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Post Info TOPIC: New sufferer from side effects!
Katya


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New sufferer from side effects!
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JimmyK wrote:

 

Hello Jimmy,I live 5 min  to this hotelsmile

 

 

 

 

 



-- Edited by JimmyK on Friday 19th of August 2016 01:16:04 PM

 



-- Edited by Katya on Friday 19th of August 2016 01:33:26 PM

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52-F, vl-5616251*,ALT before treat. 122H*,(30.06.2016)-18 H*AST-131H*,15.08.2016 -28 H*.Sob.-Dak.-Rebetol.
Katya


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Thank you!
 

Lisa,Thank you for your story!smile



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52-F, vl-5616251*,ALT before treat. 122H*,(30.06.2016)-18 H*AST-131H*,15.08.2016 -28 H*.Sob.-Dak.-Rebetol.
JimmyK


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Hello Katya,

Over the years I spent many a week at The Carlton there on the beach right next to the Hilton. Made some 40 trips in 10 years. Beautiful Country.

JimmyK

 



-- Edited by JimmyK on Friday 19th of August 2016 01:16:04 PM

__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Katya


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hanks for the support,Guru!

Your doctor at east admitted there was not a single patient without side effects for Riba...

 

The good news from me!smile

Yesterday start therapy with sovaldi and daklinza after a month break.

Today was in the pool,  swim 500 meters!

At night I slept badly,but regardless of that  i  do lot of work and swam!

PS.Again the water is finish, the day before yesterday bought a package of water 6 bottlesmile

 



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52-F, vl-5616251*,ALT before treat. 122H*,(30.06.2016)-18 H*AST-131H*,15.08.2016 -28 H*.Sob.-Dak.-Rebetol.
Loopy Lisa


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Hi katya,

Welcome to the forum. I am also a G3, and failed old treatment Riba/Interferon due to riba intolerance. I never experienced the skin problems, but I did have anemia which became too much. I am now on the new DDA combo Sofosbuvir and Daklizina. It works a treat and only for about 11 days I had mild flu like sides. I am also a small woman and normally sensitive to medications. I can honestly say I am sailing through it and I have no doubts you will too. Doctors don't take these medications so they don't really know other than patient feedback. Mine had a good batch of Ok and not Ok on Riba, so it is really individual on these medications. On the new DDA's she's had not one single patient with problems for geno 3 without riba. Welcome aboard the treatment train. :D



-- Edited by Loopy Lisa on Friday 19th of August 2016 04:09:18 AM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
JimmyK


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Hello,

 

Doctors tend to take the studies and that is it. We have the real life experience and pass them on to the friends.

Water on these drugs is 3 to 4 liters a day minimum.

All our best to you.

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Katya


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Greetings to all smile ! 

Thank you responded!

The doctor did not tell me about that during therapy need to avoid the sun..

Only when  I started reading forums I find out  reviews of people and their reaction to the sun.

Before therapy I asked the doctor " What side effects can I expect?"

Her answer was "no"

Also  read this forum I see that many people were not prepared for this side effect.

I do not understand why doctors do not warn us about these terrible side effects.

I read annotation about ribavirin but there was a list of which can be a standard to many drugs.

 

Why the doctor don't  advised me not to drink plenty of water?

 

I lucky i like to drink a lot and I drink a lot of water in generaly)

By the way -how much water should you drink a day?

My height 5.5 and I weigh 121 

Thanks to all forum users have a very good mood at me I feel better)

 

 

 

 



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52-F, vl-5616251*,ALT before treat. 122H*,(30.06.2016)-18 H*AST-131H*,15.08.2016 -28 H*.Sob.-Dak.-Rebetol.
JimmyK


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Greetings.

Only because of your beautiful Avatar and the fact you mentioned swimming, I would like to mention in passing, Ribavirin plus Direct Sunshine do not mix.

Exposing your skin to direct sunlight while on Ribavirin can lead to some of the problems you are speaking about.

Again I am only mentioning this because you may not be aware.

 

Regards

JimmyK

 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
robertsamx


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Welcome Katya to the forum. This is a great place to ask questions about hepc treatments and side effects . The triple drug treatment you are on is correct for your geno type, and 60 mg dak should be correct.  Being that you are a type 3, you should discuss with your doctor the possibility of just reducing your RIBA and then see how you do with a lower dose . Wishing you the best of luck!!  RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Cinnamon Girl


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Hello Katya, welcome from me too! 

Thanks for sharing your story with us, I`m very sorry you had such a difficult time with this treatment.  It seems that you had a very bad reaction to the ribavirin.   Some people just cannot tolerate this drug, you are not alone!  We have had others on this forum who have had to stop their treatment because the side effects were too severe. 

As others have said, it does take quite a while for the ribavirin to completely leave your body so do not despair, just be patient and you should start to feel much better soon.

