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Post Info TOPIC: My quest for Harvoni
mallani


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RE: My quest for Harvoni
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Larry,

I hope your ' 600mg Ribosphere TID' is not correct. TID is ter in die, which means three times a day. As Tig said, that's 1,800 mg a day which is incorrect. It should be 1,200mg a day, which is 600mg BID (more commonly BD). Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Brian1412


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another thing to ad that I discovered.  Talk to the ladies at support path in the daytime. They are way different in the day. They really try to get what is going on with you.

 



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Tig


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Hi Larry,

I know we discussed it previously, but I want to confirm one thing, if I may. Did your physician determine that you should indeed take 1800 mg of Ribavirin daily with Harvoni? I have seen some recommendations for the combination in some instances, but never at that dosage. Thanks for your clarification.

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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LJS911


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Welcome, I applied to Supportpath November 7th and got approved January 5th, but I found out thru Gilead and had to call the PA in my doctors office and tell her they were waiting for their paperwork ( script ) so it takes a while but the people at Supportpath are great. I received my meds, Harvoni, 8 days ago and am doing ok. They will get you the meds just hang in there and stick around this board, alot of good info but more important alot of great people that know and care.

I am type 2b Harvoni and Ribospheare 600mg TID Day 8
God bless
Larry


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God bless Larry
Brian1412


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I was invited to a meeting regarding Hep C treatment at University of Miami, with all the "competing companies and  major researchers and  Medical experts from University of Miami.   This was a no," we are better than you drug" nothing like that at all. It was a frank assessment of where treatment was. Where the treatment is ,  is excellent and about to get even better.

 

The meeting was about access to the meds. ALL the manufactures were in agreement that the begging problem to access was the  number of people who now want the meds. Obviously cost to many, and the no set procedure or standards to  put it on the particular Insurance plan is making it difficult. Or State Medicaid etc.

ALL of them said the same thing. If your insurance plan is rejecting you for treatment now, if they reject you 3 times, The manufactures will provide the medication . Obama care plans do not have  agreements with the insurance Companies, regarding these drugs. So the Companies are meeting them now for negotiated  costs.  so you will be able to go to the Companies or they will have a deal with insurance companies.

My state, and several others I know, have set aside funds for treatment. The Dr. is key. My first Dr. didn't care about the Hep  until I had serious problems. She wanted to wait as long as possible.  ALL the Medical experts at  U0M Jackson,  said there is no rationale to  wait for more Damage .

If you healthcare provider is saying that,  they are stalling you. Do not accept it.

Every state has some version of what  in FL is called the W-80.  The money to treat this is available.  If you need help to find where it is  start with the Hospitals that have outpatient clinics.  If you cant find it, let me know and I will find it for you . There are people working to put together a list for all the States.    My understanding from the meeting  was that just the mainland states would NOT  have this available at this time.

Treatment is coming . The next wave of  the drugs  that are coming are fantastic to almost all  Genos.   Hang on, get yourself as healthy as you can. I did not know about muscle mass. I have lost a lot of weight, and they want me to build muscle mass. They stressed this over and over at the meeting.  Muscle mass people do better  on the meds.  I don't know why, but the Drs stressed it over and over.

Hang on, get as shape as much as you can, bulk up, and   get treated.  As one Jackson Dr said to me.." Your getting  the meds, now go out at kill this Dumb virus"  They are called it dumb virus. I don't know why.

 

Peace

 

 

 

 

2.0 of all these medications are coming soon,

 



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Rubye


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Hi Japhet, Persistence is indeed key for many of us. I hope you have heard back from Gilead by now and have good news.

My problem was not being able to get the prescription in the first place and I have cirrhosis. It took 9 months and seeing three doctors and a NP to get the prescription. So, you are at least one step ahead of where I was if that helps any. Anyway, I finally got the prescription and on appeal got the drugs. So, keep up the good fight. Take care.



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
RudiRoo


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Hi Stormy & Japhet ,

Sorry you're having to fight for your treatment. If you start doubting that persistence beats resistance just start reading the posts of all the folks who fought and won.

~ Roo



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Hep C since 1982, GT IL28b CC, tx naive, VL 2.5M, normal liver panel, Hepascore F-0, A-1. Sjogren's, Hashimoto's, Raynaud's, etc. SOT S/O 12 wk tx on 10.28.14. EOT 1.19.15. HEP C FREE AT LAST! 4.29.15
Stormy


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Welcome,

sure can relate to the long, lonely ride. but the sun came up today and it's a good day.

i too, am in the middle of this insurance battle. 

Stormy



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Japhet


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I look forward to sharing the love!aww



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Japhet


Newbie

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Thanks,its been a very long,lonely journey.blankstare



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Cinnamon Girl


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Hello Japhet, welcome, I`m glad you found us!

I hope your application through Gilead`s Support Path goes well, we have other people here who`ve been through the process who will be happy to share their experiences with you.  Do feel free to join in and ask any questions, we`re here to help!

By the way, have you had a recent biopsy or fibroscan, and if so do you know your current liver status? 

Keep us posted and best of luck!   smile

~ Jill

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


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Hi Japhet,

Welcome to the forum! You've found a great group of knowledgeable, caring people, that will do whatever they can to help you along the way. Sorry to hear about the denials, but that's par for the course and you're on the right track with Gileads Support Path. They will walk you through the process and tell you what is required to get the ball rolling. They have been very helpful to several members. Let us know how it goes and if you need anything, just let us know! Good luck...

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Miss B


Senior Member

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Welcome!

If you follow the approach used by Shadow10Cats, I'm confident that you will be approved.

See the thread: GILEAD SUPPORT PATH - IT WORKS!!

Good Luck!



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Miss B
56 years old. Genotype 1B, previous treatment with interferon 1994. Started Harvoni 12/8/14. After 2 weeks, VL dropped from over 4 million to 496. At 4 weeks, undetected, but at 8 weeks, <15 mL (detected), at 12 weeks/EOT UND!  
Japhet


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I was diagnosed with HCV  14 yr.s ago..I've been waiting for these new meds,knowing I would never be able to tolerate the Interferon,or Ribaviran. My BCBS ins. has recently denied me twice.,saying "Harvoni's not on their formulary at this time". I'm not so sure they'd approve it anyway,since I'm not sick...it's very frustrating as most of you know.disbelief..My next move is applying for Gileads Support Path program hoping they'll accept me and then I'll have my ticket to ride the Harvoni express!! aww

 

 



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