
There is hope for us.
This forum has been a God sent for me.
Welcome

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
12Step Guy


Senior Member

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Posts: 413
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Ted, I'm doing the triple now and was on the old combo in 1999 and 2006. Most of the triple sides are the same. But the first 12 weeks on Incivek (telaprevir) hit me harder then the old combo did. Fortunately after the 12 weeks it was back to the same old sides. It is all doable. I was lucky and had a very reduced workload during the 12 weeks and I avoided the "shards of glass" and "incessant itching". Just have the normal itching (lol) and had the butt burning during the 12. The old survival skills from 99 and 05 came back.

You're going to be just fine. Time to learn how to "Bite the Bull by the Horns"

Vern

 



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Tedlandry


Member

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Starting the telapravir this week. Thanks, I'm enjoying reading the recipes now, lol Have a great Sunday

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Ted Landry
JIme


Guru

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Hey Ted, welcome.

You can use the search bar for tons of info on triple tx. Or just ask away. Are you on telapravir or victrellis?

Good luck! You can do it!!!!!!!

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Tedlandry


Member

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Hi all. I'm a 55 year old non responder (to the old combo). Had treatment back in the 90s. Fibrosis is between stage 3 and 4 (whatever that means. I start the triple crown this week. I look forward to reading and sharing with all of you. I remember how great the support groups were back when I did this before. Anyone that went through the old combo treatment that can tell me how the side effects compared??  The dragon won the last time, but I'm going to kick it's butt this go around!



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Ted Landry
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