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Post Info TOPIC: I'm new here and to HCV
Kellie


Senior Member

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RE: I'm new here and to HCV
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Hi RR, Welcome! I'm on the triple too. Lot's of water and no sun worked well for me. Post as often as needed. We have lot's of experience with this. We're here for you! Kel



__________________

HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
Loopy Lisa


Guru

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The most impotant thing is you are turning your life around, and taking all the right steps in a positive direction. You are very young and have your whole life ahead of you. We all make mistakes and sometimes there are consequences. Being sober for one year is a  great achievement and something to be proud off!

I am genotype 3 as well, I hope for you that being young and female that your body cured this in the acute stage. That will leave you to carry on your journey and to concentrate on your future..... If not, well there is a whole group of people that are waiting to treat, treating or finshed, but here to support. There are plenty of people to ask questions, lean on and generally give support, with a pinch of humour at times.

Wishing you the best. x

 



-- Edited by Loopy Lisa on Saturday 29th of June 2013 04:01:50 PM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Tig


Admin

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Hi and welcome to the forum! Lots of great people and information here as well. You may experience any number of side effects but the issues you may or may not have depend entirely on how you react to the medications. As you progress with treatment stay in contact here and share your symptoms. That alone is the best way to get quick suggestions. Stick with it and look forward to a healthy future!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Roughrider55


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Hello Everyone,

 

I'm new as of this evening.  I started triple therapy yesterday.  INC/Rib/Peg.  I am already experiencing some slight side affects from medicine already.  I am looking forward to reading and finding solutions others used for issues with treatment.  I am 1A and Stage 4.



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Genotype 1A
JIme


Guru

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Welcome to the forum. Lots of good info here and quite a few people in the rooms too! Lots of positive support.

Gather all the info you can so you can make the best decision for you when the time comes.

27 years c&s for me. It does get better.  I got cleared last year. Life is good!

Good luck and Congrats on 1 year! Tighten you seat belt, it's a great ride.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
JoAnneh


Guru

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Welcome! I discovered I had Hep C when
I was 15 years sober, felt great, very active
Lifestyle. I was 38 and treatment didnt clear
The virus and I was taken off of it.
My husband was also sober 15 years
And he had the natural antibody that
Cleared the Hep C virus by itself! Yay!
Hope that's your case if not we are here
For you.
You are young and may be able to wait
A LITTLE while 1-3 years for easier treatment.
Your doc can help and so will this forum.




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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
AngieV123


Senior Member

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Hey :) Im new to the forum too. I am not new to hcv though :(. I did my first treatment in my early 20s and I had almost no side effects. Im sure that if you need to do the treatment that you will be able to breeze through it due to your age. I see a doctor monday and Im hoping to do the Tx again very soon. Hoping for the best for you and congrats on staying clean.

__________________

Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 
edmed


Veteran Member

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Hey Huffy welcome,  I found out i had hep c geno type 1a back in 1996 when i had nine year clean. Over the years i've stayed informed with treatment options and keeping up the everything to do with my liver [blood test, liver biopsy and yearly test by my doctor]. Now on treatment again and I wouldn't change a thing from my past cuz of of the support i've gotting over the years. Hang in there and never give up the fight with this daily battle.

 

 

 

51 year old,geno 1a,  started 3/1/13 @ 7.9 VL, 4 wk det, 8 wk det, 12 wk <43 still on tx for 12 more weeksmile.gif



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Huffy


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That would be pretty cool! I'll post what I find out!



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24/f. I don't know anything on my condition. Rock Chalk Jayhawk.
mallani


Guru

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Hi Huffy,

A positive antibody test just means you have been exposed to the HepC virus at some time. You may be one of the lucky 20% of patients who have spontaneously cleared the virus. You will need a Viral Load test to find out whether you have active disease. All the best.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Huffy


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I had a hep c test done a few weeks ago because I was such a high risk and 3 days ago they called me and said it was positive. Since I don't have insurance she gave me the number to another clinic. My appointment is Tuesday so maybe I can get some answers then. But it's been at least 1 year since any possible infection.



