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Post Info TOPIC: Introduction
OldenSlow


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RE: Introduction
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Thanks, Matt

Treatment has been set up for 12 weeks.  From some of my reading, I had been under the impression that a 24 week program might have been prescribed, given the cirrhosis.  I didn't squawk about it.  Perhaps I should have questioned him more closely.  In truth, given the cost of the meds and the idiosyncracies of my insurance plan, I would be hard pressed to afford more than three months tx, anyway.  The only thing enabling even the 12 week plan is the copay assistance being provided by both Sovaldi and Olysio.

Wayne



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
Matt Chris


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Hey Wayne

Glad to have you in the forum, we look forward to following your progress with the new Triple therapy. It will be interesting how a fellow cirrhotic patient does with this treatment. Did you say how many weeks your doctor is going to have you on the treatment?

Hoping all goes well

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
OldenSlow


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Many thanks to all for the warm welcome.  It's nice having others to talk to and exchange info with, aside from the various medical personel.  That's not a complaint against the level of care I've received (it's been first rate these last few years, IMO), it's just that they're not floating in the same boat as we are, so to speak.

pl1952 - Anxious to hear how your tx plan develops.  I will follow along and hopefully be of assistance at some point. smile 

Dragon - Been following your posts with interest since we share some common details.  I can only hope that my tx response is as positive as yours.  Continued good luck!

Tig - Thank you.  First lab results since beginning treatment should come tomorrow or next day.  Will be happy to post anything pertinent.

mallani - How about 'Oldenough n' Slow'?  Or, maybe just 'Slow'? smile



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
mallani


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Hi Wayne,

Welcome from me as well. As I'm about to turn 71, and we have a 79 yo member, perhaps you'd like to reconsider your username! Best of luck with treatment. It should be a walk (or in your case run) in the park. Keep us updated, as we are keen to learn about the new DAA combo's. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tig


Admin

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Hello Wayne,

Welcome to the group! I'm glad to see you on board. This is a great bunch of people, knowledgeable and nonjudgemental. Feel free to be yourself and make yourself at home. Many of our members are long term and we enjoy giving support and friendship as much as getting it. It's a very supportive environment.

If you would like to share some information, like lab results including biopsy and liver function tests (AST/ALT), we can provide better informed opinions. I look forward to seeing you on the boards! Good luck...

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Hep-C Dragon Slayer


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Hello Oldenslow,

Welcome.  I have been a member since begining of the year and love this site. 

You will learn from the Guru's and other members, you will get links to info, you will hear real people stories and advice and get some TLC as well. Not a lot of negative attitude in this group....

We are on the same tx (Sovaldi, Olysio and Riba).  Started January 6th. Had same insomnia issues on occasion other then that really no other sx issues to mention.

Day 20 PCR test had VL less then 15 and yesterday (Day 30) did a TMA blood test. 

Looking forward to less then 2 and magic letters UND, should no results tomorrow. My doctor said PCR test wont say UND but if the VL count is less then 15, they assume its UND. The TMA will say UND and only report VL if greater then 2.

Good luck and stay strong

 

 



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GT 1A:  VL: 4,695,000, started treatment 1/6/13 with off label Sovaldi/Olysio/Riba     No Interferon due to Sarcoid  in liver and lungs.  Recent biopsy shows Cirrhosis level 5/6.  EOT 3/30/14. SVR 8 on 5/30/14
pl1952


Senior Member

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Hi Wayne, welcome to the forum.  I'm new too -- just visited a hep dr., took my bloodwork yesterday so I'm waiting for a treatment plan. Don't have much to offer but a warm welcome!  This is a wonderful forum for us with many knowledgeable peeps here!  :) 



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Me: 62 yr. old female, GT 1b, fibroscan 4.5; VL 650,975 as of 2/4/14;started Harvoni 3/6/15; SVR


Hubby: 59 yrs.; GT1b; fibroscan 25-cirrhotic; S/O for 12 weeks started tx 3/20/14; SVR56; fibroscan done 7-7-15 = 8.5
OldenSlow


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Hi all,

Came upon this forum yesterday and thought I'd contribute as well as read and learn.  This is treatment day 13 for me using Sovaldi/Olysio/Riba combo.  Lots of useful info here, btw.  Thanks all!

Thus far, minimal side effects.  I would say increased insomnia has been the most noticeable feature.  I am predisposed to that, anyway, and have become fairly adept at coping, so no big deal.  Some itching the first week but that has subsided for the time being.  Like a few others on the forum, I'm a runner (5 days/week), and I have been able to stay on schedule without issue.

First lab was this morning, results tomorrow (CBC only).  First VL check two weeks from today.  I am optimistic and postively gleeful about the possibility of stomping out this insidious perversion.  Chances are that it's been skulking around inside of me for over 40 years, now, and I want it DEAD!

Again, thanks to all who so kindly share their knowledge and experience.  We are all the better for it.  I will keep you posted.

Wayne

 

 

 

 

 



-- Edited by OldenSlow on Thursday 6th of February 2014 07:40:41 PM

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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
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