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Hep C Discussion Forum -> General Discussion -> Hepatitis C Confidential Study
Post Info TOPIC: Hepatitis C Confidential Study
bubble


Senior Member

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RE: Hepatitis C Confidential Study
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Yes Bill,......It's the Oz Man on his "Crazy Train".   That e-mail could come from Express Scripts or Accreedo Specialty Pharmacy. Someone got my e-mail.  I dont like 90 minutes of imformation. I am not goin' anywhere with it.

So how are you doing on Harvoni my fellow New Jersey friend? Are you in the "Not Detectable" car on this train? 

 



__________________

60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
Bills


Guru

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Hi bubble, Nice pic LOL hope you doing well with Abbive. I'll look into that study, i also have no real interest in doing something like that for money ( and that's not enough anyway) I'm worth more than that LOL. I'll hold out for a few thousand  I'm curious what their up to. I'll check it out and comment.

BillS



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Rubye


Senior Member

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I could certainly use the money. But, I would need to know who she is and who she works with before giving her any personal information. I would worry about my story being published as part of an article or something similar if she's a reporter. If it's part of a research study then they can provide confidentiality. I suppose I could write her and ask her but for some reason I'm leery. Just saying.



__________________

UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
bubble


Senior Member

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Roey: Jane Walker. 888 392-5000. Jane@chorowitz.com  $225 dollars for a 90 minute interview for qualified Hep C patients. I have no idea who she is or her affiliation. I have no financial interest in this number or person. Keep us posted. Have a great day!



__________________

60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
Roey


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Hey Bubble.  I didn't get one, but if I did, I would absolutely be interested in it.  Knowing myself if it sounds legit, I would do it.   U have a Blessed Day!    Roey



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roey

 

 

 

58 y o female genotype 1a naive to treatment, 2-1-15 start Harvoni 
bubble


Senior Member

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Hi G.  I got an e-mail from a Jane Walker wanting to pay 225 bucks for a 90 minute interview for Hep C study. If I am qualified. It just has a phone number and no credentials. I didnt do any thing with it. Anyone get one?



__________________

60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
glenqualhealth


Newbie

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Date:
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Hi there 

 

The research is being carried out by the Research Partnership.

 

You can see more information regarding the company at their website which I have included below.

Please do let me let me know if you need anymore information.

 http://www.researchpartnership.com



-- Edited by glenqualhealth on Wednesday 29th of April 2015 05:42:47 PM

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glen
zavr


Veteran Member

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Is this a university or a company study?



__________________

Gen 1b, 33yo. Started 12wk Viekira Pak on 2/28/2015. 

Baseline: VL=517K, AST=34, ALT=56. 

Wk4: VL=<15, AST=16, ALT=14.

Wk8: VL=UND, AST=17, ALT=14.

Wk12: VL=UND, Fibroscan: 3.4kPa, F0.

--->Viekira Pak financial and nurse support<---
Cinnamon Girl


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I have reopened this thread as I now have more information from Glendean about this study.

Glendean has given his assurance that this research is being conducted in accordance with the relevant guidelines relating to confidentiality and that no answer given will be linked to any individual participant.  He is working with the Research Partnership, with approval from the IRB, and all information received will be used for research purposes only.

We can only do so much to guarantee the confidentiality of our members so please be advised that it is up to any individual member to do their own checks before giving out any personal details. 

Jill

 

(Thanks for the information, Glen, I have now replaced your contact details in your post.)

 

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Cinnamon Girl


Guru

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Date:
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Hi Glen,

Please could you send me a private message giving me the full details of this study, I  would like more information before your request can be authorised by this forum`s Admin team. 

In the meantime I`m closing this thread and removing your contact details.

Thanks in advance for your co-operation.   

Jill (Forum owner)



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
glenqualhealth


Newbie

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Posts: 2
Date:
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Dear all

I do hope that this email will find you well.

I would like to invite Genotype 1 patients that are untreated to take part in a study. Participants would be required to complete a 15 minute self completion questionnaire. This is a booster study to A larger physician-patient linked project. This booster study will involve collecting patient self-completion forms. We intend to identify patients needs and preferences in anticipation of the launch of new HCV regimens.  

Participants will receive £20 for giving up your time and helping out with the research. This will be paid on completion of the research.

If you are interested in taking part in this research or would like to find out more DETAILED information, please contact me via

email at: rehvan@btopenworld.com or phone on 020 88066472

 

I WILL THEN PROVIDE FURTHER DETAILS OF THE COMPANY THAT ARE CONDUCTING THE RESEARCH AND ANY OTHER INFORMATION THAT YOU WOULD LIKE ME TO CONFIRM.

I will need to run through a few very brief questions before confirming you onto the research. Please include a contact telephone number in any correspondence or if you do not wish to give your number you can contact me on the number above.

Thank you in advance, 

GLENDEAN



-- Edited by Cinnamon Girl on Tuesday 28th of April 2015 06:40:23 PM



-- Edited by Cinnamon Girl on Wednesday 29th of April 2015 11:37:54 AM

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glen
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