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Hep C Discussion Forum -> New Members Area -> Awaiting insurance approval for Sofosbuvir
Post Info TOPIC: Awaiting insurance approval for Sofosbuvir
mdmfoo


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RE: Awaiting insurance approval for Sofosbuvir
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Genotype 2b



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JenT

Age 60, female, Gen 2b, failed Interferon/Riba miserably, with major neurological deficits. Starting Sofosbuvir/Riba as soon as approved ;-)
Matt Chris


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Hello Jennifer 

Welcome to the forum, you have found a good place with caring people that can help guide your treatment and all the questions and concerns that come with treatment.

I may have missed it but did you tell us what Geno type you were?

Hoping that all goes well with your insurance and your future treatment.

matt 



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
mdmfoo


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I most likely acquired HCV in the late 60's, early 70's, from ex husband (deceased). First clue was in the early 70's when I tried to give blood, then later in 80's was told I had liver disease of unknown origin. In the late 90's I was experiencing early neurological difficulties, blood tests came back with ALT 1067, AST 434. This led to HepC dx and Interferon/Riba tx beginning Jan 2000. Within 10 days of start of tx, neurological symptoms required termination of treatment. I was unable to walk unassisted, or talk with any articulation, i.e. you couldn't understand a word I said ;-(  Very scary, to say the least.  Dx was Primary Lateral Sclerosis, a rare variant of ALS.  I regained my strength slowly, but still have neurological issues. My current liver specialist (not the guy that prescribed the Interferon) has been waiting for a safe treatment for me. 2011 Fibroscore gave me a good result,38, but an actual earlier biopsy contradicted that.

Biopsy 2000 Mild portal inflammation with mild portal fibrosis, Grade 0, Stage 1

Biopsy 2007 Stage 2 Fibrosis 

2011 Fibroscore 38, but 2007 biopsy contradicts

2011 HCV RNA 5,030,000 Genotype 2 

 So, we've been waiting for Sufosbuvir, and now it has finally arrived, yeah team!  Doc is putting in for medicare/Aetna approval, but I doubt they'll deny.  I need this treatment.  In addition to the PLS, I'm pre-diabetic, with no other risk factors.  Hope that will also resolve. I'm really putting all my eggs in the Sufosbuvir basket.



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JenT

Age 60, female, Gen 2b, failed Interferon/Riba miserably, with major neurological deficits. Starting Sofosbuvir/Riba as soon as approved ;-)
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Hep C Discussion Forum -> New Members Area -> Awaiting insurance approval for Sofosbuvir
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