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Hep C Discussion Forum -> Living With Hep C -> U wont believe this clinicals and proof of F4 not received
Post Info TOPIC: U wont believe this clinicals and proof of F4 not received
Michaele


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RE: U wont believe this clinicals and proof of F4 not received
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Hi Mugsy, meant signs and symptoms. Well, yes, there is a mass, but dr said if it was cancer I would have been showing S&S related to pancreatic ca. In 5&1//2yrs the thing has grown less than 0.7cm . The only tricky thing is most of the S&S fo the pancreatic Ca are same as hep c , gallstones, hypothyroidism and cirrhosis. But there are certain ones like the back ache, diarrhea and a few more. I have no weight loss vomiting , loss of appetite. Love hearing from U. You  got Hep C around same time I did. I got it in Chicago.....Michaele



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Mugsy


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Michaele wrote:

Hi  Mugsy, CT on friday, EUS with biopsy 11/24. My GI said we have been watching that mass for 5 yrs and it has hardly grown. She was very optimistic, no s&s of ca, 1st biopsy was neg. so hopefully its just a false alarm.   Michaele   Hope your doing well.

 

 Hey Michaele. So what does "no s&s of ca" mean?? I know EUS I had one of those in 2004. It wasn't bad.  I like your positive attitude towards all this and I am hoping it is all just a false alarm. I had a false alarm in October over rising AFPs and liver cancer, but all my worrying was just wasted energy. Wish I'd had your calmness! So hurry and get this all taken care of and let's go hop on the Harvoni train. Keep us posted, ok?

Mary



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62 y/o F     Genotype 1b  for 40+ years    cirrhosis    Started Harvoni  on 11/23  for 12 weeks       UND  12/22/2014     Ended treatment on Feb 15th.

12 week's EOT viral load      <15 
Michaele


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Hi  Mugsy, CT on friday, EUS with biopsy 11/24. My GI said we have been watching that mass for 5 yrs and it has hardly grown. She was very optimistic, no s&s of ca, 1st biopsy was neg. so hopefully its just a false alarm.   Michaele   Hope your doing well.

 



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Mugsy


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You're in my thoughts.



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62 y/o F     Genotype 1b  for 40+ years    cirrhosis    Started Harvoni  on 11/23  for 12 weeks       UND  12/22/2014     Ended treatment on Feb 15th.

12 week's EOT viral load      <15 
Michaele


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Thanks Everyone, Praying  the mass is benign, then hopefully  I will get my meds.   Michaele



-- Edited by Michaele on Wednesday 12th of November 2014 02:06:31 PM

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Angel67


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God sure does dole it out!



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Isiscat2011


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Trainhopper wrote:

God seems to have everything we need and doles it out accordingly. I'm sure the pre-approval will last at least 90 days. I would hope anyway

No offense, but I wouldn't rely on God for this one.  Get it in writing.  

And get your doc to expedite the tests you need.   Keeping you on the dangle for months under these circumstances is just wrong.

Best wishes to you, Michaele.  You are in my thoughts.  :)



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Michaele


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THanks Groupergetter, I just hope the mass is benign, then I will get my meds. Michaele



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Groupergetter


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Good luck with this Michaele. My specialty pharmacy specifically asked if I had any cancer diagnosis or terminal condition.  I chuckled and politely told them the cirrhosis and extra hepatic issues could do me in if I didn't get treated.  Praying you get started soon.

And any written correspondence from me goes certified mail



-- Edited by Groupergetter on Wednesday 12th of November 2014 01:35:54 AM

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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Michaele


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Hope it last a yr, I dont know if I will need any Tx for the mass, and TX nurse was all over the dr will not treat with meds until u have this mass taken care of. There are so many Dr.s how do they ever get on the same page at the same time.  Have a good nite and do something that u truely enjoy.



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Trainhopper


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God seems to have everything we need and doles it out accordingly. I'm sure the pre-approval will last at least 90 days. I would hope anyway



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Michaele


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Trainhopper , You wont believe this but just before I go out to the dr for this Pancreatic mass disscussion the phone rings. Its a recorded message from OptiumRx Pharm telling me  my preapproval has been accepted/approved. They left a number for me to call. SOB, Im flipping out. I go back to this dr in 4 wks after test are done; cat scan and an ultrasound guided endo biospy. He said with the cirrhosis he wont do surg. and it might just still  be benigh. It grew 0.7 cm in 5 1/2 yrs. Wonder how long those preapprovals are good for.  I need to email Nell the NP.  MIchaele   Im tired of living like Im dying.  Hope u get everything U need and fast



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Trainhopper


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I'm hoping for the best for you!!!! I hope it's benign as well



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34yr male Dx 1998 G.T.2b V.L. 2.5 million no current Tx 
Michaele


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Your guess is as good as mind, but Nell PA just called and would u believe they are going to have to put the whole thing on hold until I get the business of the pancreatic mass taken care of. So I have no idea, bet I need a biopsy and hopelully it will be benign. The thought of having a whipple surg scares me. Its always something.... Michaele  Going to discuss options today at Ca center, then I have appt with GI tommorrow, and will discuss more options.   But on the bright side," I dont look sick." 

 



-- Edited by Michaele on Tuesday 11th of November 2014 06:21:45 PM



-- Edited by Michaele on Tuesday 11th of November 2014 06:23:10 PM

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LC


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Sounds like stalling to me.

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Michaele


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Hi, Ive been going thru BS for over a year, and just when I think its finally working out, something else comes up. Well, maybe my input will help, maybe it will cause the NP to be pissed with me. I dont know either. Michaele  Thanks for the Hope



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Trainhopper


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I'm new to the whole Tx thing but yeah sounds weird. I hope they figure everything out for you. I too am confused, but like I said I'm new to the whole Tx program

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34yr male Dx 1998 G.T.2b V.L. 2.5 million no current Tx 
Michaele


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I talked to the person handling my request and was told they only received 4 pages of lab results, no clinicals or biopsy reports, ultra sounds  or  statement to the effect that I am F4. She had talked to  Nell who gave her the rush on the phone. She told me, had Nell even said over the phone that I was F4 she could have put it in the report. So she said she would document it , and hoped Nell would call her back soon. The way it is now when she summits report/request  , if anything is missing or needed they will contact Nell directly. I had to explain I only saw this Specialist twice and Nell once, and that I was referred to him for TX. I do believe she said something about having to get statement from the doctor. I have no idea what is going on.  Michaele

I thought the prescripting was sent with the info to get preapproval, Im confused. They also require a history of prior tx, which I explained I was naive.



-- Edited by Michaele on Tuesday 11th of November 2014 03:54:07 PM

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