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Hep C Discussion Forum -> General Discussion -> I HUGE BIG THANK YOU
Post Info TOPIC: I HUGE BIG THANK YOU
Cinnamon Girl


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RE: I HUGE BIG THANK YOU
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Hi Renee, how good to hear from you and I`m so pleased life post tx is going well for you!  And you`re looking great, even sideways! 

Life always has its bumps but after all the ups and downs you went through on tx you know there`s not much you can`t deal with, you were an inspiration to us all with your courage and determination!

Keep moving forward and all the best of luck with your studies...sending hugs to you and Lindsay!  xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Hi Renee,

Sideways or not, you guys look great. Thanks for dropping in and all the best to you and Lindsay. Cheers buddyXX



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
LadyAlaise


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I am not sure why they came out sideways?

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Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1
LadyAlaise


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Hi all! Life is going well! I am in school soon to start my second semester at the local community college! (I took the summer off lol) we did move from near the Cape of MA to the other end of the state practically lol, it's where I am from originally, but it's taking time for Lindsay to adjust. (She says the area is growing on her slowly, but it ain't no Boston ;) )
Though life still has its ups and downs (per normal) it is good!
Here are some updated pics! :D



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Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1
Iris Dragonfly


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Ah my dear Lady! how did I miss this? You look Great!

I think we were all there with you, I know I was worried for you ...through the move, the storm, and all your f-ed up side effects, but you persevered, You have much to be proud of.

Now maybe you and your sweetie can get on with life...Renee you Rock! I'm giving you and Lindsey a big cyber >>>HUG<<<

much love to you, Iris

ps... I really love your post here with all the smiley faces...very cutebiggrin



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
tomyboy


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Reading these posts make me feel so happy.  Although Tom hasn't "beaten" his demon yet...I feel blessed to be a part of this forum.  Renee you look awesome, congrat's!  God Bless!!!



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Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

Karen


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What an extraordinary representation of the human spirit. It is an amazing and loving place to be when going through this journey.  xoxo to everyone!!!

 

 



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
Mary Jane


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it's like a class reunion.. or we were battle buddies .. peace n love & healing MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Biggyb


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You are absolutely right JoAnneh, i feel like a old timer here now. Lol



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Bills


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Amen JoAnneh



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

JoAnneh


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I love this page! All my forum friends on it!
Wow, we suffered together. Great we were not
Alone. We had a place to go to for love and support.
Love u all

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Shep


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Oh Renee! I am so happy for you and Lindsay--there is no way I would have made it through tx without you! Your courage through all you went through helped me more than you can image! Wishing you the best of everything!
Shep

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
Mary Jane


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Yeah Renee...so happy for you... life is good.. and we all have been blessed by this big virtual family we have here on this forum.. so happy for you.. once we are off the drugs & become virus "free" we get busy with life.. and that is a good thing.. good to hear from you and so happy to see all the " oldies" still posting.. and welcome newbies.. xxx all the best to you and Lindsay  P&L MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Biggyb


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Lady, you were finishing TX when i was 4 months into the hell. But enjoyed your post's. Time to enjoy life now. Keep up the good work.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Bills


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True JIme

that would be a great photo album.

 

BS

 

 



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

JIme


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I could not have done it without you either Renee.........let's do this life thing full blast now!  It's so cool, everybody does look great. We should have before and after pics...lol

Have a great day!



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Bills


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Renee,

Nice to hear from you and doing so well,

Vern That picture is a keeper you look great Christmas is coming You know they have Santa Conventions? You'll be a winner there too  

Malcom looks you win with the bigger fish lol  

You all look great  God bless 

BillS 



__________________

Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

mallani


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Hey Vern,

Missed you man. Thought you'd been eaten by a huge bass! I miss our days of banter about Xeno. You'll be fine, but I emphasise with the waiting. Keep in touch. Cheers, I've been fishing too!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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I feel your pain 12-Step guy!!
I feel like a kid waiting on Christmas
For my 6 month post tx on Oct 15th.
Waiting three months seems like a year
Waiting on Santa to see if I am getting switches
Or toys. I feel toys most day.
I have missed you.
I cut my hair off to the scalp when I finished
Treatment end of April!
Practicing one day at a time!
All is good today but ready to know:)

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
12Step Guy


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Renee, I too have been busy. Great to see you checking in. I've also been somewhat mia on the board. Waiting until Nov for my testing is nerve-wracking if I think about it to much. So, I'm trying my best to stay busy and try to not even think about it. I'm letting my beard grow out till I hear the news. I'm thinking of getting on the Santa Claus circuit.

Vern and Bass.jpg



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Cinnamon Girl


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That`s lovely, thanks Renee, and how great to see you looking so much better!   What a difference from when you were in the midst of tx!  You showed so much strength and determination while you were struggling to get through it all and it`s wonderful to hear that your life is back on track now.

Enjoy your busy virus-free life, you have so many happy times ahead to look forward to!  smile 

Stay in touch, you`ll always be welcome here! ~ Jill xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
news


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My dear Renee',

   I wondered where you had been, then it occurred to me you did just like me.... you got busy. Part of getting well is getting back into your life, and as that happens we drift. But I will never forget this place. My best wishes to you and Lindsay, and I hope you don't get any more big storms, like the one that came through as you were trying to adjust to life after treatment. I have jumped whole hog into adaptive sports for disabled folks, both military and civilian. We do cycling, water skiing and snowboarding, and it uses up most of my free time. But the happiness it brings is more than I can describe, for me and for the students.

Good to see you, too, Joanne. We spent some tough times together on this forum, feeling like warmed over hell but excited about getting well. It was soooo worth it.

Love to all the newcomers, and the oldtimers. Peace through power.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
JoAnneh


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Great to see you Lady! I drew a lot of strength
From you as you too were on tx 48 weeks.
I go Oct 15 on my post 6 month blood work.
My looks took a beating but I am better every way.
Any women out there doing 48 weeks
It can be done!

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
LadyAlaise


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Hi All!!
I wanted to give a shout out to all my friends on here! 
I know I have been MIA/Absent for damned near a year  and I am sorry for that; life got busy and I get distracted easily (even when I wasn't on TX ).
I just wanted to say to Jill and Shep, Alan & Kiwi, Mallani, Iris, 12stepguy and SOOOOOOOO Many others (Especially my Heart; Lindsay <3) ; THANK YOU!
You all welcomed me with open hearts and arms and tons of great advice and info when I first came here and started Treatment. You all 'virtually' held my hand and helped me through some very Hellish and agonizing days! You saw me through ups and downs, my fear and my dread, my frustrations and my questions...You ALL ROCK!!!! and I wanted to say I don't know if I could have done it without all your support! 

Here are three pics one taken the day I started TX one taken about halfway through and another taken a month or two ago :D



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Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1
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