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Post Info TOPIC: Unsafe medical procedures, not risky business
mallani


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RE: Unsafe medical procedures, not risky business
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From my research, HCV was mainly transmitted to the Western World after WW2, when soldiers returned to Europe, UK and USA (and Australasia). They had acquired the virus in various '3rd' World countries during the war.

After this period, many infections were caused by unscreened blood or blood products.

The rise in IV drug use in the 1960's-70's added to the pool, together with airgun vaccines for the Vietnam War etc.

Before the HCV test in 1990, most cases of Non-A, Non-B Hepatitis were almost certainly due to HCV.

It really doesn't matter. There is no stigma, so ignore those who try to think there is one.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Pablito


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Like Jimmy, I know how I got it.  But as Tig and others say: who cares how we caught this awful illness?

Stigma set back HCV treatment at least 10 years. 

I was first referred to a hepatologist 1 month after sero-converting, but it took some 10 years to get my first treatment.

Today, there's talk of treating people with acute hepatitis.

Pablo

PS - the fact that auto-correct tries to convert "hepatologist" to "herpetologist" each time I type it really bugs me!!!!



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44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
Loopy Lisa


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I found out through an IVF procedure, he did ask if I had done drugs, but wasn't accusing me. My only thoughts were is my husband OK...

He did say it was curable, so I forgave him. :)



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
wendyo


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Ditto Jimmy.

nuff said. 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
dharmabum


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Hey Tig,

My first Hepatologist also played the blame game and embarassed me in front of his entire staff.  As I fled,  he pursued me down the hall and out of the front door like Ahab after the great white whale.  He had some type of agenda that had nothing to do with me.  Hopefully, I will never lay eyes on him again.



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16
JimmyK


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My case is quite simple.

I earned my negative stigma.

With the help of God, I overcame it and will overcome this.

Next?

wink



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Cheddy


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Amen.  I have had the pleasure of taking plenty of risks in my life, but the most likely one to result in acquiring HCV is that I used my first aid training to help anyone who ever needed it.  This included bloody car crashes, deliveries, or just a friend with cuts and scrapes.  It doesn't matter!  Let's help to make that be a part of public awareness and get on with the business of making the world a healthier and less random place to be.  Geez folks.  It's not about blame.  It's about recovery.  Let's do it!



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
Tig


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I don't think they (medical scholars) can put their finger on any single explanation, but a myriad of them. As this article and the associated references with it show, it's something we as patients and advocates have known for decades. We either know what caused our infection or we don't. There is an exception to that somewhat ambiguous statement though. We do know what we didn't do to get it. I was badgered and stared at for what seemed like an hour with my first Hepatologist. He was one of those doctors that was convinced that you either got it by transfusion or IV drug use. He refused to listen to my history, he had made up his mind. What he failed to grasp was that it doesn't matter and badgering after the fact only served to alienate doctor and patient. I left his practice after failing round one.

The goal should be to encourage testing and treat the disease upon the initial diagnosis. Take the history and physical, then, if there is another condition or problem brought to the table, then address it, but trying to squeeze an answer out of a patient to suit a false narrative, is wrong. I'm glad to see there have been great strides made to improve the narrative...

Thanks for the link Joann smile



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Linuxter


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Interesting read ... thanks for the link Joann smile

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
dharmabum


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This study addresses the likely reasons that baby boomers came to be at such high risk for Hep C infection.  Quick read...

 

http://www.hepatitiscentral.com/news/new-study-debunks-negative-hep-c-stigma/?eml=hepcen249



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16
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