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Post Info TOPIC: Hello Everyone! I am new and just started Harvoni yesterday!


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RE: Hello Everyone! I am new and just started Harvoni yesterday!
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Hi and thank you for the pointers.  I have a day-by-day pill organizer, but will start setting an alarm, as well.  I take mine at 4 pm and would like to keep the antivirals flowing regularly...I would hate to miss a dose, as they are so effective and so expensive.

I am enjoying this forum immensely,

Jo

 



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16



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Hi Matt,

I have seen your posts all over the forum and thank you for taking the time to welcome me.  I have testing on 2/4 and judging from what I have read here, I may see some type of positive response to the Harvoni.  I will keep everyone in the loop and post the results.

If I forget to say it from time to time, I always wish for the best outcome for everyone, and hope for the day that a vaccine might be available for kids like my 7 yr. old grandson.

Take care of yourself,

Jo



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16



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Hi there and thank you for the encouragement.  Failing in 2011 was devastating, not to mention very inconvenient...

Salt levels dropped and so did I; literally.  My doc at the time (Yale, New Haven) refused to retry, but Gilead to the rescue.

Thank you again for your welcome.

Jo



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16



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Joann,
Welcome to the Harvoni club and enjoy the ride on the Harvoni train. Just take your pills everyday
at the same time. I take mine at 5pm daily and set an alarm on my cell phone. I mark an X on
a calendar so there is no mistake. I keep the pills in the original bottle with the litte desiccant dryer
still inside and away from any heat. No antiacids or anything with aluminum or magnesium.

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GT 1a, was tx naïve, cirrhotic(Fibrosure), 64 y.o. Started Harvoni 12/12/14 for 12 wks. EOT weeks 4, 13, and 24 HCV not detected! HVC not detected EOT plus one year.

A smooth sea doesn't make for a skillful sailor.

 



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Hello Joann

Welcome to the forum from me as well, you have found a good place with members that can give real insight into living with and treatment of all things HCV.

You will do very well with Harvoni, please jump on the Harvoni treatment Train and enjoy the ride.

matt 



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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Hi Joann, and welcome to a great forum with caring, compassionate, and knowledgeable folks. Glad to see you getting started on the Harvoni.  Great stuff.  Like you many here have failed or relapsed on previous tx.  We do understand at least some of what you're going through.  Hope and pray you find SVR!  in your future.  Enjoy the ride.  :)



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.



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Hi Jill,

Yes, it is very encouraging to see all of these positive posts.  I still don't know what happened with the previous treatment.  One day I was fine and the next I am passed out on the floor.  

The Harvoni is just an amazing treatment.  Talk to you soon,

J



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16



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Hi Jo, welcome from me too!

Congrats on starting your Harvoni treatment!  You`ll be in good company here with people who understand how you feel, so make yourself at home.  Sorry to read in your bio about your previous failed treatment but I`m sure this time around with Harvoni will be completely different.  We`re seeing so many good results coming through, it`s the perfect time to treat!

Looking forward to hearing more from you, best of luck! 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Thank you for the good wishes.  I am happy to have found this oasis.  I'm about to take pill #2!

Jo



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16



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Welcome to you!  Best of luck on your treatment.  I have 18 days left of an 8 week plan. 



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GT 1b first time treating with Harvoni 8 weeks.  4 weeks UND 8 week UND.  8 weeks after treatment UND.

 12 weeks SVR.  Reached 24 weeks SVR!



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Thanks and I am very happy to find you too.  It makes all the difference to read these posts.

They want labs as soon as 3 weeks! This is hard to believe...after so long.

 

Jo



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16



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Hi Ro,

Thanks for the welcome.  I appreciate it so much.  No one really understands the issues as others with the problem.

I'll keep you posted.  What a great forum!



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16

Tig


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Hi Joann,

Woot! Welcome to the forum and the beginning of your Hep free future!! So glad you found us and look forward to following your progress and of course, success. We have many here with you on this treatment and I know you'll be welcomed by them soon. This new Tx is nothing like the old interferon and you should do well. Few side effects, rapid action, and the rates of success that still have us amazed! Good luck....

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Ro


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Welcome Joann!  Sit back, relax..think positive thoughts and SVR will be in your future!

Ro



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I got the fedex and took one immediately...pretty peach-colored quadrangle.  I arranged them in a pill organizer by day and now I wait.hmm

It all seems a bit anitclimactic and silly, but that first pill was a very emotional experience.  I am happy to be in the club!

All I feel today is a headache.  I'll take it!

Joann



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16

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