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Hep C Discussion Forum -> New Members Area -> Just started Sovaldi & Olysio tx
Post Info TOPIC: Just started Sovaldi & Olysio tx
Tig


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RE: Just started Sovaldi & Olysio tx
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AzHiGirl wrote:

Thanks for the tips! The water is really helping. I live in Hawaii & like to walk on my lunch hour, so I'll be using sunscreen. I get a tingling sensation on my scalp, weird.

 Jeannie,

One word of advice. HAT!!! If you're having scalp issues, it may be the sun sensitivity affecting it. I wasn't on Olysio but on Ribavirin which also causes the same trouble. My scalp gave me fits the entire time I treated. I live in south Florida, lots of strong sun and I treated over the summer. I had little blisters on a few occasions because I forgot to wear a hat. Be prepared! Good luck and don't scratch your scalp. I found shampooing with Head and Shoulders Shampoo, the "Refresh" brand. It has some menthol and the active ingredient helped control the itching that resulted from the exposure. Good luck...

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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optimistic


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hi all thursday is the beginning of my ninth week on olysio and solvadi after 4 weeks UND  and tomorrow i go for blood work and should have the results by monday or tuesday. also drinking like a camel. still get those terrible headaches from time to time, but it is the end result we are all striving for.my insurance covered part of my first two treatments and a foundation covered the first two deductibles. the third which i just received yesterday with only one day to spare without running out of meds was a little more difficult i had to go through a couple questioners with 2 different foundations, but finally got the last deductible approved.. a lot of stress believe me.my wife and i consider me to be truly blessed. i just miss riding my motorcycle south florida sun is very strong. 28 more days. KEEP THE FAITH ALL.



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AzHiGirl


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I love the "everyone" part.



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started treatment 4/18/14 - Sovaldi & Olysio

Genotype 1a, stage 1 fibrosis, 6.5 mil VL. Contracted (probably) in 1991. Tried dual tx in 2003, but discontinued at 28 weeks due to sx.
AzHiGirl


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Thanks for the tips! The water is really helping. I live in Hawaii & like to walk on my lunch hour, so I'll be using sunscreen. I get a tingling sensation on my scalp, weird.



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started treatment 4/18/14 - Sovaldi & Olysio

Genotype 1a, stage 1 fibrosis, 6.5 mil VL. Contracted (probably) in 1991. Tried dual tx in 2003, but discontinued at 28 weeks due to sx.
OldenSlow


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Welcome back, Jeannie and congrats on getting underway with treatment. As rybronco mentioned, it's been nothing but good news. You will do well. I'm sure you've heard it before, but it's important in minimizing the sides with this stuff: take the meds with food (mainly for the Olysio) to help with gastro issues; lots of water is crucial (don't drown yourself, just find your comfort zone and stay consistent with it); and take care with exposure to sun/heat. It varies with the individual, but there's been a number of surprise sunburns and optical sensitivity, so be careful with that. The fatigue.. it seems to vary a lot, too. Things might smooth out for you after a few days and you'll sail on through.

Wishing you the best,

wayne



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
Rybronco


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AzHiGirl,

You are on a winning combo for sure!

Everyone and I mean EVERYONE so far has reached UND. Some at 1 week, some at 2 weeks, some at 4 weeks, but ALL by 8 weeks. I have not read about one single failure on this combo.

I am on week 10 and I went UND at week 4. So your chances for a great outcome are really really good.

I too experienced the nausea in the beginning, but it went away after the first couple weeks. I feel great now, only a bit of fatigue and a headache once in a while.( headache responds well to motrin though)

Good luck and keep us posted.

Rockon!



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49 yo. G1a prior tx 2005 with peginf and RIBA 12 weeks dc due to side effects. vl 7.8mm Current tx Sovaldi/Olysio 12 weeks started 2-21-2014,  UND at 4 weeks, EOT+12 SVR
AzHiGirl


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Hi!,

I did get the results from the biopsy, no sign of fibrosis from the sample.  I am not on any trial. My doctor prescribed this treatment, I guess it's considered "off label"?  Not sure, just hoping it works.



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started treatment 4/18/14 - Sovaldi & Olysio

Genotype 1a, stage 1 fibrosis, 6.5 mil VL. Contracted (probably) in 1991. Tried dual tx in 2003, but discontinued at 28 weeks due to sx.
mallani


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Hi Jeannie,

Welcome back! Did you get your biopsy results from August 3013?

Are you on the Optimist Trial? This new Phase 3 Trial will tell us more about the Sovaldi/ Olysio combo without Ribavirin. It's probably worth while testing for the Q80K mutation, although it may not be significant with Sovaldi.

Best of luck. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
AzHiGirl


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Hey Guys,

Thanks for the feedback. I'm so glad to be back on the forum. I was just reading the posts from folks on this treatment, nice to know what people are going thru and that I'm not alone.  I feel really blessed to have the opportunity to do THIS treatment. The sx are minimal compared to... but they ARE there. I'm drinking more water, I don't know if it's working yet. I'll keep you updated.



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started treatment 4/18/14 - Sovaldi & Olysio

Genotype 1a, stage 1 fibrosis, 6.5 mil VL. Contracted (probably) in 1991. Tried dual tx in 2003, but discontinued at 28 weeks due to sx.
Dee Dee


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Hello AzHiGirl, I'm going on my second month of treatment and I haven't had hardly any side effects at all. I suggest drinking lots of water..it's helped me a lot. I've gotten a few headaches but drinking water really does help. I take my two pills at the same time with my dinner. I've never felt nausea at all. Wish you luck, this treatment is really the best I hear! biggrin



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G1a prior tx 2005 with peg & RIBA -quit due to bad side effects. Follow up visit showed it was back. Current tx Olysio/sovaldi 673,000 vl on 3/21/14. May 1st undetected vl. EOT 12 weeks undetected!
Tig


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Hi Jeannie,

Welcome back! Don't worry about taking some time away. I'm glad you're back and happy to hear you've started treatment. We've got several people here on the same treatment. You can find them in the On Treatment thread. I'm sure you'll hear from them shortly.

You are experiencing similar SFX as others on your combo. One of the best things you can do is surprisingly the easiest. Drink lots of water! I've seen several having the same trouble with headaches and they gain a lot of relief from good hydration. Insomnia also seems to be an issue but I hope you will adjust to that after your body gets used to the process. Be thankful you're not having to deal with Interferon and Riba too! That must be a relief! 

Good luck... Talk to you soon!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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AzHiGirl


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Hi everyone,

I posted here back in August. Then I disappeared, sorry about that. I started the Sovaldi / Olysio tx friday. Its time to kick this Hep C's a$$! That being said, I went home sick from work today. Headache, nausea & very fatigued. I'm also feeling weak. It's still a hundred times better the the old peg/riba tx I attempted 10 years ago. 

So, it's time for me to get connected with some other people going through this. are these usual side effects? I'm assuming they are, however, I already had headaches, felt fatigued & had trouble sleeping, so who knows! 



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started treatment 4/18/14 - Sovaldi & Olysio

Genotype 1a, stage 1 fibrosis, 6.5 mil VL. Contracted (probably) in 1991. Tried dual tx in 2003, but discontinued at 28 weeks due to sx.
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