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Post Info TOPIC: Exercise


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RE: Exercise
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So sorry to hear that! It must be hard going from such an active lifestyle, to so tired. its quite a change. Hopefully you will start treatment and beat that virus. I really believe it causes a lot of fatigue that is difficult for doctors to manage/treat/understand/diagnose. I know for my husband, the fatigue was so frustrating.

Keep fighting. It really can get better!!!



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Hubby profile: Genotype 1a. Hep C since late 70's. Cirrhosis. Interon/Riba 2x. Incivek/interf/riba: Und at 8 weeks, but had to stop due to DRESS syndome. Olysio/Sovaldi started 6/18/2014. Cleared virus 11/05/2014



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My own experience is that you are ok until you're not.

I used to play rollerderby, do long hikes (day long), run marathons (42k races). In order to keep strong and flexible for all this, I went to the gym and did weight training sessions that involved weights and yoga, 3x a week, for 2 hrs. In addition to all that. I also led running clinics. kept this up until my mid 30's, about 3 years ago...despite having Hep c since my late teens, probably.

Fast forward to the present.

On a good day, I can walk for an hour or so, maybe more if it is on flat ground and the weather is not hot and I go slow...on a bad day, I can barely get out of bed, and I am too tired to bother cooking dinner. I get winded going up one flight of stairs slowly. I get muscle cramps after 15 min of throwing a ball with a child. If I push myself and try to actually exercise, then I really feel ****ty...dizzy, tired, winded.

I also have sweat induced rashes (urticarial) so actual cardio is out of the question anyways...

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38 yr old, Fib stage 1, last VL 5.3 mil - Cured by Abbvie clinical trial

Genotype 1a, Dx 2010 but probably had for 20 yrs+



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Wow Sandy. That is great for your hubby, and very encouraging for the rest of us! It is nice to hear about real life experiences - - especially positive ones!

- Tess



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HCV Gen 1a diagnosed 2001;Labs 11/13/14: VL 1.2 million IU/mL, ast 88, alt 111. HarvoniTX 12 weeks.EOT- 2/18/15, VLUND &normal ast/alt.

4wks after EOT, VL = UND; normal AST/ALT at 4, 8 and 14weeks after EOT. 15 weeks after EOT = Undetectable!



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Just my thoughts for what they are worth...I think this virus tires people more than doctors realize. I can tell you that my husband had it for over 30 years. During the last five, he was becoming progressively more exhausted. Simply things like raking leaves, or shoveling the walk would make him short of breath and feeling 'wrung out' for the rest of the day. It got to the point that he took an early retirement from work as he needed a nap each day. Since he is also a very brittle Type I diabetic, we were never sure if it was the hep c (we were told 'no'), the diabetes or getting older. Well, he cleared the virus in August after 12 weeks on Solvaldi/Olysio, and it is amazing the amount of energy that he now has. He can do yard work for hours, no longer naps and says that he has so much energy, he has decided to go to work just out of boredom. I suspect others may experience the same response regarding stamina and Hep C virus.

Good luck!

Sandy



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Hubby profile: Genotype 1a. Hep C since late 70's. Cirrhosis. Interon/Riba 2x. Incivek/interf/riba: Und at 8 weeks, but had to stop due to DRESS syndome. Olysio/Sovaldi started 6/18/2014. Cleared virus 11/05/2014



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Hi Stormy, your symptoms sound more like a possible blockage somewhere in your circulatory system. Or possibly severe anemia. The nausea, dizziness, sweating and increased blood pressureuponexertion canall besymptoms of a heart/circulatory issue. Not trying to scare you....just trying to alert you just in case. I would check with a physician to rule out any heart issues.



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Dx. 2005-liver bx.:stg 2/gr 1. at that time-GT 1a multiple transfusions in 1981. Started Sovaldi and Olysio 1/16/14 (No prior treatments)Q80K present. UND week 4,8 and at EOT. UND at wk 4EOT, Und at wk 8EOT SVR 12!!!..SVR 24 :-)



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Having no stamina has been my major gripe with this virus, it also seems to drain me when I over exert myself, then it feels like I'm catching the flu or something,..all achy, sore throat, sometimes a low grade fever.

bb, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment nave....UNTIL 7-01-18 !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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I,ve done some enormous runs whilst having Hep C. I only found out I had it last year and would have had it 25 plus years. In the last 2 years - a 5000 km run around NZ over 70 days and this year just completed NY to LA in just over 51 days ( averaging approx. 94 kms per day). Now being on treatment am struggling to run further than 2 - 3 kms without having to have a walk break


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Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35



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Curious about exercise and hep c. Although I have been walking on a treadmill for many years I just don't have any stamina. I took a pilates class last year and could not hack it. ten minutes in, I would get nauseous, lightheaded and a weird sweat on my forehead, blood pressure spikes the rest of the day and just felt junky. Wondering if the hepatitis could be responsible.



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