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Post Info TOPIC: Hello, I'm a new member.
Bloomster


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RE: Hello, I'm a new member.
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Hi Marian,

Welcome to the forum.  My husband finished 48 weeks of Victrelis nearly a month ago and is recovering from treatment.  You'll find the forum a great place for encouragement and information.  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
Dillo


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Welcome Marian,

I think you'll like the forum. Lots of nice people and good information. Good luck with your trial!



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

edmed


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Hi Marian, welcome the forum, great place to search for any answer you seek while on TX. lots of support here. keep on posting and the best of luck.



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britlitkaren


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Hi Jumpy! I had to lol at your name. It sounds like you have a supportive medical team, and now you've found a forum family to help see you through treatment. Best of luck! Karen:)

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Diag 8-10. 1st VL 600,000. Gen 1a. Grade 4 Stage 4 cirrhosis w/ Esophogeal varices level 2. Viral load 1,750,000 7/12/10. Triple Therapy w/ Telaprevir began 7-15-11
mallani


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Hi Marian,

Good to welcome a Kiwi. I'm from Brisbane, but am currently in London, celebrating the end of my 48 weeks of triple Rx with Victrelis.

Good luck, you're on a great Trial. Cheers mate.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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Welcome! This forum has been a HUGE
Support to me. I am 3 month post tx of triple therapy
With Invicek. Waiting on VL results.
Feeling alive again:)

Malcolm and Cinnamon how awesome
You 2 met! Love the photo. Must admit
I am jealous that I am not with y'all!

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Zlikster


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good luck Marian



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Cinnamon Girl


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Welcome from me too, Marian, I`m glad you decided to join us! smile

All the best of luck with your Sapphire trial, now that you`re on the real drugs!  We do have a section called `Clinical Trial Participants` and you`re welcome to start a thread there too.  You`ll see that we have other members also on Abbvie trials. 

You`ll find the section here...

http://hepcfriends.activeboard.com/f579369/clinical-trial-participants/

Keep in touch, we look forward to following your progress!  ~ Jill



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Biggyb


Guru

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Welcome Marian, this is a great forum with lots of info. The search at top of page works great. I finished 48 weeks of triple with Victrelis almost 4 weeks ago. Been undetected since 8th or 12th week, brain fog still getting me. 

Stick around and keep us informed at your progress..~Cheers~ 

~Bob

 

 



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Jumpy


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Thanks Tonib, lots of luck with your treatment!



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tonib


Senior Member

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Hi there Jumpy and welcome to the forum.  I am new also, just started about 3 weeks ago.  My 3rd shot is this Friday.  I am on PegInterferon, Ribovarin and next up is the victrellis.  Good luck and God bless you!



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
Jumpy


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Hi Justjim, I'm sorry to hear that the boceprevir failed, but I do know that aside from the Sapphire Trial, there are the Gilead and BMS trials and both of these also have very high success rates so there is plenty of hope.



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nurschic


Senior Member

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Welcome to the forum! Your in great company here. I'm in week 7 go incivek triple therapy and so far am still detected after 4 weeks. hoping for some great new drugs to kick this dragons ass!



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Dx:2007; Genotype 1; VL 1.4mil, start triple therapy (peg/rib/inc) 6/2/13 (Failed), Harvoni 12 weeks EOT undetected, 6 month EOT UNDETECTED!
justjim


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Good luck with your treatment. I researched that study and it has a great cure rate. I just finished 24 weeks of interferon/ribavirin/boceprivir and it didn't work. It was my second attempt at treatment. I am looking forward to the new easy drugs that really work. Wishing you the best.
Justjim

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Jumpy


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I have finally decided to register after lurking here for the last few months. I was told about this forum by the research nurse I see for the Abbvie Sapphire Clinical Trial.  I have just completed three months of placebo and am now into my second week of the real thing.



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Jumpy


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Hi Nurschic, good for you! I spend quite some time daydreaming about what it might be like to be rid of this. As I said in my post to Justjim there are several other drug trials for new drugs that have very high success rates. I am in New Zealand and it may be easier here because we are a small country, but I was able to get myself onto the Sapphire Trial by being very persistant, both with my doctor and by calling the clinical trials people myself. If you are interested in drug trials, this link is for a website that lists clinical trials throughout the world:

http://clinicaltrials.gov/ct2/results?term=hepatitis+c&Search=Search



-- Edited by Jumpy on Thursday 18th of July 2013 01:53:15 AM



-- Edited by Jumpy on Thursday 18th of July 2013 02:41:36 AM

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