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Hep C Discussion Forum -> General Discussion -> To all who make this site. happen
Post Info TOPIC: To all who make this site. happen
fourlocos


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RE: To all who make this site. happen
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I wish my doctor would read the forum.  He might then get a better idea of how people are doing post treatment!  And thank you also for the support I received and still do.  It got me through so much!



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GT 1b first time treating with Harvoni 8 weeks.  4 weeks UND 8 week UND.  8 weeks after treatment UND.

 12 weeks SVR.  Reached 24 weeks SVR!
freesoul


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I just wanted to say that I really appreciate this site being here...I'd be lost without it.

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38 yr old, Fib stage 1, last VL 5.3 mil - Cured by Abbvie clinical trial

Genotype 1a, Dx 2010 but probably had for 20 yrs+ 
Brian1412


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One more thing. The prople before me,i cannot even fathom. Some of the grueling. Trestments you went thru to get to where we are today. I know it was very very hard,and without you we would not be. I thank you with all my heart

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Brian1412


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Groupergetter,your right and thst is why i immediately. Searched for a online site,read many and knew this was the right place. This site gives up to date, welcoming information to those,like myself the. Information. Needed that really helped make this a situation relatively. Easy. At a time millions of people need to know Of the new drugs, it is such alignment of the stars that this nasty virus. Will be gone,and we can all get ourlives back. Without all of you, it would not be Peace

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Cinnamon Girl


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Hi Rudi Roo,

How nice of you to make a contribution to forum funds with your first checks post treatment, what a lovely thing to do! 

Thank you very much for helping to keep us afloat, much appreciated!   And thanks too for being here still. 

So to hear pleased you`ll be sticking around!  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Cinnamon Girl


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What a lovely thread, thanks Brian!  

I`m very pleased that your doctor was impressed with what he saw here, thanks for letting us know about that.  I wish more doctors would be so open minded and maybe they would learn a lot from the real life experiences that people share here.  He sounds like a great guy, you`re very lucky! 

It`s very gratifying to see so many positive comments about the forum.  We have a wonderful community here which is made up of many caring and helpful members and that means all of  you.  This is your forum and it`s you who make it what it is, so thank you all for being so kind and considerate to each other and for being so willing to share your experiences and support so freely. 

Best of luck Brian, do let us know when you hear your results!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Ro


Senior Member

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Posts: 274
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I agree!  This site has been a blessing.  Everyone's got something, and when we share the burdens they do get lighter!  Thank you to all who share pieces of themselves, it has been so appreciated.

Ro



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RudiRoo


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Tig56 wrote:

I also know that each one of us has a story of thanks for everyone here. The support and assistance has carried us all through some very trying times. I know I received priceless help from too many to name. We have a pretty awesome bunch here, past and present!

 I second that Tig. Fortuitous day that it's been, I finally got checks, first time since I've been off treatment and I got two of them! So happy I ran right over to the board like a good kid and made my donation with the handy little contribute button on the bottom of the main page. Yep, felt good to be able to do my part. Money is just one way to say a heartfelt THANK YOU!!! I also plan on sticking around and doing my best to help others in whatever way I can think of, or at least try to, as they make their way through the maze. 

Good for you Brian with your rockin' doc! Having a good one sure can take the rough spots out of the ride.

Heal on every body!

~ Rudi Roo



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Hep C since 1982, GT IL28b CC, tx naive, VL 2.5M, normal liver panel, Hepascore F-0, A-1. Sjogren's, Hashimoto's, Raynaud's, etc. SOT S/O 12 wk tx on 10.28.14. EOT 1.19.15. HEP C FREE AT LAST! 4.29.15
Brian1412


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I have almost convinced. Him to come to Bonnaroo. Next month.he wsnts to go to a music festival

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Brian1412


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He is a rare breed who has helped many people to get meds etc.i have not every seen him not in the hospital at all hours. All his patients. Know what a gift he is. He has gotten. A ton of people the meds for no cost.

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Groupergetter


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Thank you Brian for starting this thread.  I wholeheartedly agree this is an awesome site.  It's as though we are a synergy of struggle, sorrow, pain, fear, and uncertainty.  Added to this a collection of wisdom, knowledge, insight, and empathy. Shared hopes, dreams, joy, and love. Here, the whole is greater than the sum of it's parts. Thanks to all who share and help to make this happen.  



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Rubye


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During my treatment I relied on this site and the people here to get me through the days. No one else wanted to listen, including my doctor. biggrin Now that I know so much about Hep C I don't have it any more. Just figures.



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Tig


Admin

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Posts: 9270
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Hey Brian,

I enjoyed hearing your doctor had visited the site and liked what he saw. I hope he returns to see how the people in the trenches are feeling, as these treatments continue to evolve. Anyone interested in knowing more about the real world effects this disease and these drugs have on their patients, can certainly find it here. 

I also know that each one of us has a story of thanks for everyone here. The support and assistance has carried us all through some very trying times. I know I received priceless help from too many to name. We have a pretty awesome bunch here, past and present!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Tess


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Hi Brian1412,

Wow, that's a sign of a great doctor.  Good for you that your doctor appreciates the real-life information here from people living with HCV and going through treatment.   I wish mine was that open minded.  Ditto your kudos to this site and to the people that manage it! 

Best of luck with your lab results!

- Tess



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HCV Gen 1a diagnosed 2001; Labs 11/13/14: VL 1.2 million IU/mL, ast 88, alt 111. Harvoni TX 12 weeks.  EOT - 2/18/15, VL UND & normal ast/alt.

4 wks after EOT, VL = UND; normal AST/ALT at 4, 8 and 14 weeks after EOT.  15 weeks after EOT = Undetectable!
Brian1412


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My great Dr sent me an email that he visited this site. He said he found it be be fantastic and informative. So i wanted to pass that on. I did my labs today and should have results. By the end of the week. I. Am now 23. Pills to the end and by just how i feel i am confident i am in a great spot. Onve again i am very thankfull for all of you and i have great confidence. We all om the right track to get beyoind this nasty virus Peace

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