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Post Info TOPIC: HELLO! Introducing myself
Shadowfax


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RE: HELLO! Introducing myself
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Welcome back Marjorie,

You probably won't have any more side effects but as you said, yes get that water and plenty of it down the hatch every day. I keep track of what I drink on a small app because it's so easy to lose track and it always seems we have had enough.

Other than a few days, I have done very well on Harvoni, I am day 22 today. You need to eat to keep your strength up so even if you have very small snacks during the day, at least you will have the nutrients your body needs.

I did not lose my appetite and I still look forward to my junk food fix in the evening but I never eat that during the day and have not for a long time. 

We are looking forward to your first lab results.

 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
MarjorieJean91


Newbie

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Thank you!! You all are so kind and welcoming! I have been on it for about a week and I was only nauseous the first two days and that was all; my appetite is completely gone though. A mild fatigue I guess but I cant tell if thats just from working and going to college. :)

I will drink plenty of water. I will admit i have not been drinking what I should. I will go get a bottle of water right now. 

I also will create my signature and keep updates on my status! I have my first blood check on the 7th this month! 6 days!

 



-- Edited by MarjorieJean91 on Tuesday 1st of March 2016 10:30:45 PM

__________________

24 YO, Genotype 1A, no cirrhosis, Dx (Birth) 1991 HCV

T#1- 24 weeks Harvoni SOT 1-22-2016

 
JimmyK


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A brand new sister!

 

Welcome!

 

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
wmlj1960


Moderator

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 Hi Marjorie.

 Welcome from me also. You'll like it here with the support and information and you should do well with Harvoni. I just finished 24 weeks Harvoni treatment with minimal side effects in January. When you get time you may want to create your own signature so that other members can have quick access to information specific to you which helps when they reply to your post.

You'll find this forum to be a huge help such as what has already been suggested; keep yourself adequately hydrated with 3-4 liters of good water daily. Also I highly recommend trying to minimize junk food, get adequate rest and get adequate exercise daily but don't over do it.

More information on creating a signature is here:

How To Create Your Signature / Forum Abbreviation Definitions



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

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RAGDOLL


Senior Member

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Welcome Marjorie!   I was 24 when I got the HCV and never thought I would see a cure in my life time.   This is an amazing time for all of us who have lived with the virius for decades.   These new HCV drugs are amazing with very little side effects.  The days of Interferon and Ribivirin are fading away.   You will do fine!  Drink lots of water water water.    Keep us posted on your progress.  God Bless! 



__________________

F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!
wendyo


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Hi Marjoriejean....(MJ)

Hope this past few days have been good / tolerable with starting the Harvoni. I have been off it for 3 months now. It was not as bad as the meds some of us took years ago. You can and will get thru it. Drink lots of water and listen to your body as far as tired, rest, if you fell up to light exercise etc. 

Explore the forum; read and ask away!

Good luck,

wendy



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
mallani


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Hi Naomi,

This is 'MarjorieJean's' thread.

Go to the New Members Area, and click on 'Start a New Topic'.

If you could give some details, like Genotype, Viral Load, LFT's etc, it makes it easier to respond.

Good luck from a fellow Aussie.

You sound like a Geno 3, and the drugs like Sofosbuvir and Daclatasvir will be available on our PBS from 1st. March. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Naomi


Newbie

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Hi all,


I am a new member. I found your forum when trying to google on the new Abbvie treatment and so glad I did!

I have been diagnosed with HCV a few years ago and have been on a waiting list for treatment, as well as clinical trials.


I also have recently been invited to do the following clinical trail:

Protocol Title: A Randomized, Open-Label, Active-Controlled, Multicenter Study to Compare Efficacy and Safety of ABT-493/ABT-530 to Sofosbuvir Co-Administered with Daclatasvir in Adults with Chronic Hepatitis C Virus Genotype 3 Infection (ENDURANCE-3)


To be honest I have no idea what it is about and what all that means in medical terms.
I have been trying to read through other posts but am still a little confused. I am interested to know if the old "Ribavirin" drug is at all used in this specific treatment?


My concern is the side affects and how much it will affect me on a day to day basis. I have recently commenced to a senior role in a new job and am currently flat out and busy. I am able to take a few hours in the morning once a week as the treatment requires. However the possible side affects are quite a worry when I am in constant demand with dead lines. I have no wish to make this public with my superiors and colleagues as it is very personal to me.



I also wanted to know if follow up after treatments usually require a once a week or a monthly follow up in previous or current other treatments.

Any help or additional info would be very much appreciated.

PS; Thank you kindly for creating this forum to those in need of more info, many many thanks!

Naomi

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Tig


Admin

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Hi Marjorie,

I'd like to welcome you to the forum too! You have found a great group of people and we have several fellow warriors that are on the Harvoni treatment and are doing great. The success rates are high and as young as you are, I believe you've got the best opportunity ever to rid yourself of this. 

As mentioned, hydration is the key to minimizing side effects. You'll hear that a lot because it's so important! If you have any questions, don't hesitate to ask. Be sure you don't miss our search function at the top of each page. It will direct you to conversations we've had here on the forum. The Home page and the Sticky threads are good sources of information as well.

Best of luck!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Linuxter


Guru

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Hi Marjorie,

Wishing you a Warm Welcome to the forum!

Everyone here is either about to go on Tx, on Tx or reached SVR.

Here's a List of Abbreviations used on this site in case you need it.

Lots of wonderful people here, you'll find everyone here helpful and friendly, you came to the right place.

I'm on treatment now, it's natural to be nervous but you'll do just fine, I promise.

Ask away if you have questions and there is a Search feature @ the middle of Top Bar.

Others will be along shortly to say hi and welcome you.

How wonderful that you are starting your meds, we'll be here every step of the way so not to worry.

 

Dave

 



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Shadowfax


Guru

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Posts: 681
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Welcome to the forum MarjorieJean91

You have found the right place filled with friends that understand and will answer all questions possible.

I started Harvoni 14 days ago. I was beyond nervous because I am very sensitive to medications so expected many side effects.

Here is the part where you get a sigh of relief. It really has been no problem. Minor fatigue and probably two days I felt really tired so I just took it easy. The thing you will hear all the time here is Drink lots of water. Strive for 3 liters a day or approx. 12 cups. That is really important to keep yourself feeling good. Keep hydrated and you can even see that on their site. Try to not worry. I worried for nothing but don't we all?

Once again, welcome.

Cheers

 

P.S. Great news to hear your son was not infected.

 

 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
MarjorieJean91


Newbie

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Posts: 4
Date:
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Okay... Well. I am 24 and I have had Hep C since I was born. My biological mother was a heavy drug user and told me when I was young that I may have Hep C because of a blood transfusion done when she gave birth to me. I knew it was bologna when I was a kid. I found out for a fact when I was 18. I have a two year old son (9-12-13) and he DOES NOT have Hep C. I am so beyond lucky to have not placed horrible burden on my son! HE is so blessed!! Ive never felt what it is like to live without Hep C. I  CANT WAIT!! I start my treatment today with Harvoni, 90mg. I am really nervous to start because I do not know what to expect. My parents (foster) are so happy for me and there are a few friends I have told but I dont know anyone else with Hep C... 



__________________

24 YO, Genotype 1A, no cirrhosis, Dx (Birth) 1991 HCV

T#1- 24 weeks Harvoni SOT 1-22-2016

 
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