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Post Info TOPIC: Here we go again!
Lavender dragonfly


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RE: Here we go again!
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Thanks Huey! Keeping my toes crossed for you, too. Let's show them how to kill this beast!

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Huey


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Great to hear, I am going in for test in couple weeks.

we are all in this together keep your stick on the ice, 'Red Green Show'



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Lavender dragonfly


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Just got my EOT results. Undetectable! In 3 months, I hope to say, "HCV, 3 strikes (riba, Sovaldi, Peg) and you are OUT of here! Hooray!

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Lavender dragonfly


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All done, just waiting for last blood tests including VL. I had a drop in WBC and platelets, but not bad enough to 'address'. My worst "side effect" was sores on the corners of my mouth. My dental hygienist suggested coconut oil, which worked better than Abreva. My gastro guy said they don't do biopsies any more, and I was fine on the 12 week tx. Now just waiting to see if I get SVR.. Thanks All!

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Isiscat2011


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Welcome Lavender Dragonfly:

There is another member here who goes by the sn Iris Dragonfly.  You must be sisters.  smile  Good luck with your tx.  Sounds like all is going well.



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
mallani


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Hi Kimberley,

Welcome to the Forum. If your biopsy in 1999 showed F2-3, you may well have progressed to F4 by now. I would ask my doctor for an early VL test, as I would be keen on 24 weeks of treatment. Did you have any recent staging done, by Fibroscan etc? Best of luck. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Kay


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Welcome Lavender!smile



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Lavender dragonfly


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Thank you both! I am just in hurry up and wait mode, while eating strawberries and drinking 3 large spring waters daily! ;) About 6 years ago, another GI suggested I have another biopsy and try again. But my VL was so low, it would've been UND on old testing she said. I chose to wait, and am pleased that SO far...this is much easier than the last time.

Of course,  when the Sovaldi pharmacist called to check my progress, I was at the casino with the girls. Yes Hon..there REALLY are people out there that drink water,  not alcohol even while on a girl's weekend away!

 



-- Edited by Lavender dragonfly on Wednesday 28th of May 2014 12:27:23 AM

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Tig


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Hi Kim,

Welcome to the forum! I'm glad you found us and have been able to utilize some of the information you've read. I know when I found the forum, the information and friendships made, made all the difference in the world. I hope you're able to reach your goal this time, seems after all the years of effort, it's your turn!

The combo you're currently on is a real barnstormer! It doesn't leave the virus anywhere to hide, so you should do very well on it. Those before you have done remarkably well. Even though you're still on Interferon and Riba, the Sovaldi protocol, seems to have fewer side effects than the previous PI's, Incivek and Victrelis triples. Good luck to you.

If there is anything I can answer, please don't hesitate to ask. I can direct you to our "search" function, which is at the top center of each page. If you can't find what you're interested in finding, ask anywhere and we'll be sure to assist you any way we can. As far as your viral load tests, some doctors do them at week 4, most because it's an insurance requirement. But I've also seen others have to wait til EOT and EOT +12. I wouldn't be too concerned, because this triple combo is extremely effective and 9 times out of 10 all of the VL tests come back UND anyway. So concentrate on medication adherence, good diet and proper hydration. If you can follow that practice, you'll do just fine! Stay in touch...

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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TazKat


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nice to meet u lavender!! Sounds like u & I are pretty close to time on treatment. i will be shot #6 (but only 5 weeks on those torrid pills) i did the riba/peg in 2002 & 2005 & the incivek in 2011-12.. (this better work) cuz i really don't think my body can handle any more toxic.. Glad u found us. The ppl here are the bestest in the whole world. I can truly say they are MY SAFE haven. Peace out..



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Lavender dragonfly


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Greetings all!

 

I've been reading your board for info on the new treatments, and have found it very helpful.

By way of introduction, I have genotype 1A contracted through a 1981 transfusion. The hospital wrote to tell me my donor had passed in 1986 of "complications arising from non A non B virus". I figure even had I known, I really needed those 4 units at the time, and I'm still here 30 years later!

I did the 48 weeks of Riba/Peg in 2000 with a VL of +3mil. I got to UND, but relapsed 6 mos later. doh I'm nearing my 4th Peg shot now on the Riba/Sovaldi/Peg 12 week tx. I only had one really sick day, after the first shot. I'm keeping fluids and food going! My GI won't test my VL until EOT. It was "only" 479K to start with, and my ALT/AST they deemed "normal" (56.0, 59.0?). I haven't had a biopsy since 1999, and it showed fatty liver, 2-3 then. So, I guess I'm just waiting til week 12 to get the UND, and 12 weeks later to see SVR?

 

Smiling and keeping my toes crossed!

Kim



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