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Post Info TOPIC: First week
MikeH


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RE: First week
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Posted by Groupergetter:

I failed to read your post.   I haven't noticed my feet being "flushed" but I definitely have burning which seems worse at night when lying in bed.  Also have the tingling sensation and occasional numbness.  In my case the numbness is more prominent in my legs rather than feet.  I had neuropathy prior to tx so I can't say it was caused by the Harvoni.

Thanks for the reply Scott, no problem about the delay. I haven't been watching the forum too closely myself. My foot condition (not officially diagnosed by a medical pro as yet) which may be some form of neuropathy, also preceded Harvoni treatment and and so is not a side effect of Harvoni. I was really more interested in the possibility that Harvoni may help with the neuropathy. So far, no change for me (Day 27 on Harvoni). My symptoms affect only my feet (mainly my toes) so far. My Dad had neuropathy that caused numbness in his feet and eventually his legs. It's pretty annoying at times, especially at night as you mention. Dad's condition became so pronounced that he burned the soles of his feet on hot concrete one sunny day without realizing it. He also had problems driving safely and often stepped out of his shoes. So far my numbness is relatively mild and not affecting things like driving, but it's not pleasant.



__________________

61 yo, GT 1a, liver F1-F2 pre-treatment.

Diagnosis circa 2000. tx naive till 8/6/15, Harvoni tx initiated 8/6/15 through Gilead's Support Path. 28day labs: virus "und." Sides mild. EOT 10/28/15. EOT liver enzymes normal range: AST 25, ALT 18.
Groupergetter


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MikeH wrote:

Posted by Groupergetter: still have the aches, pains, and neuropathy.

Groupergetter, I've been experiencing burning and numbness in my feet which started about 8 years ago. It seems to be aggravated by walking and standing, my feet sometimes appear a bit flushed. Is your "neuropathy" similar? I'm hoping these symptoms resulted from the virus and will diminish or stop during or after Harvoni treatment, but your experience may not support this wishful notion.

I'll be taking my sixth Harvoni dose this evening. So far my energy level remains low and may have actually dropped a bit, but I'm not experiencing any side effects that are significant enough to cause much concern. Though I do feel a bit odd at times, changes I'm experiencing are quite mild and may have little or nothing to do with the teatment.



-- Edited by MikeH on Tuesday 11th of August 2015 08:26:27 PM

Mike, my apologies for not responding to you sooner.  I failed to read your post.   I haven't noticed my feet being "flushed" but I definitely have burning which seems worse at night when lying in bed.  Also have the tingling sensation and occasional numbness.  In my case the numbness is more prominent in my legs rather than feet.  I had neuropathy prior to tx so I can't say it was caused by the Harvoni.  Keepa go :)   SVR is in your future. 

And yours too Scott:)  Congrats on the UND

 



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
coolheat


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Whoo Hoooo Scott, hang in there...........have a seat and enjoy the scenery.



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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
Tig


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Congrats Scott! Onward Hep C soldier, woohoo! smile



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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wmlj1960


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 Hi Scott.

 The Harvoni is obviously doing it's job. You had posted in another thread, Harvoni Side Effects, about experiencing insomnia your first week of treatment. How are you doing with sleep now? Any other side effects so far?

 Glad to see your "zero HCV" result at 4 weeks. Keep us up to date on your progress. smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Cinnamon Girl


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Hi Scott, congrats on your first `undetected` result, that`s very good to hear!

How are you feeling so far? 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Mountain man


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4 weeks zero HCV

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Scott Wiland
Tig


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Hey Mike,

These are some powerful drugs. You should have a good idea on your side effects after the second to third week. They seem to calm down then, for those that are experiencing any. 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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MikeH


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Posted by Groupergetter: still have the aches, pains, and neuropathy.

Groupergetter, I've been experiencing burning and numbness in my feet which started about 8 years ago. It seems to be aggravated by walking and standing, my feet sometimes appear a bit flushed. Is your "neuropathy" similar? I'm hoping these symptoms resulted from the virus and will diminish or stop during or after Harvoni treatment, but your experience may not support this wishful notion.