From the results you have given us, you were responding very well to the treatment, even though you were given the wrong dose of Daklinza!  And  I`m sure that next time you will be able to clear the Hep C virus completely, but without the nasty side effects from ribavirin! 

I`m glad you found us and I wish you the best of luck!  smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Katya


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Thanks to my virtual friends! Touched to tears!

I will make a visit to the doctor and rewrite all my blood result.

All that I remember that after 3 weeks of treatment my viral load dropped from 3500000 13 if I am not mistaken and ALT and AST from -160 back to normal)

And it was however the doctor made a mistake-instead of prescribe me daklinza 60 mg. she is prescribe 30 mgsmile

 Everybody have a nice day ! 



__________________

52-F, vl-5616251*,ALT before treat. 122H*,(30.06.2016)-18 H*AST-131H*,15.08.2016 -28 H*.Sob.-Dak.-Rebetol.
Shadowfax


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Hello from Canada Katya,

We are glad you found this forum. You will get to interact with many who know what you are going through and be able to help by suggesting diets and such that have proven to be helpful to them in the past.

Getting onto a new protocol without Ribavirin I am certain will help your bad side effects so much based on many others who have taken that drug.

Please keep us posted and don't give up the good fight as the prize is waiting for you at the end of it.

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Tig


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Hello,

Since you were only on Ribavirin for about a month, you should start feeling better soon if that's what has caused all of your side effects. It can take several months to clear it from your system, but the less time you have been on it the better.

Can you click the red link in my signature line? That will help you fill out your signature and provide you some of the abbreviations used here. If you would add some information, such as lab tests, ALT and AST, Fibrosis and viral load results. Add your genotype 3 and your treatment program (Sov/Dac/Riba) to it too. That will help us respond to your posts better. You can see what many of us have done. 

They can treat you without Ribavirin if necessary, but it depends on more information than you provided so far. Ribavirin can cause some miserable side effects, no doubt about that.  Your doctors will be your guide. When will that decision be made? Let us know.  Stay in touch.



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Katya


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Thanks for the support!

Gepatologist said that it is possible treatment without ribavirin....

But when side effects will leave me?

I'm not a tedious  but I was not ready for such a hellyawn

 



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52-F, vl-5616251*,ALT before treat. 122H*,(30.06.2016)-18 H*AST-131H*,15.08.2016 -28 H*.Sob.-Dak.-Rebetol.
Tig


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Hi Katya,

Welcome to the forum! 

You were on a very good protocol, but I'm sorry you had a reaction like that. Are you allergic to one of the drugs? The Ribavirin will cause many of the reactions you spoke of. Definitely will cause itching and skin problems. 

You will be more comfortable on a different treatment without Ribavirin. There are a few great things available, I'm not sure if Israel has approved Epclua w/wo Vox yet. It should be soon if not already. Depending on your fibrosis stage, you may be able to reduce the length of treatment in half.

If you need help getting around, just let us know. The Search function is at the top, it will direct you to discussions we've had here. You can access anything using that menu bar.

I'm glad you're here!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Katya


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Hello everybody!

cry

Hepatitis C genotype 3Discovered in 1996Treatment beginning in early June of this year.

protocol 24 week -2 tablets ribavirin and one tablet daklinza in the morning  and 2-2 tablets ribavirin and one tabletsovaldi evening.

A month ago I had to interrupt treatment hmm because it started intolerable itching, not help any antihistamines.

I got to the emergency room.

 Helped me just prednisolone what I took 40 mg for 5 days.

Then I suffered from side effects that cancel prednizogna thank God it was not so longNone of the doctors could not understand what kind of medication is giving me such an itch.

I todecided to find my own and found that itching gives me when I eat sweetwhich was never previously.

I could eat 5 ice cream  per day for all my life and nothing was  happened.

Anyway itching has stoppedthe doctor prescribed me  Elcom and NeritedermI have just in case))

Today I even dye  my head that did and !I was not itching

But two days ago came another problemvery strong weakness and drowsinessand severe pain in the lower back and the whole body bone(((((

I even decided today to go to swimming pool thinking that this will facilitate my suffering.

I swam 400 meters but it did not help me((

I take pills Artofen 400 mg butthe pain is not reduced.

 Especially painfully when ilid,body breaks down like a drug addict...

I drink a lot of water to  kick away toxic from my body.

My gepatologist don't said that  will be such  a horrible side effects!

I became disabled.

Thank i  found this forum and have the support here is that I'm not alone.

 have to start treatment again but without ribavirin.

Thank you for listening,Katya.



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52-F, vl-5616251*,ALT before treat. 122H*,(30.06.2016)-18 H*AST-131H*,15.08.2016 -28 H*.Sob.-Dak.-Rebetol.
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