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Hep C Discussion Forum -> General Discussion -> ANGELO's UPDATE!!!
Post Info TOPIC: ANGELO's UPDATE!!!
tomyboy


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RE: ANGELO's UPDATE!!!
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Mena,

This is wonderful news.  So happy to hear Angelo is on the list.  We go back to Mt Sinai tomorrow for Tom's MRI.  Hoping his cancer didn't return and he is hep c free.  Won't get his blood count results back tomorrow but are praying for the best.  Did Angelo meet with Dr Sciano too?  He is head of the liver transplant at Mt Sinai.  He is actually good friends with Tom's gastro doctor up state here and is the reason Tom's liver cancer was found.  Sounds like Angelo is in the best of hands. We think of you often and pray everything goes as planned.  Keep up the faith.

Fondly,

Laura and Tom



__________________

Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

Dzdayscomin


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hepCFREEwanab wrote:
hepCFREEwanab wrote:

Hello everyone, it has been a while since I have written an update  in Angelo's condition.

Let's see  :

EOT    24 wks Harvoni on May 10, 2015

UND : 4 wks, 13 wks. 

After Radioimbolization and TACE for his HCC ( 2 tumors)he was able to meet the MILAN Criteria which qualifies him to get on the Liver Translantation list.

Although his MELD score is 11, because of his circumstances, it was increased to 22 as a starting point.

He will be monitored every 3 months at which time if everything is status quo, 2 more points will be added to the score.

The evaluation was extensive, we met with a social worker, nurse, hepatologist, nutritionist, 

Done a CT scan of his chest, colonoscopy & endoscopy.

Pending: MRI and surgeon visit, Cardiologist & Stress test.

His last tumor marker was 8.7

All in all we feel so blessed and have faith that his future is very promising!

 

I hope that all of you who are still fighting the DRAGON will succeed in slaying it permanently and move on to an healthier life!

Mena & Angelo

 

Ok, so Angelo as of September 1 was put on the Liver Transplant List at Mount Sinai!

 

 That is excellent, watch that AFP score ...... and during the waiting months maybe ask to alternate in a CT with contrast instead of MRI every time, that's what i wish i had done as for some reason my recurring HCC showed up much better on the CT even though it wouldn't have mattered once it's there its there.

Best wishes and prayers that you get your liver and it provides for many more good years to come.

Duane



__________________

53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
Matt Chris


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Hey Angelo & Wife

Good news for you and thanks for the positive well wishing.

We all need help and the forum members can provide a place to do do.

Thanks you for your support.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Groupergetter


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Prayers going out to many folks here....with every login. ..

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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Cinnamon Girl


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Good to hear this, Mena!  Best of luck to Angelo with his continuing tests.

Keep us updated! 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
wmlj1960


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hepCFREEwanab wrote:
Ok, so Angelo as of September 1 was put on the Liver Transplant List at Mount Sinai!

 

 That's good! Thanks for the Sept. 1 confirmation update Mena.



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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hepCFREEwanab


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Posts: 89
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hepCFREEwanab wrote:

Hello everyone, it has been a while since I have written an update  in Angelo's condition.

Let's see  :

EOT    24 wks Harvoni on May 10, 2015

UND : 4 wks, 13 wks. 

After Radioimbolization and TACE for his HCC ( 2 tumors)he was able to meet the MILAN Criteria which qualifies him to get on the Liver Translantation list.

Although his MELD score is 11, because of his circumstances, it was increased to 22 as a starting point.

He will be monitored every 3 months at which time if everything is status quo, 2 more points will be added to the score.

The evaluation was extensive, we met with a social worker, nurse, hepatologist, nutritionist, 

Done a CT scan of his chest, colonoscopy & endoscopy.

Pending: MRI and surgeon visit, Cardiologist & Stress test.

His last tumor marker was 8.7

All in all we feel so blessed and have faith that his future is very promising!

 

I hope that all of you who are still fighting the DRAGON will succeed in slaying it permanently and move on to an healthier life!

Mena & Angelo

 

Ok, so Angelo as of September 1 was put on the Liver Transplant List at Mount Sinai!

 



__________________

Genotype 1b, V/L  0! Finally got rid of the Dragon after 24 wks. of Harvoni.

EOT 5/10/15   - 4 wks. UND, 12 wks UND, 24 wks. UND!!! 
mallani


Guru

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Hi Mena,

Thanks for the update, and it's great that Angelo has achieved SVR.

Hopefully his liver will quieten down, and the HCC problem may resolve.

Good luck for the next MRI- I hope it's clear. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
wmlj1960


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hepCFREEwanab wrote:
UND : 4 wks, 13 wks.

 That's excellent news. I'm sure that really helps lift your spirits among all you have going on. I'll be hoping for a good report on his "pending" MRI etc. Keep us posted. smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Cinnamon Girl


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Posts: 5629
Date:
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Hello Mena!

Fantastic news that Angelo was still undetected at 4 and 13 weeks post EOT, and congratulations on his SVR!! 

Great to hear that has qualified to go on the transplant list too, what a relief that must be!

So good to hear to hear your news and I`m very pleased that Angelo`s situation is improving so much, the future is looking promising indeed!

What a beautiful photo, thanks for sharing it with us!   Would you like to tell us a bit about it? 

Wishing you both all the very best, keep in touch!  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
hepCFREEwanab


Veteran Member

Status: Offline
Posts: 89
Date:
Permalink  
 

Hello everyone, it has been a while since I have written an update  in Angelo's condition.

Let's see  :

EOT    24 wks Harvoni on May 10, 2015

UND : 4 wks, 13 wks. 

After Radioimbolization and TACE for his HCC ( 2 tumors)he was able to meet the MILAN Criteria which qualifies him to get on the Liver Translantation list.

Although his MELD score is 11, because of his circumstances, it was increased to 22 as a starting point.

He will be monitored every 3 months at which time if everything is status quo, 2 more points will be added to the score.

The evaluation was extensive, we met with a social worker, nurse, hepatologist, nutritionist, 

Done a CT scan of his chest, colonoscopy & endoscopy.

Pending: MRI and surgeon visit, Cardiologist & Stress test.

His last tumor marker was 8.7

All in all we feel so blessed and have faith that his future is very promising!

 

I hope that all of you who are still fighting the DRAGON will succeed in slaying it permanently and move on to an healthier life!

Mena & Angelo



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Genotype 1b, V/L  0! Finally got rid of the Dragon after 24 wks. of Harvoni.

EOT 5/10/15   - 4 wks. UND, 12 wks UND, 24 wks. UND!!! 
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