Hep C Discussion Forum

I certainly understand your frustration. The thing is I seriously doubt that any state would go bankrupt if they treated everyone who has Hep C. Gilead has offered most of the states very good deals and some state medicaids have refused the deals because Gilead wants them to treat everyone and they don't want to bear that cost. When Sovaldi first came out it was really very simple and then different groups got involved and made it complicated. One of those groups was the AIDS people. They sent letters to all the state medicaid programs asking the states not to fund treatment unless the patient has cirrhosis and one or two other problems. For example, I have cirrhosis along with neuropathy and so was able to gain treatment. Still, it was not easy and I had to see several doctors before I found someone who would give me a prescription. 

All I can say is don't give up. Make noise. At one point a local newspaper did an article on me about how I was not able to get treatment even with cirrhosis, and I have Medicare and medicaid only as a secondary insurance. That same week I was given the prescription and was approved by my insurance. I feel extremely lucky to have treated and guilty that so many others are not able to treat. You are right that it is easier to get treatment if you are older. I'm 67 and had Hep C for 40 years. I had longer to get sicker. I'm sorry you are having to cope with this. Most people with insurance get Harvoni quickly and easily and so don't relate to what you are saying here. My suggestion is talk to everyone and anyone who will listen and just don't give up. However, it will help to lose calling people names. Take care and good luck to you.

The coffee's on and the door is always open Robin.

all of it is federal dude.... still the states govern it... like food stamps... do you go to a fed office for food stamps? no you go to a county office.... it's bankrupting the state while they wait for federal funding to kick in. I mean just ask a hep DR or a gastro DR like 4 have said the same thing to me.... Compassionate care act and the cost of harvoni is bankrupting the system.... I'm glad it works so well. But you have people like me with geno type 2b that it does nothing for and am being denied care because of the cost. Also I never claimed that that harvoni is wrecking the system.... It was broke to begin with. Like I said before medicare/medicaid in most states is paying for it (im glad they are) but I was on my way to being approved, (even tho my pills cost way less than harvoni) but was denied a 4th time because (and this is what my 3rd....count it 3RD Dr said...."harvoni is wrecking the healthcare system.... especially state/fed funded ones....) Lets put it this way.... 1.5 years ago a case sort-of like mine was approved for Sav/Rib with a fib lvl 2... I have hepatic enecphilopathy.... and still dont/ wont qualify for my even cheaper pills!
Basically (even if I get booted from this forum) NOONE IS THINKING ABOUT THE REPERCUSSIONS OF HARVONI! I'm denied over a guy whos 70 and in end stages of cir.? WTF is this society coming to? a 35 y/o/m with a fib lvl 2 cant get treatment but.... But a dude who has already lived his life (and no matter what pills you take it wont cure cir.), get the most exspensive treatment alvail. on the taxpayers dollar? I mean even business sense dictates the younger will pay more back in time.... any way (insert name here), like I said its a good thing it works but kids like me? left to the F*CKIN DOGS
my lat note.... LMFAO YA DUDE THEY ARE COVERING IT THUS.... MY BITCHING!!!