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Post Info TOPIC: Hepatitis C Trust (UK) pubishes new 'State of the Nation' Policy Report


Guru

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Hepatitis C Trust (UK) pubishes new 'State of the Nation' Policy Report
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Hi Malcolm, yes I agree with you that the estimated number of infections looks too low, and I`m not sure if that`s down to a lack of good quality information or whether not enough cases of Hep C are being diagnosed over here.

Someone recently sent me this link which looks at the prevalence of Hep C in Portugal which is estimated to be between 0.9 - 1.5 % of the population, and although it`s a few years old, I should think it`s still relevant.

http://www.vhpb.org/files/html/Meetings_and_publications/Presentations/LISS33.pdf



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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I think the problem is people are being shelved for the new DDA's as they are far more managable than current medication.

 



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 

Tig


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I have to believe the truth would indicate their continued lack of action and they don't want to bring that kind of attention on themselves. It's all about money and the cost of treatment would deplete already low financial reserves. It's sad...



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Tig

66 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 8+ years!

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Guru

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Hi Jill,

Thanks for posting this. It is well worth reading the whole article, and it is a chilling reminder that HepC patients are virtually ignored by Government and the Medical Profession. Stigma??

As usual, I have grave misgivings about the stated incidence of HepC in England.  Given that the European average is 1% of the population is infected, how can England ( population 56 million) only have 160,000 HCV-infected patients? That's only an incidence of 0.25%!  Even Australia is estimated to have more patients!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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A new report, published today by The Hepatitis C Trust, has found that hepatitis C is grossly under-prioritised in England.  Despite it being curable, only 3% of people receive treatment each year.

Charles Gore, Chief Executive of The Hepatitis C Trust, said: "There must be no more excuses for the rising tide of deaths from hepatitis C.  It is a preventable and curable virus, yet huge numbers of people still remain undiagnosed and a mere 3% of patients are receiving treatment each year."

"Many people with hepatitis C face a postcode lottery of care due to the lack of a national liver strategy.  Four years after it was promised the Government is yet to confirm a publication date for a National Liver Strategy."

http://www.hepctrust.org.uk/News_Resources/news/2013/October/State+of+the+Nation



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 

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