I'll be taking my sixth Harvoni dose this evening. So far my energy level remains low and may have actually dropped a bit, but I'm not experiencing any side effects that are significant enough to cause much concern. Though I do feel a bit odd at times, changes I'm experiencing are quite mild and may have little or nothing to do with the treatment.



-- Edited by MikeH on Tuesday 11th of August 2015 08:26:27 PM

__________________

61 yo, GT 1a, liver F1-F2 pre-treatment.

Diagnosis circa 2000. tx naive till 8/6/15, Harvoni tx initiated 8/6/15 through Gilead's Support Path. 28day labs: virus "und." Sides mild. EOT 10/28/15. EOT liver enzymes normal range: AST 25, ALT 18.
Groupergetter


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Welcome Scott, It seems as though everyone has differences in health changes post tx. Some have rapid improvement while it takes months for others. I am 12 weeks post tx and still have the aches, pains, and neuropathy. Don't want to be a downer but my doc says some won't see improvement. Many on the forum are seeing positive changes within 6 months post tx. Most have had this virus for years, so it may take some time. Glad you're getting started. Killing this beast is first step to better health. This is a great forum with knowledgeable and supportive people. Keep us posted on your progress. Take care.

__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
KPB


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As Tig said ...learn to hydrate.... sip the water, don't gulp,  drink all day, and if you wake up during the night, drink then too. My first 7 days were the worst, (learning to hydrate) the next 7 weeks I didn't have any side effects to speak of.   GOOGLE hydration and read,  it helps....



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SOT 06-01-2015,  VL - 1088513 , LOG - 6.04, Genotype - 1A , Fibrosis -  F3 , 59 yr. old male ,

VL - < 15 ,  LOG - < 1.18, @ 3 week blood test 

EOT 07-27-2015,  VL -   UND  ,   @ 9 week blood test  , 

NEXT BLOOD TEST - 08-01-2016
Tig


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Welcome to the forum Scott! Glad that you have the opportunity to start treatment on this blockbuster protocol. You will definitely see some positive and fast changes on this treatment. You'll feel some differences as you progress, but most here mention fatigue and some headaches related to the drugs. Concentrate on proper hydration and diet during these next few months. Many claim the extra hydration really reduces or limits the side effects. They seem to be manageable. The improvements come afterwards, but some notice an increase in energy during treatment. Everyone's different, so the first few weeks should spell it out for you. Take care of yourself and don't push yourself too hard. If you're like so many others here, you'll be celebrating an end of the Dragon's rule in no time! Good luck....



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Cinnamon Girl


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Hi Scott, welcome!

Congrats on starting your Harvoni, is this your first time on treatment?  You should expect to do very well with minimum side effects.

You may well notice an improvement in energy levels and other symptoms post treatment but it might take a little while.  It does vary from person to person of course, but I think my advice would be to give yourself time to recover once you`ve completed your treatment and don`t expect too much too soon. 

We have a thread for members on Harvoni treatment if you`d like to join in, here`s a link to it...

http://hepcfriends.activeboard.com/t58762824/all-aboard-for-the-harvoni-treatment-train-enjoy-the-ride-fo/?w_r=1413218986#lastPostAnchor

i wonder if you could give us a bit more info please, for example, treatment history, pre-treatment viral load and liver status if you know it, thanks!  You could write those details in your Signature line too, that would be helpful. 

Here`s a link that explains how to do that, from our helpful member Mike (wmlj1960)..

http://hepcfriends.activeboard.com/t58862021/forum-abbreviations-link-and-help-with-creating-your-signatu/

I`m glad  you found us, best of luck on your journey!

 

 


 

 

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Mountain man


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Hi all,first Post should I expect to feel better when 12 weeks are done, no more aches and pains, more energy? Thx Scott

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Scott Wiland
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