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Hep C Discussion Forum -> New Members Area -> Louisiana newbie.
Post Info TOPIC: Louisiana newbie.
Linuxter


Guru

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Posts: 1515
Date:
RE: Louisiana newbie.
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Hi Howard,

I don't believe I've said hi yet, Welcome to the forum, we're glad you're here! Sounds like you're doing some wonderful work with the community, it's nice that you do it and wonderful that you get to Enjoy doing it. smile

You've definitely come to the right place, lots of great people and excellent resources to learn whatever you want/ need about HCV.

Wishing you well and be seeing you around ... again, Welcome to the forum!

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Sydhanrahan


Guru

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Posts: 552
Date:
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Hi Howard,

that must have come as a shock in February. I do hope your treatment is symptom free and successful. I am Genome type 2 as well and contracted Hep C in 1970. It's had a long time to do damage to both of us. As Tig says though, caught in time, it is one of the easier genome types to treat. Your work sounds fantastic - it must give you a lot of satisfaction. 

Mike - I didn't realise that your liver was in such a bad state and has improved so much - makes me feel hopeful.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
NRA4ever


Veteran Member

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Posts: 51
Date:
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Thanks for the replies. It looks like I found the site I need. I grew up on a farm so keeping hydrated is normal for me. My favorite drink ice water. The water system where I live has the best tasting well water you could want. I get it from my fridge so its filtered in it. This site has what I wanted. Actual HCV positive members & how they cope with it. I didn't know I had it till the first of Feb. I will get all the info I can at my next treatment. I hope to learn enough about HVC to help others so I can give back. I build handicap ramps for people who can't afford to pay a contractor. If they can afford the material that's all it cost. If they can't my church will supply it. I had a good life as a contractor. It's time for me to give back. I get a great feeling doing these things for my friends in our community. My dad was in a wheelchair for 40 years. I know the issues caused by loosing your ability to walk

__________________

HVC positive since 1967 cirrhosis also

AbbVie M14-172 study member week 3

 Geno type 1

HVC Free after Abbvie ABT 493 ABT 530 treatment
Pablito


Senior Member

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Posts: 363
Date:
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Hi Howard

Welcome to forum and well done to you for getting on to a trial so quickly.  I've been reading about the Abbvie trials...they sound very promising and you should be feeling confident.

What about NS4A as a moniker?  It's kind of appropriate given the trial you are on, don't you think?

Pablo



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
wendyo


Guru

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Posts: 1031
Date:
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Looking forward to learning more about your treatment and how you are doing on it Howard. Welcome and please keep us posted. That's what we do here, support, encourage, laugh and cry together. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Cinnamon Girl


Guru

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Posts: 5629
Date:
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Hi and welcome, Howard!

Thanks for introducing yourself to us here, and I see you`ve already found our `Clinical Trial Participants` area.  Please feel free to start a new thread in that section to post your updates, or use an existing thread as you have been doing.

You should indeed expect to do very well in this trial, these are very effective drugs and your chances of achieving SRV are excellent!

This is a very friendly and supportive group, so don`t hesitate to ask if you have any questions and someone will always try to help. 

Please do keep us updated on your progress, and best of luck!  smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
RAGDOLL


Senior Member

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Posts: 123
Date:
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Welcome to the forum family Howard, and congratulations on being able to participate in a clinical trail.   I was blessed with an ABBVIE trial and it was successful with no real side affects.  Maybe a few headaches from time to time.  They key to all these treatments is to stay hydrated... Which we are suppose to do anyway.  Thanks for joining this group and please keep us posted along your journey.  Best Wishes.  Chris



__________________

F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!
JimmyK


Guru

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Posts: 1839
Date:
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Greetings and welcome to The Family.

I am a neighbor to the left in Houston.

How bout that rain yesterday? Man we got creamed here...again.

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
wmlj1960


Moderator

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Posts: 1559
Date:
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 Hello Howard and welcome to the forum. We have a very knowledgeable and supportive group here and we'll do our best to help you during your treatment and afterward you can stick around and pass it on. ABT-493 ABT-530 is new and we only have a couple of other members on this forum who are also on it so we'll be very interested in following your progress. We have found that staying adequately hydrated with at least 1 gallon of good water daily helps tremendously in keeping side effects from the medicine manageable with all drug regimens. We have other cirrhotic members who are in the regression progress and no longer classed as cirrhotic. I myself have improved from decompensated cirrhosis to "Mild chronic appearing liver cirrhosis" according to the 'final report' from my last MRI in February. So stay compliant with your medicine schedule, take care of your body with a reasonably healthy diet, give your body the rest it needs and expect good things for your future.
 Some of the medical abbreviations you'll be seeing here are unique to this forum so, if you're like I was when I first got here and need definitions, a list can be found by clicking on the following link:

Forum abbreviations

We wish you well with your treatment and look forward to celebrating your SVR in the near future. Enjoy the ride! smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Loopy Lisa


Guru

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Posts: 895
Date:
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Hi NR4,

That is great news you are treating, not so great that you have to! There are all walks of life here, with mono to co-infected HCV survivors, with different modes of becoming infected. We have one thing in common, we either strive to cure, or have cured. It's a very supportive group with no question being silly. A lot of people have taken the time to learn about HCV on a deep level, understand the labs, and even though cured, hang around to help us folk that haven't completed our journeys. Congratulations on getting your treatment! I look forward to reading your SVR. :D

 

 



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Tig


Admin

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Posts: 9270
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Welcome from me again! I'm glad you're with us. You should do very well on this trial. It's way too early for you to actually start feeling improvements. Your trial addresses this combo in action against HCV and in Child Pugh Class A cirrhosis. At least that's what I've read from the articles related to Expedition 1. That is an early stage cirrhosis, with generally good outcomes following SVR. If you are genotype 2, that's one of the easier geno's to beat, but left untreated, it's just as bad as the rest. I think you should continue to have high hopes for a cure. This is a great time for treatment, easier and very effective.

Hang around, we've got some great people here and you'll be meeting most of them over the next day or two! We get along great, help each other and treat one another like family. So read up and if you have any questions, please ask. Good luck!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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NRA4ever


Veteran Member

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Posts: 51
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Hello! I'm new to the site & to HVC. I learned I had Hep C in Feb. I'm just finished my third week in a ABT-493 ABT-530 study. I take 3 pills a day. I have not noticed any improvement yet but I have high hopes that I will be cured. I think I am geno2 with cirrhosis. The doctors think I may have been infected in 1967 from a blood transfusion. I get blood drawn every visit & a drug test. I will get more info on my condition & type on my next visit.



__________________

HVC positive since 1967 cirrhosis also

AbbVie M14-172 study member week 3

 Geno type 1

HVC Free after Abbvie ABT 493 ABT 530 treatment
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