Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> New Members Area -> I'm new here, new to HCV and trial all together
Post Info TOPIC: I'm new here, new to HCV and trial all together
britlitkaren


Senior Member

Status: Offline
Posts: 207
Date:
RE: I'm new here, new to HCV and trial all together
Permalink  
 

Bon jour! Welcome to the group. It sounds like you have a good plan and are eating well to boost yourself along. That waiting game seems so unfair. Please keep us posted on the results. I am not vegan, but use a lot of vegetable protein. It is good for reversing liver fibrosis! I am glad they caught it while you are still in the early stages..
bis bis, Karen:)


__________________
Diag 8-10. 1st VL 600,000. Gen 1a. Grade 4 Stage 4 cirrhosis w/ Esophogeal varices level 2. Viral load 1,750,000 7/12/10. Triple Therapy w/ Telaprevir began 7-15-11
garfield


Veteran Member

Status: Offline
Posts: 97
Date:
Permalink  
 

Hi ios9

          thank you - my avatar is my cat and it looks like garfield.

All of us really understand your doubts to reach svr. I follow different groups concerning abbvie studies - that will be about 50 persons.

But only a few people have reached already week 12 after end of therapie, otherwise I know only from one single relaps and this is in this forum.

Last monday I had the final discussion with my doctor, we talked about the risk of relaps, and he told me, that both in the 8 week group in phase 2

reached SVR. I know that abbvie would have stopped the treatment, if with the end of week 6 UND is not reached.  The only thing we can do is waiting.

I will get  my blood results, when the study has been completely closed, that should be on the end of august.

 

nice evening

 



__________________
garfield


Veteran Member

Status: Offline
Posts: 97
Date:
Permalink  
 

Hi ios9,

            welcome, and greetings from germany.

I finished my Abbvie Sapphire trial on July 7th, it was doubleblinded, so I don't know my blood values.

Privatly I induced the measure of the viral load after 4 days. It was decreased from 10.5 Millions to 1148.

 

with regards



__________________
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Dominique, welcome, I`m glad you found us!  We have a section of the forum called  `Clinical Trial Participants`, and other members who have done the same trial have posted about their progress there.  You`re welcome to start a new topic/thread in that section too, if you like.

Congratulations on your week 5 and 6 UND results, best of luck with your SVR.

Have a nice evening over there in Paris, it`s been a lovely day here in the UK too!






__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
ios9


Senior Member

Status: Offline
Posts: 177
Date:
Permalink  
 

 

 Hi Garfield ,

Love your name and avatar. I discovered I was HCV after the death of my 14 months old Peterbald named Gershwin. I became very tired, dry eyes,nose and mouth. He might have save my life, but I miss him so much...

 

I have a friend who is on Saphir too. She did the same as you : had her results from private sources. She was UND week 1 but started with a very low VL.

My load was 21M begining of March, reduced to 17 M begining of April (after ostheopathy treatment). On day 1 with Turquoise II, I started with 17 M. and two hours later my VL was down to 11 M. then  only 670 Il on week 1. This treatment is working very fast.

I did not have any side effect, no anemia (I am vegan), every thing fine excepted some deep sadness when I understood I was the last one to become UND in my group. I wanted a 24 weeks trial but was on a 12 weeks one unhappily.

However, docs said that with those new moleculars, one does not need to become UND on the first 1/3 part of treatment. Hope they are right !

 

 

When AbbVie will allow you to know your results ?

 

 

Have a nice sunny day, hot here in Paris right now.

 



-- Edited by ios9 on Wednesday 10th of July 2013 11:12:29 AM



-- Edited by ios9 on Wednesday 10th of July 2013 11:13:09 AM

__________________

Geno 1b. VL 17. M. AbbVie Turquoise II. UND EOT 4. 8. 12. SVR.

"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."Albert Einstein

 

 

 
ios9


Senior Member

Status: Offline
Posts: 177
Date:
Permalink  
 

Hi !

Nice to have found this forum :)

I am French, from Paris, and have been diagnosed HCV last end of February, with early cirrhosis too. Contaminated by blood transfusion early in my life, 42 years ago.

I started AbbVie TURQUOISE II trial on the 8th April for 12 weeks. Treatment ended on 1st July.

My VL was a high 17.M on day 1, was under 25 on weeks 4/5 and UND weeks 5/6.

We in Europe start the American trials later than you, so I am looking for more informations you might have.

Thank you all and have a very nice day :)

 

 



-- Edited by ios9 on Wednesday 10th of July 2013 09:33:08 AM

__________________

Geno 1b. VL 17. M. AbbVie Turquoise II. UND EOT 4. 8. 12. SVR.

"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."Albert Einstein

 

 

 
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> New Members Area -> I'm new here, new to HCV and trial all together
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.