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Hep C Discussion Forum -> New Members Area -> Friday Evening Post
Post Info TOPIC: Friday Evening Post
tomyboy


Senior Member

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Posts: 142
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RE: Friday Evening Post
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Hi Rose,

Welcome to the forum.  You will find this forum to be informational and supportive.  Best of luck with the trial. 

 



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Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

Matt Chris


Guru

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Posts: 1782
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Hello Rose and Welcome to the forum

Sounds like you have a great attitude about your journey.

The forum and and the different threads can provide hundreds of insights about all things HCV, we don't know it all but the support and caring way members respond can be very loving.

Hoping the best on your enrollment into the Ion trial

Matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Rose


Member

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Posts: 28
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Thanks guys, I appreciate the support. I'm happy to join you and will do my best to pay it forward to other new members.

Have a wonderful weekend!



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Currently in the ION-3 with Riba 8 wks,  started Jun 13- Baseline VL 1.8m- AST-40 ALT-46. Wk1 - UND,  Wk2 - UND, 
Cinnamon Girl


Guru

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Posts: 5629
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Hi Rose, welcome from me too!  You`ll find this forum a great help and support, and I`m sure you`ll soon be speaking our language! 

Have a look round and you`ll see we have a section for people who are on trials, `Clinical Trial Participants`, so do feel free to start a new thread (topic) there.  Another of our members is also going through the preliminary procedures before starting this same Gilead trial. 

All the best of luck, this will be a very good trial to get onto.  Keep in touch, and if you have any questions just ask...we`re a very friendly and relaxed group here.

Hope you have a good weekend too!  ~ Jill

ps - Love your avatar photo... not quite the yellow rose of Texas, rather more apricot!  Very pretty..  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


Guru

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Posts: 3398
Date:
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Hi Rose,

Welcome to the Forum. Your biopsy was obviously OK and you're not cirrhotic otherwise you wouldn't be considered for ION-3. That's a good Trial, so good luck.

The Forum Abbreviations we use are in a Sticky in the New Members area, so you'll soon understand our special language. Hope you do well. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Dillo


Senior Member

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Posts: 227
Date:
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Welcome Rose,

Your in good company here. Great if your getting into the trial.

Good luck and keep us informed.



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Terry


Senior Member

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Posts: 124
Date:
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You are just like a lot of us so welcome !    I am Terry from Vancouver Canada So many here are supportive and very helpful  good luck I hope things go great for you.



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Geno Type 1a stage 4 cirrhosis EOT 52 weeks SVR !!
marktrux


Senior Member

Status: Offline
Posts: 168
Date:
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Hello Rose. Sorry for your diagnosis, but we are coming on some very exciting times in HVC treatment. There are some good RX's on the market now but there looks to be some really great ones on the horizon. It sound like you've got yourself into a trail of one of theses very promising RX's. Good luck and keep us posted.



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KCCO

 

 
Biggyb


Guru

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Posts: 820
Date:
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Welcome Rose, believe me the lingo will come after 44 weeks or so..lol.

Use the search at top of page and put in keywords your interested in. Good Luck



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Rose


Member

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Posts: 28
Date:
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Greetings, what a warm and welcoming place you guys have created here.  I feel so fortunate to have found it.  Im Rose from TX ~

I wish 2012 had given me warning that 2013 was going to be a life changer.  It Started with a routine physical in Jan --> HepC diagnoses in Feb--> liver bio in March -->Today -->clinical screening  for ION-3 Gilead trial.   And I still don't know the lingo to hold an intelligent conversation.

I'm happy to be here, makes me feel a more grounded.  Looking forward learning how to Speak HepC. 

 

~Cheers

 



-- Edited by Rose on Saturday 18th of May 2013 03:25:07 AM

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Currently in the ION-3 with Riba 8 wks,  started Jun 13- Baseline VL 1.8m- AST-40 ALT-46. Wk1 - UND,  Wk2 - UND, 
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