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Post Info TOPIC: Update


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RE: Update
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THANKS everyone ! for your responses 



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genotype 1  HCV 4,958,318 iu/ml    HCV Log updated soon  iu/ml------5'10 135lbs 9-15-83  genotype 1 since 2002----Pendleton,Oregon



Guru

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Hi Josh, good to hear from you again but I`m so sorry you`ve had another collapsed lung, what a scary thing to happen. 

Thanks for sharing your thoughts, and I agree with some of the things you said, for example not letting anxiety and stress rule your life.  Learning to let go of our fears is a major step forward for a lot of us.

You`re doing very well staying off alcohol since last June, that`s something to be proud of, and also giving up smoking.  Your health is certainly worth fighting for and I`m so glad to hear you`ll be starting your treatment soon.

Keep us updated, and all the best of luck!  Stay strong! 

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Sorry to hear about your lung Josh. You are right that stress and anxiety can get us anytime, just as the Hep C or any other health problem can and so sometimes life has to become a day-to-day affair, just living for today. For me, drinking got in my way too often and so with some 12-step help back in the 80's I learned to stay in the pesent. Not so easy sometimes. I don't mean to sound preachy, just wanted to share what I've found.

You know, I don't understand how people can not fight for treatment or other things in life that really matter, but I know people who are told that their insurance won't pay or something else as lame and they simply give up. I don't get that. You sound like a fighter and that, in my book is a very good thing to be in this life.

Take care.



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.

Tig


Admin

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Hi Josh,

Thanks for the update. I'm sorry to hear about the second pneumothorax, that sucks (no pun intended)! When nursing, I helped insert many chest tubes, and it seems gruesome but necessary. I'm so glad it went easier for you this time. I implore you to take it easy. My impression is that you are a slender, perhaps tall young man. You are the "poster child" (phrase only)for pneumothorax susceptibility. Especially since this is your second one. Your bullet proof desire to enjoy life sounds fun, but should you drink and smoke, with your pulmonary and liver issues, you may experience a few less sunrises than I truly believe you would like to see. Please, you have a lot of living to do. Consider your choices seriously. okay, off my soapbox.... Good luck buddy.

Glad to hear you're going to get started on treatment soon. You need to get all of these issues behind you and as you say, "start living"! Be sure to keep in touch and let us know how things progress. Hang in there my friend, you know we care!

Tig

PS: I'm still in Seahawk shock... I keep hearing the name Marshawn, Marshawn [smh]



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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 well..yes im always around even if i dont post ... i seriuosly check out what going on.... or how people are doing ... dont mistake my silence for me actualy not being here :)

 

anyway i as still awaiting Tx as the nurse is on vacation till next week ... glad she is on holiday she deserves it .... thats the nurse to the gastrointerologist ... the nurse keeps me updated as to whats going on.... and she very nice......

 

 well on Friday i had yet another collapsed lung and was released a day later ... this 1 went way smoother on chest tube and pain factor......

those collapsed lungs are damn annoying i waited 8  or 9 hours after it happened before going to ER...... dumb? maybe maybe not........ going back to gym Friday so 1 week after event i shall really test out breathing and upper body muscles.....

 doctor will run a CT scan over my chest my first pnumo was in nov 5th second occurd 1-30-15.... 

 

  first of all as previously stated not really scared of death I dont want anytime soon but to think Just because your YOUNG which dosnt matter if your 30 or 80 you can die at any time you may think other wise but i can point out sum articles.....    so i shall pretend it didnt happen ... much like this hep c thing once its gone for svr 12 its Beer on... im not a fool but i also realise you can die anytime and if you enjoy having a cigarete or beer once in awhile not excessively... then you should by all means enjoy it cause you wont be enjoying nothing when your dead.... except proably the presence of God which actually quite nice to look forward too and also 1 of the main reasons i fear no death .... ...... 

 

 i enjoy helping people .... i enjoy staying fit... i enjoy having fun and doing thingsi proably shouldnt be once in awhile.....

 but yes i believe in God and honor.. and i know wisdom and knowledge are far more value then money as evident by certain gambling binges .... 

   i believe we all help 1 another whether we know it or not... dont believe try missing a day a work and see if any1 notices or try not calling your wife or kids for a couple days see if they notice...

 examples not actuals pertaining to me.....    i still havent drank since June of last year 6-1-14 and i dont even really smoke anymore i have nicotine patches....

 

   keep getting threatned with death even though i think collapsed lung both on the right isnt that serious..... 30-50 percent collapse.... sum have saiid yes it is serious... then i say sumthing like your over reacting which then in turn sets me off......   even though i know they care... they also gota realise that your going to do what you ultimately want.......

   dont let FEAR run your life... fear anxiety and stress will kill you almost as fast as anything else and they have been researched......

 ive almost had a beer a few times but ultimately have resisted... thinking to myself its just 1 go ahead ... but i go nope im gona wait.... but then you get these spontaneous collapses which i think there not theres a reason ...called BLEBS.... and you start to think thoughts ..hmm maybe i dont got all this time i think i have ... and i bettter do what i want now for i may not be able to later......

 

 but to be honest reading your guys stories and experiences of what you have gone through and how hard you fought for treatments is pretty inspiring......

i listen far more than you may think... People matter everything else dosent put God and pets on that list too......

 

   :) lol hope you enjoyed the update iLL be back with more infos on my Hep C  Tx progress... and my pnumothorax CT scan results.... as well as any other news worthy things to chime in on :)

 

 AND by the way who the $^%& throws the ball on 2nd down from the 1 yard line when you have the best Running back in the league .... Face To Palm..... was a great back and forth game                                     though



__________________

genotype 1  HCV 4,958,318 iu/ml    HCV Log updated soon  iu/ml------5'10 135lbs 9-15-83  genotype 1 since 2002----Pendleton,Oregon

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