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24/f. I don't know anything on my condition. Rock Chalk Jayhawk.
mallani


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Hi Huffy,

Welcome. When you say you tested positive for HepC do you mean the HCV antibody? You can test positive to the antibody but not have active HepC. You need a Viral Load test for that, but I'm sure your doctor will sort that out. If your Viral Load shows you have HCV, the Genotype test will be necessary to determine what treatment is best. At your age, you will have an excellent chance of clearance. Keep us posted. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Huffy


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Yeah I had been wondering if HCV could mutate and turn into a different strand or something. But regardless I'm going to treat my HCV like I do my recovery and take it one day at a time. The only thing I can do today is stay informed and make some changes to my diet.



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24/f. I don't know anything on my condition. Rock Chalk Jayhawk.
Zlikster


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well, if you are sure she is the one who infected you, then yeah. GT3 it is. I haven't heard transgenotype mutations except in case where there is infection with multiple genotypes (rare case).

easiest to treat genotype is GT2. Then it's GT3 then GT1(4,6)...strange thing is that first new DAA med (Sofosbuvir) alone with Riba doesn't have great impact on GT3 (56%) while on GT2 it's blazing (96%?). GT2 and GT3 for a long time being considered as easier to treat, same response genotypes, but more and more publications show that GT3 is a bit different beast than GT2. It can cause fatty liver (my case too) more often than other genotypes (not known why tho).



__________________

GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Huffy


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Thank you for the replies. I'll be sure to post all my vitals when I know them. Quick question, if the girl who I'm sure I got HCV from is a 3 does that mean I'll most likely be a 3?



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24/f. I don't know anything on my condition. Rock Chalk Jayhawk.
Zlikster


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hi Huffy people that are <30 are more likely to get rid of virus and also take sx much easier. Good thing you discovered it early. I prolly had it for 10 years (from my cca 25?).

please post us your blood/viral load/genotype/liver condition results...

as you well may noticed, medicine progressed a lot in last couple of years. New meds without interferon (which makes a lot of people miserable and with serious sx) are getting there. Maybe end of 2013 or early 2014 first batch of new DAA drugs will available in USA market. If your liver is not damaged at all, and virus is not active, u might consider with your doc to wait for new meds or try to get into some clinical trial (if there are some new ones). Consult with your doctor after you have gathered all possible intel on your condition.

check clinical trials section

Genotype 3 (i have it too) is bit easier/shorter to treat from G1. Traditional therapy with interferon and ribavirin can last somewhere between 16 and 24 weeks.

hope you gonna kick it out with new meds, if not i belive you can kick it out in 16weeks with traditional therapy

best



-- Edited by Zlikster on Sunday 23rd of June 2013 02:04:14 PM

__________________

GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Tig


Admin

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Hi Huffy! Welcome to the group! There are lots of great people here, I'm still meeting most of them! I'm very happy to hear that you're almost a year clean! Seriously fantastic actually, congrats, keep it up! The fact that you're young and haven't had the virus for long really works in your favor. Hang close to your support group and I hope you keep an eye on this great group as well. I'm just getting started too and am very happy I found the help and information this forum is providing! Keep in touch, I'm always around...



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Huffy


Member

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Hello! Like the subject says, I'm new to the forum and to the disease. I found out 2 days ago I was positive for hepatitis c. It a surprise, but not really. I will be celebrating one year clean (from drugs) on July 2. I always thought the drugs would kill me first so I was never really careful about how I used and that's how I got it. Anyway, everything I know about HCV is what I've been reading about in the last 2 days. I obviously don't know what genotype I am yet but a girl I used with told me she was a 3 (I was trying to be responsible and tell her I had it but she already knew she had it and didn't tell me, but I digress.) My first doc appointment is this Tuesday. I'm hoping I have a few good things going for me like the fact I'm clean, I'm young (24), and I got diagnosed pretty earlier. I think I've had it between 1 and 3 years. And oh yeah, I've got a good support group going on! I just want to befriend other people who have it and know a thing or to about the disease. It feels good knowing I'm not alone.



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24/f. I don't know anything on my condition. Rock Chalk Jayhawk.
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