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Hep C Discussion Forum -> General Discussion -> My Dr said end of year
Post Info TOPIC: My Dr said end of year
Loopy Lisa


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RE: My Dr said end of year
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I think in the States it is expected end of this year. For genotype 1 it wil be 12 weeks with interferon, but common, 12 weeks of that stuff is a lot better than 48 weeks. Europe is expected early 2014. But it will all depend on cost for each country.



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Michaele


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Hi, My doctor seemed to be very assured that the end of the yr would be the time. I have to wait, I have to many contraindications to use interferon. When I was a RN doing MED/SURG , I cared for pts with cirrhosis, and it isnt a pretty disease.  As a matter a fact, not to scare anyone ; its horrifing. But dispite this, Im waiting. At this time, I can feel myself getting sicker.  Its a personal choice, and Im aware of what can and will happen eventually with out tx. Now that the public knows how rampant Hep C is among Boomers , science and tax dollars are starting to make some progress. Money talks and I suppose the drug companies believe the retirees arent just talking, they are screaming; HELP!!!!!!!!!!!!!       Good Luck   Michaele



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shotgungirl


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Hi Michaele.

When I decided to start triple therapy immediately, my specialist did mention the new drugs that are coming. He also added that they weren't exactly for sure how long it would be though-it may be very soon or it may be awhile off.


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22YearsOld/Contracted and diagnosed in 2013/Genotype 1B/VL 1,020,000/Starting triple therapy w/Incivek soon
garfield


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Hi,

    with the diagnose in February 2012 I got the advice from 4 german hepatologist to wait with a therapy.

At that time they estimated the approval of an interferon-free therapy will be in spring 2015. 

Their opinion: my liver is in such a good condition, that it isn't necessary to treat with telaprevir with its SX.

But I had no patience, so I decided to participate in a study.

cheers



-- Edited by garfield on Friday 18th of October 2013 03:35:54 PM

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Michaele


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Thanks for info, I'll check it out, And call Drs nurse to see what they know. I know Duke is supposed to be doing some research with the Australians. Thanks again Michaele



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mehru


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I noticed you live in NC.  Did you notice the following study opening up for genotype 1s.  There is one starting in Chapel Hill, NC. and another in some other city in NC. You should call them.  I'm not sure if you have to do the RBV with this one though. 

currently recruiting participants.
Verified September 2013 by Gilead Sciences
Sponsor:
Gilead Sciences
Information provided by (Responsible Party):
Gilead Sciences
ClinicalTrials.gov Identifier:
NCT01938430
First received: September 5, 2013
Last updated: NA
Last verified: September 2013
History: No changes posted


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Geno 1a, Stage 3-4 early cirrhosis (labs, recent biopsy, MRE elastography to confirm), 1999 rebetron trial with inf/riba *non/partial responder at 16 wks.  4/2013 started victrelis triple tx - had to discontinue after 2 weeks due to rash.

 
mallani


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Hi Michaele,

Welcome back! If I remember correctly, you are Geno 1b. If so, there's no relief in sight.  Sofosbuvir may be approved in December, but for the Geno 1's, only for use with Peg and Riba. I remember your opinion of Interferon, so to avoid that, you will have to wait for one of the other DAA's (probably another 6-12 months). I don't think the AbbVie combo will be approved for at least 6 months. So, more waiting............. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Michaele


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Hi, went to Dr today and was told new interferon free  tx out soon. She said goverment/drug companies are being so secretive ,that even drs dont know much yet. I was told here in , the drs she knows are holding off starting pts on tx until end of year when new tx is available to pts. not much info, but it sounds hopeful. Anyone hear anything? I havent been following the forum for a while and dont know whats been going on here.



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Michaele


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thanks for quick answer, next appt in four months. I'll find out more then. I think I can wait six more months. Michaele



-- Edited by Michaele on Friday 27th of September 2013 01:52:04 PM

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