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Post Info TOPIC: Just got viral load and genotype test results
robertsamx


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RE: Just got viral load and genotype test results
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Hi Tom

   Good to see your approved for Harvoni . I hope you get the 12 week. 1a is a little stubborn   and needs more time in the fire. See you over on the Harvoni train soon.  RC



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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
wendyo


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Fabulous news Tom, you are on our way. We are here for you as you begin the dragon slaying! 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Sydhanrahan


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Hi Tom,

truly exciting news after a bumpy and exasperating lead up. 

I so hope that treatment will begin soon and that it will be an uneventful but fruitful journey.

Congratulations,

Syd



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Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
JimmyK


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keesotom wrote:

Typo- yes-or I just did not remember. BUT MY INSURANCE HAS APPROVED TREATMENTsmile I will find out more soon as to the duration etc.

 That is GREAT NEWS! As a 1a/b you are going to do great! Lot of options.

 

Jimmy



-- Edited by JimmyK on Tuesday 3rd of May 2016 04:29:45 PM

__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
keesotom


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Typo- yes-or I just did not remember. BUT MY INSURANCE HAS APPROVED TREATMENTsmile I will find out more soon as to the duration etc.



__________________

I believe I contracted Hep C in '82- shared dirty needle with a prostitute.

have been diagnosed(  2000) genotype 1b I believe. most recently: alt 47, ast 45, viral load 16,200( 'too low to genotype') Having fibroscan Aprill 11th
JimmyK


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keesotom wrote:

 Turns out I was re tested in 2013 and am 1a.

 Hang in there Tom. Based on the above, is your sig line a typo?

Thanks!

 

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Tig


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Keep us informed Tom. If Independant Health is a different provider, it's an indication that they didn't access your previous providers records. The HIPPA laws usually don't prevent different insurance providers from sharing, but there are exceptions and you may fall under one of them. I'm a big proponent of keeping copies of all records, as you did, so that information is readily available when situations like this arise.

Good luck on the reply. The denials are starting to lessen, but if that happens again, don't hesitate to appeal and get your doctor involved in it. There are avenues that can be traveled if it happens again. Stay in touch...



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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keesotom


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I got a call Thursday from Independant Health stating that my pre-approval for Harvoni was denied because they were unable to genotype using my blood sample. Wanted me to come back for new blood draw- I suggested they check their records. Turns out I was re tested in 2013 and am 1a. That info/result was faxed to the insurers. I am patient...



__________________

I believe I contracted Hep C in '82- shared dirty needle with a prostitute.

have been diagnosed(  2000) genotype 1b I believe. most recently: alt 47, ast 45, viral load 16,200( 'too low to genotype') Having fibroscan Aprill 11th
Sydhanrahan


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Hi Tom, 

thats great news. With a low viral load and no cirrhosis, Harvoni should knock it on the head. ( I hope you get 12 weeks.)

syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
wendyo


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Glad you got the results Tom and that they are moving forward with getting the approval for Harvoni. Hopefully the approval process goes smooth and you will be on the train soon!



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
keesotom


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Went well, Do have a fibrosis score of 0.61, fibrosis stage F3.

 

They are putting me in for Harvoni approval, unsure yet weather it be 8 or 12 weeks



__________________

I believe I contracted Hep C in '82- shared dirty needle with a prostitute.

have been diagnosed(  2000) genotype 1b I believe. most recently: alt 47, ast 45, viral load 16,200( 'too low to genotype') Having fibroscan Aprill 11th
Sydhanrahan


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Hi Tom, 

not sure where you are posting but wondering how you went at liver appointment? It's the 12th here so maybe it's only happening now in your world.

Anyway hoping that you got some answers that you wanted to hear. 

Share then when you can.

Syd



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Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
wmlj1960


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 Hello Tom.
 I'm very sorry to hear about your wife. I'm betting with Wendy that she's at the big meeting in the sky.
 I too am a recovering alkie/junky and we have more around here so you are not alone. I'm thinking a fibrosis test result will have more influence than viral load when the insurance determines your elgibility but with the lab results you have I doubt you'll get any surprises when they do your ultrasound. Your liver may be too healthy for you to get approved but that's a good thing. We've seen several of our members turned down, then approved after persistent attempts / appeals etc. so be a squeaky wheel. They'll give you some grease sooner or later.  Welcome to the forum. Make yourself at home. You'll find lots of helpful information and great support here. smile



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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keesotom


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I wish it were April 11th !!cry  Unsure what the very low viral load will mean as to treatment. 16200 =probally too low for insurance to accept



__________________

I believe I contracted Hep C in '82- shared dirty needle with a prostitute.

have been diagnosed(  2000) genotype 1b I believe. most recently: alt 47, ast 45, viral load 16,200( 'too low to genotype') Having fibroscan Aprill 11th
keesotom


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Thank you and Wendy !!  Yea I will know more on April 11th... I am seeing a highly respected specialist now. Will have an ultrasound before visit. I was tested about 15 yrs ago and was type 1(not sure a or b). 2 yrs ago my alt and ast were in the 70s; now 47 and 45 I believe. Not a veteran but on medicare. I am sure my doctor knows the treatment allowances (per viral load and liver damage). I will keep you posted. Interestingly enough since I started changing my mental(and spiritual) outlook via lexapro and N.A. my blood pressure has gone from consistantly high to a very nice normal. 



