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jimbob


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Kellie, congrats on your SVR by the way!  I am in absolute awe of everyone on here that has gone through treatment....

Jimbob



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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
jimbob


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Thank you Kellie for your reply. Especially regarding the headaches.  Presently, i take Imitrex, which works, but can be expensive on a daily basis, which Ive been doing lately. I have stockpiled enough away for treatment I hope! Also, Im allergic to Ibuprofen, but there are other combinations....

I've waited hopefully to bypassed the Incevik regimen, and opt for the Sovaldi, for obvious reasons mentioned on the board. Just hope things go smoothly with the application. Also, I'm thinking I can survive the shorter 12 week period even with treatment woes. That's my hope anyway.

What is a"vegetarian efa/dha"?

I sure hope i can find a TV show to save me! Right now I'm ready to throw the TV out the window and I haven't even

 

started treatment yet.

Thanks for the well wishes Kellie.



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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Kellie


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hi jimbob,

i finished 12 weeks ago with the triple incivik/riba/inter.

when i did treatment with riba/interf in 2003 i suffered horribly with migraines daily by my 7th week of tx.

this time around not so much.

i was on a low dose on vicoprofin (combination of hydrocodone and ibuprofen) daily (like 1/2 a pill) and used mainly "Udo's Oil" (combo omega 3-6-9 formula for my fat requirement during the incivik portion.

Afterwards, I switched to a vegetarian efa/dha for the last 12 weeks of tx.

I continue to use this today. not the vicoprofin though.

I don't know if those had anything to do with the decrease, but it was noticeably different.

Hopefully since you may be doing a shorter tx then 24 weeks the sx won't be so knarly.

Oh yes, almost a gallon of water a day I drank.

good things to you jimbob in the new year with a virus free body and clear head

.

I love your name. During tx I watched the Waltons daily (no kidding) smile saved my sanity....

 



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
jimbob


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Dustbear-

Ive learned more from this forum and researching on my own than most doctors and ANY NP.  Ive spoken to several doctors in different cities to get multiple opinions. Amazing how much they differ. My immediate concern now is the insurance. My doctors office will be submitting it all to them and i dont know how that works. Guess ill know more on the 14th.

Thanks for your thoughts.

Jim

 

 

 



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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
dustbear


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Hi James,

You have definitely found the right forum. I wish I had the knowledge you have before I started tx. I did not know I had choices, and did not do any research. I learned more from this forum once I started tx than any doctor.

I wish you success with the Sovaldi!



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
jimbob


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Thanks everyone for the kind responses. Im still figuring out the navigation on the board. i may have jumped the gun as i have not yet started treatment and am going to discuss it come Jan. I have attempted twice before to start but elected not to for one reason or another. My insurance changes yearly so of course i am concerned about that as well.

Suziq, i have looked into clinicl trials previously, but havent been close to any major cities that have had them. I will however, monitor the board to see whats available. Thanks for the info. Will keep you all posted. 

Thanks again.

Jim



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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Cinnamon Girl


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Hi James, welcome from me too, I`m glad you decided to join us! 

You should do very well on the Sovaldi combo and it sounds like you made the right decision to wait.  I hope you have an easy time with minimal side effects.  Keep in touch and you`ll find all the support you need here.

Best of luck with your treatment!  And a Merry Christmas to you!  smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Hi James,

Welcome to the Forum. You're lucky to have the chance to try the Sovaldi triple. Keep us posted. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
hepcat60


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Welcome to the forum.  You have found the right place.



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Hep C 1a since probably 1981.  Incivek, riba and interferon-48 weeks.  UND at weeks 2-4-6-8-10-12-16-20-24.  Previously Interferon alone for 6 months non-responder.  SVR 48 weeks 12/11/14
suziq


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Hi, I'm SuziQ and had Hep C since sometime before 1966. Now, at 79, I am on a clinical trial without interferon. I, also, waited years to treat without interferon. Check out the clinical trial section here and the News section. There are several new combos without interferon that are being tested for 1a that are highly successful. And there are many who have shared their experience with the new meds on this forum. I believe that new meds without interferon will become FDA approved in the coming year or so. Sovaldi is just the first step of a new era of treatment. You will be amazed at the information and kindness available on this forum. I was. Look around and be sure this is the combo for you. Welcome !!!

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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Tig


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Hi James,

Welcome to the forum! You've found a great place and since you've been following the group for a couple of years, you know how things work. I'm glad you've decided to go forward with treatment. The new drugs, especially Sovaldi has increased your chances for SVR greatly! It's well over 90% now, almost 100% in many reports! It doesn't get much better than that. You're going to experience some side effects, that's part of the program unfortunately. But James, they are tolerable and doable. Some of us have headaches of varying degrees, some worse like migraines but I've seen people have great improvements during and certainly after treatment has succeeded. It's nothing you'll know until you get started. When those times get rough we'll be here for support. There are a lot of good people here with some very good ideas and several helpful suggestions to get you over those rough spots. Keep in touch buddy and best of luck in 2014!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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JIme


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Welcome aboard brother!



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Karen


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Welcome James....Sounds like you are headed in a great direction.  

All the best...



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
jimbob


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Hello everyone.

From my bio. Im 63, gt 1a, F2, VL 5m, F2. Last checkup 7/13 and all numbers were normal. First diag. 1996. Had this since 1970.

 Been reading this board for a couple of years. I waited a lotta years for a better treatment to come along. I thought Incivek was it-had followed its progress for years. But when it did arrive, i read about the side effects and decided to wait longer for Sovaldi. My NP determined i could wait. Also waited until i retired as i didnt believe i could handle treatment and working with public. Now the time has come. I have appmt. Jan 14 to get the ball rolling with Sovaldi, int, rib. Have read many of you post on here and like many others i am very concerned about side effects. Ive had chronic headaches,almost daily, that can turn into migraines. So, my greatest concern is the possibility of headaches due to treatment. The headaches are so bad, im not sure i could continue treatment if it made them worse. Anyone else experience this problem?

Please be patient with me as i am using hand-held device and response could be slow.

Merry Christmas to all!



__________________

jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
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