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Hep C Discussion Forum -> General Discussion -> highironsaturation
Post Info TOPIC: highironsaturation
ucbgal


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RE: highironsaturation
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     thanks for the advice. i'm starting to believe this forum  more& more. for the past 11 years the milk thistle and pricey colloidal mesosilver  did little to eradicate this disease. actually the nurse support system doesn't even know how they interact with the treatment. thus my decision is quite easy.

     sorry you suffer from anemia as well as low blood pressure. i know that foods rich in potassium and a pretzel will resolve the problem.

sandy



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Loopy Lisa


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Hi Ucbgal,

I had anemia as a kid combined with low blood pressure (light headed, dizzy, little fainting). I took some medicine in the form of syrup that tasted metalic and after a while I was fine. I still get light headed if I stand too quick but that is due to low blood pressure. I read that some of these herbal remedies can alter ALTS and they are not good to use when you are going to start therapy. My Doctor thinks they are a waste of money as they don't cure you, so actually it is throwing cash away. Just a thought......



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Genotype: 3b

VL.ïż½over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
ucbgal


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mallani,

     i was diagnosed with severe iron deficiency as a teen and actually missed school for 1 month. my whole life i've suffered from fainting spells,even as a young child. eleven years ago when i was on soc  my anemia was again reconfirmed.  thus until 3 years ago i always ate foods high in iron and took iron supplements. at least i'm doing something about it before i become cirrhotic or the big C.

     thanks for the info on the herbal supplements. i haven't met with my training nurse yet. there is a light at the end of the tunnel here. tomorrow i get the last part of my dental implant and have received my 1st shipment of meds! i'm on a roll,but nervous....

    i  will call the nurses right now . take care and enjoy your fishing !

sandy,ucbgal                                                                                                              



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mallani


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Hi Sandy,

If you stop all those supplements perhaps your body might have a chance to normalise. Try to get off all of that rubbish before you start triple.

The triple may make you anaemic but it's an haemolytic anaemia, and is not due to iron deficiency. Why did you take megadoses of iron when you failed SOC? You said you became anaemic, but that was almost certainly due to Ribavirin, not iron deficiency.

Keep it simple.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
ucbgal


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neil,

     thanks for the insights,i seem to learn more from this forum than the drs. my biopsy states grade 1,stage 1, mild fatty inflammation and focal necrosis. fortunately it didn't indicate cirrhosis. according to my dr. it's possible to eradicate all of this with triple treatment. this is what i'm trying to figure out. luckily i don't have hemachromatosis.

      if /when you're tested for hemachromatosis they can blood let you to remedy the situation.

     thanks for the info on herbal supplements.  i guess when i have my training session all the drug interactions will be discussed.  did you find that the 1p6 worked as well for you as me? i saw in your bio you're at the tail end. are you undetected and at what week? keep on fighting!

sandy,ucbgal

 



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ucbgal


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greetings,

     does anyone here have high ferritin levels? my iron saturation was 90% 3 years ago. i stopped my iron supplements,one a day vitamin with iron and 2 servings of fiber one cereal/day. also a month ago i added ip6 and liv.52 supplements to my daily regimen of liquid mesosilver colloids,milk thistle and plenty of lemon juice. as of date my iron saturation went down to 60%. i start triple  2nd week of june. any other suggestions would be greatly appreciated. have a great day.

sandy,ucbgal



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Neil_Canuck


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My feritin is high as well...never knew the level though. My family Dr set me up with a hematologist

who wasn't too concerned. He said any time the liver is ill that the iron can go out of whack especially with Hep c. He got

blood test and wants to see more blood tests after Tx is over. I go back to him about the 12 of July.

I've never been tested for Hemachromatosis so if it stays high he will check that out as I have a northern european 

heritage. From what I researched high iron feeds cancers so I reckon I'll be monitored for life....lol.

When Tx starts for you all those supplements you're taking will need to stop or so I was told by my  hep c Dr.

I was milk thistle, ip6 and green tea extract...all stopped when Tx began.



-- Edited by Neil_Canuck on Tuesday 14th of May 2013 08:20:10 PM

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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
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