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I believe I contracted Hep C in '82- shared dirty needle with a prostitute.

have been diagnosed(  2000) genotype 1b I believe. most recently: alt 47, ast 45, viral load 16,200( 'too low to genotype') Having fibroscan Aprill 11th
Tig


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Hi Tom,

Welcome to the forum! I'm glad you're with us and hope to see you get started on treatment.

I'm sorry that you lost your wife to this disease, and am glad that treatments have improved to such a degree that we are seeing incredibly effective results. Hopefully we will see an end to ESLD as a result of HCV sooner than later and I believe that will happen.

When you can get the tests repeated by a Hepatologist or Gastroenterologist, you will have a much clearer idea of where you stand. An accurate determination of your genotype and level of fibrosis is very important. Your viral load isn't significant when calculating treatment success. If your viral load is 16,200, it's quite low and may qualify you for the 8 week Harvoni protocol. You do have to meet certain requirements to obtain authorization from most insurance carriers however. If you are a US Veteran, the VA is now providing treatment on request for all Vets.

Let us know what you find out. If you have any questions, feel free to ask. Here is a link to some info on the viral load testing. Good luck....

http://hcvadvocate.org/hepatitis/factsheets_pdf/viralload.pdf



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
wendyo


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Hi Tom,

Glad you found us here. And I too am sorry to hear about your wife. Glad you both found recovery and I bet she is at the big meeting in the sky. (recovering alkie and heroin addict here) 

big hug,

wendy

 

 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
keesotom


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Thank-you Jimmy. Many people missed my wife. She had a huge heart and pretty much all she did was help people( family counselor and drug and alcohol counselor) She had been a raging alcoholic and a junkie- but had over 20 yrs clean and sober upon her death.



__________________

I believe I contracted Hep C in '82- shared dirty needle with a prostitute.

have been diagnosed(  2000) genotype 1b I believe. most recently: alt 47, ast 45, viral load 16,200( 'too low to genotype') Having fibroscan Aprill 11th
keesotom


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ok 2 more results... Aspartine Aminotran- 44

Alanine Aminotran- 51

My wife had a differant genotype. I believe I acquired hepC in 82 sharing a needle.

I am drugfree now.

__________________

I believe I contracted Hep C in '82- shared dirty needle with a prostitute.

have been diagnosed(  2000) genotype 1b I believe. most recently: alt 47, ast 45, viral load 16,200( 'too low to genotype') Having fibroscan Aprill 11th
JimmyK


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Greetings Tom and Welcome.

First and foremost I am sorry about losing your wife to this Dragon. You have my deepest condolences.

Buffalo is such a beautiful place. I was there only once, Feb of 2009. Unfortunately it was in the capacity of assisting in a tragic incident regarding a Plane that went down.

Viral Loads fluctuate daily. You really won't know until you retest.

To be honest without a Geno-type and a situation where the VL is that low, it may be difficult to be accepted.  HCV RNA 10^4 IU/mL is the general rule of thumb for any of the trials out there. Now if you ask me the numerical equivalent to
10^4 IU/mL you will quickly note my mind was elsewhere during math.

Someone else here will chime in I am sure but I have no experience with number that low. I packed on better than 300k between two tests when I failed.

 

Again, Welcome!

 

JimmyK

 



-- Edited by JimmyK on Tuesday 22nd of March 2016 10:22:27 PM

__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
keesotom


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Hi My name is Tom, I am 61. I live in Buffalo, NY. My wife had hep c and went through 3 (unsuccesful) treatments in the late 90s- early 2000s. She died of liver cancer in 2004. I  was diagnosed with hepc in 2000; I believe type 1.

 

Anyhow with the advent of new treatments I have decided to move forward. Just got these lab results:

 

On 1st test: " Unable to genotype, HCA RNA was not amplified. HCA viral load is too low."

On Viral load: "HEp C pcr quantitation- viral load: 16200

I go back to my Dr. April 11th, so I am sure he will answer my questions, but I cannot help to wonder what are the implications of these results, especially that with such low readings -will I be denied treatment for Harvoni ?. I am assuming these results are good news.

 

Thanks in advance for any help etc,

Tom Williams



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I believe I contracted Hep C in '82- shared dirty needle with a prostitute.

have been diagnosed(  2000) genotype 1b I believe. most recently: alt 47, ast 45, viral load 16,200( 'too low to genotype') Having fibroscan Aprill 11th
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