Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> General Discussion -> Questions for the gastro>>>
Post Info TOPIC: Questions for the gastro>>>
Huey


Guru

Status: Offline
Posts: 678
Date:
RE: Questions for the gastro>>>
Permalink  
 

Isiscat2011 wrote:

Hi Josh:

IL28B is only relevant if you are planning to use an Interferon based tx.  

Q80K polymorphism is only relevant if you are planning to use Olysio (based on what is known to date).

Lactulose is only relevant if you are cirrhotic.

Ivacaftor is only relevant if you have cystic fibrosis.  

Doc has a limited amount of time and is going to stop you half way through your list if you keep asking about things that have no relevance to you.  Use your time to discuss your specific health issues and tx options.  It wouldn't hurt to ask to have your Vitamin D levels checked as many docs don't routinely do that.  You will learn the most if you can relax, listen, and observe.

Also, ask doc if it is ok to email if you do have any pressing questions in the future.  Better for both of you.  Good Luck and tell us how it goes!

 

 I pushed the Like button.



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Josh Haynie


Senior Member

Status: Offline
Posts: 169
Date:
Permalink  
 

 Thanks :)



__________________

genotype 1  HCV 4,958,318 iu/ml    HCV Log updated soon  iu/ml------5'10 135lbs 9-15-83  genotype 1 since 2002----Pendleton,Oregon
Isiscat2011


Guru

Status: Offline
Posts: 1724
Date:
Permalink  
 

Hi Josh:

IL28B is only relevant if you are planning to use an Interferon based tx.  

Q80K polymorphism is only relevant if you are planning to use Olysio (based on what is known to date).

Lactulose is only relevant if you are cirrhotic.

Ivacaftor is only relevant if you have cystic fibrosis.  

Doc has a limited amount of time and is going to stop you half way through your list if you keep asking about things that have no relevance to you.  Use your time to discuss your specific health issues and tx options.  It wouldn't hurt to ask to have your Vitamin D levels checked as many docs don't routinely do that.  You will learn the most if you can relax, listen, and observe.

Also, ask doc if it is ok to email if you do have any pressing questions in the future.  Better for both of you.  Good Luck and tell us how it goes!

 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hi Josh,

It's very important to be proactive in your care and most doctors will be surprised by your interest. But there are others that will be put off by it, so be ready to explain your interest. Most are genuinely happy to work with you though. I recommend you documenting your journey in a journal or log book. I did and I keep all of my lab results, daily experiences and questions for the next appointment in that book. If you're having any issues with brain fog, the log book will be a life saver at those appointments! It's also nice to have an accurate history of your treatment. I get a kick out of going back into the middle of treatment and seeing how "special" I was feeling on any given day! You're doing the right thing by staying involved! Good luck...

Tig



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Josh Haynie


Senior Member

Status: Offline
Posts: 169
Date:
Permalink  
 

  Ya I pay attention to what you all say and based on that when i get my results on monday the 11th. 8-11-14 for my biopsy I shall broach these talking points.........

at my next Dr. slash Gastro appointment... ya i will tell you my results and anything else of revelance she says...she seems to be in the loop or forefront on being aware of the cutting edge of TX...

 

get biopsy results.....

 

Q80K polymorphism check for it

 

RAV= Resistance Associated Variant. Also called mutations.

 

dominant viral structure called the 'Wild-Type'

 

vitamin B3 (niacin) for neutrophil count 

 

Lactulose for ammonia buildup in the blood

 

Ivacaftor (trade name Kalydeco $300,000/year <<< i dont need it just bringing it up 

 

Interleukin 28

IL28B-genotype Testing TT or CT or CC

TT and CT lower your chances of SVR...check for it

 

*Sovaldi ledipasvir Gillead combo add Ribavarin

 

*AbbVie  3D combination ABT-450 and ritonavir ,ombitasvir (ABT-267),dasabuvir (ABT-333), with or without ribavirin.

allot of this stuff i dont need but i feel the need to talk upon the subjects...... especially IL28B... the 2 combo treatments both look like Dragon Killers ILL proably be assighned the Gillead combo but incase lets say that  fails which i doubt it will that abbie V will finish it off .... both have NS5A and B inhibitors which pretty much means death to replication ......means bye bye Dragon 



-- Edited by Josh Haynie on Wednesday 6th of August 2014 07:48:36 AM

__________________

genotype 1  HCV 4,958,318 iu/ml    HCV Log updated soon  iu/ml------5'10 135lbs 9-15-83  genotype 1 since 2002----Pendleton,Oregon
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> General Discussion -> Questions for the gastro>>>
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.