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Post Info TOPIC: Life after Abbott trial diary


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RE: Life after Abbott trial diary
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Biggyb wrote:

Great news Tris, hoping for the SVR for us both. I too go end of Dec. for 6 month vl. Bloomster (Caroline) also. We were both und at 3 month,,Cheers.


 Love your boxer....I have one too! Yes best wishes to both of you. Here's to a very Happy, Healthy 2014 to all of us!



__________________

Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 



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congrats trish!

happy 4 U

I dont go back for 6 month till Januaary

Hard to believe the time went by so fast, eh?

seems like it was yesterday when u found out you were on a placebo

hip revision surgery nov 4

not happy having to go thru a third hip operation but it will be the first hep c clean!

grateful and best of luck to you and your life without that dragan.

i know in my heart Matt and the rest still pinned will be depositing SVR news over the next few months too.

Canr wait to read them!

 



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Hey Trish...Fabulous news!!  Look out world here you come.......>



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014



Guru

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Hi Trish, good to hear from you, and congrats on your latest UND result!  It`s great to hear you sounding so happy and positive about your life now, and I wish you all the best of luck with your future vl tests! 

It`s all looking very promising for you, and try not to stress about your hair loss...just give it time. smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Hey Trish

Congrats on your latest results , up up and away. I am very happy for you.

Matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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Great news Tris, hoping for the SVR for us both. I too go end of Dec. for 6 month vl. Bloomster (Caroline) also. We were both und at 3 month,,Cheers.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~



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Congratulations Trish !

I had my 12th week after treatment middle of September and will have the 24th weeks after treatment blood test on the 16th December, then sometime in March for the 48th week.

How are you doing with sleep ? this is a very bad point for me, even with Benzo I still do not sleep weel : I am awaked since 3 a.m. and it's nearly 6 a.m right now, and no sleep !

I did not loose hair, so that my little gift smile

Have a nice day,

 

Do



__________________

Geno 1b. VL 17. M. AbbVie Turquoise II. UND EOT 4. 8. 12. SVR.

"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."Albert Einstein

 

 

 



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I am still UND and Dec will be my 24wk and March will be my 36wk app. Come May of 2014 I am in the clear.

 

I have got full energy back and the only thing I am noticing is I am shedding more hair....I have tons of it so it's not a biggie. I am taking a hair supplement to help out. All in all I am so thankful and happy. Single, Hep C free and ready to tackle the world!

 

I wish everyone the best of luck and I will post back up in March and May of 2014. smile

 



__________________

Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 



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IOS9~

 

Sept 19th is my next visit. Like my RN says if I don't hear from in in between blood draws...all is good. I am still getting the headaches.....not as bad. But sleep what sleep....I used to be able to sleep 7-8 hrs...I am lucky if I get 5...now mind you I drink a lot of H20 so I get up to pee during the night. But I don't know when the last time was that I slept more then 5hrs......it's making me very miserable. I am going to try melatonin ....my regular doctor suggested it before she gives me ambien. She has prescribed Lunesta and the bad after tase and loss of hair didn't work well with meno. She said the side effects of ambien can be night walking....huh? All I know is I would love to sleep 8 hrs of solid restful sleep.



__________________

Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 



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Hey Do

That is great news about your cirrhotic friend having success with Sofosbuvir .

Sofosbuvir  is going to be a game changer in the world of HCV.

Thanks Do for your interest in my behalf. Will post Hepatologist visit in my trial thread.

Matt

 



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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Hi Trish, Matt,

Matt : even thought the virus is back,  the VL must be much lower, so that's a big difference with those people who could not try the trial.

Luv : I stopped nearly same time as you, did not have any headaches during the treatment but have it now, as well as some new bruises on my body every morning, and do not have more than 4/5 hours sleep neither. May be the drugs still in my body are fighting good parts of me  instead of the virus :(

 

When will you have the result of your EOT 8 blood test ?

Cross my fingers for you.

Matt, do not forget to let us know what your doc plans to do. Sofos will be on the US market end of 2013, yes ? hope you will be able to get it soon. My friend, with cirrhosis, is EOT 12 weeks UND with Sophos, great !



__________________

Geno 1b. VL 17. M. AbbVie Turquoise II. UND EOT 4. 8. 12. SVR.

"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."Albert Einstein

 

 

 



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Trish

Thanks for asking, will consult with my Hepatologist on Friday to see what is my best course for future treatment. Maybe wait until Sofosbuvir or see what trial / offer Abbvie has for re-treatment. it's all like it was before, have patience and keep has healthy as possible. At least I have learned tons about HCV and all that surrounds it, like you also have Trish.

My time for SVR is still ahead my me if I keep the faith that day will come.

Matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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Matt,

 

Hey bud whats going on with you after the relapse? Are you going into another trial?

 

Trish



__________________

Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 



Guru

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Hey Luv2

Congrats , you are well on your way to those three special letters. Enjoy the moments they will only get better.

Matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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OK well I just did my 8week draw and all is good....thank you God. I hope the good news keeps coming.

 

I have noticed my energy is coming back and I can tolerate the sun wayyyy better. Still getting the headaches and my RN said it's the riba still in me.

 

Hope everyone is doing well.



__________________

Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 



Guru

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Hey Luv2 Congrats 

That is great news, soak up all that summer sun it feels so good and loads up us with Vitamin D. Enjoy all the wonderful things with the freedom that you feel now.

Keeping the vision.

Matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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So I am past my 4week mark and all is well. smile  I have noticed my energy is coming back and I am able to be out in the sun for longer periods of time. I go for my 8week  draw end of Aug.

 

I hope and pray that everyone clears this ugly virus and stays clear. Hope everyone is well.



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__________________

Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 



Guru

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Hey Trish

Yes I know of this feeling, in my case it lasted about two weeks.

It went from that tired feeling to slowly gaining more power and then a almost feeling of weightlessness without full power.

Stay clear of all possible people with colds and sickness as your body/immune system will be in charge now of fighting off if any highly weaken HCV.

Its likely that because your not cirrhotic, you will have entirely wiped out the virus and it has no place to hide.

Hoping the best for you

Matt

 

 



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



Guru

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Hi Trish,

It's always a bit of a let-down when you finish Rx. Relax and enjoy life. Good news will be coming after your excellent results. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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I just finished my Abbott trial on 6/26/13(last night I took meds) and was wondering how everyone is feeling off of the meds? My first day off meds I had to go in and turn in all empty med sleeves and bottle of riba and had a blood draw and EKG. But I noticed later that evening how friggen tired I was. I mean like someone drugged me and I couldn't stay upyawn. I was never that way during treatment. Second night I just keep waking up every 3-4 hrs. Is my body going through anything that makes me feel like I have less energy now then I did on treatment?yawn Just wanted to start my second part of my jornal after treatment.

 

Thanks,

Trish



__________________

Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 

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