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Hep C Discussion Forum -> New Members Area -> Waiting at the starting gate
Post Info TOPIC: Waiting at the starting gate
Shadowfax


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RE: Waiting at the starting gate
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I concur that Epclusa is the way to go. It won't be long and your patience and attitude is great.

RC, Your day will come and we are all waiting for it as well.

 

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
robertsamx


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Hi Ruby- just about 3 months ago your treatment plan was Sof-Dac or Sof-Riba

Now your talking about treatment with Epclusa, what a difference 3 months can make.  You are SOOO much better off with Epclusa.  It's the bomb on GT-2.  I can't wait until you get your Epclusa. I feel like I'm going to be on treatment with you.   My day will come!   RC



__________________

 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Ruby Red


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smile JimmyK ...you got it! smile



__________________

GT2 Diagnosed in 2007 vl 1.88E+1;

2010 vl 9.15E+5 Peg/Riba 2010 24wks: replicated

2014 vl 4.22E+6

2015-03-05 vl 1.53E+6

2016 Fibroscan F4 22.0

Waiting treatment/ On treatment: 14/09/16 Epclusa

10/06/16Fibroscan F4 22.0

Aug/16 ALT 72/ AST 50

On treatment; Epclusa: 4 week VL results: UNDETECTED  (ALT:26)

 
Sydhanrahan


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Hi Ruby Red,

love your attitude and am sure this wait is going to end well.

you deserve it.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Bills


Guru

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That is a very impressive sword.  You got it all going for you

By what I'm seeing here Epclusa looking good too,

Good luck Ruby  your positive thinking and attitude will double the strength every swing you take

Bill S



__________________

Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Ruby Red


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Tig, I'm ready, believe me I am ready!  smile

I will be very surprised if I am not approved for Epclusa because it's almost 1/2 the cost of the sov/dak and that's what the insurance companies bottom line is...in my opinion.

I'm not thinking "maybe's, "they could" or any of the mediocre statements lol I am standing that I will be approved lol

I feel we simply must get our minds healthy in preparation as well as our bodies.  Positive talk, positive thinking pray.gif



__________________

GT2 Diagnosed in 2007 vl 1.88E+1;

2010 vl 9.15E+5 Peg/Riba 2010 24wks: replicated

2014 vl 4.22E+6

2015-03-05 vl 1.53E+6

2016 Fibroscan F4 22.0

Waiting treatment/ On treatment: 14/09/16 Epclusa

10/06/16Fibroscan F4 22.0

Aug/16 ALT 72/ AST 50

On treatment; Epclusa: 4 week VL results: UNDETECTED  (ALT:26)

 
Phoenix17


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I am sorry to hear about your delay. no   Waiting is the worst! It will come though, and SVR will be in your near future. I am also waiting for approval for Epclusa. 

Keep the faith Ruby!



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Tig


Admin

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Hi Ruth,

Aw... I'm sorry you've been given the old delay speech. My suggestion? Call them and be a pest as often as the thought crosses your mind. Your doctor can also call them and give them what for! Let them know that you should be on the top of the list submitted 4 weeks ago! All it takes is one person to send it through. They can do it if they want to. Always be sweet though, they can't stand sweet! 

Keep your chin up. These delays and appeals are all part of the current game being paid by insurance carriers. The longer they hold onto their money, the more they make! Once you get your hands on the medication, the treatment will go by pretty smoothly. Might even be a let down! People have expected problems and ended up thinking the drugs weren't working. Zero side effects. It's incredible stuff! There are several very good treatments available right now and more coming. If you're going to have this disease, now is the best time ever to find out and get treated. Don't overthink it and don't let the treatment anxiety get to you. Just stay on top of them, give them a call and remind them you're waiting and waiting... They'll get the idea! Take care of yourself and get ready to slay a dragon!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Ruby Red


Senior Member

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JimmyK  I love the sword, what a sweet reminder of a battle won!



__________________

GT2 Diagnosed in 2007 vl 1.88E+1;

2010 vl 9.15E+5 Peg/Riba 2010 24wks: replicated

2014 vl 4.22E+6

2015-03-05 vl 1.53E+6

2016 Fibroscan F4 22.0

Waiting treatment/ On treatment: 14/09/16 Epclusa

10/06/16Fibroscan F4 22.0

Aug/16 ALT 72/ AST 50

On treatment; Epclusa: 4 week VL results: UNDETECTED  (ALT:26)

 
Ruby Red


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Posts: 126
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Thank you so very much for all of the positive news regarding Epclusa  :)  Helping me rid the ghosts of therapy past has reassured me that's exactly where they belong...in the past closed.gif

I am hoping to find out some information by the end of this week.  Apparently my insurance company is saying they did not receive any of the paperwork sent to them on August 18th which creates another delay, a delay they say will be four weeks.   They have stated they will put a "rush" on my request but we all know there are many waiting for approval for one medication or another and I am not foolish enough to think mine will be put on the top of the list.  I must be honest and say I was upset to hear "the ball was dropped" but I got myself together and will wait with hope the delay will not be that long.  I was all revved up ready to take another stand against the dragon, so when the therapy plan changed and now this delay, it was a bit discouraging to have to stand down from the battle....for now.  It would make my heart sing to bring in the new year "undetected"....and I will!!

I have to continue to believe that delays can be a blessing! Again thank you for the information about Epclusa, I will certainly check it out!

flowerpot.gif Ruth



__________________

GT2 Diagnosed in 2007 vl 1.88E+1;

2010 vl 9.15E+5 Peg/Riba 2010 24wks: replicated

2014 vl 4.22E+6

2015-03-05 vl 1.53E+6

2016 Fibroscan F4 22.0

Waiting treatment/ On treatment: 14/09/16 Epclusa

10/06/16Fibroscan F4 22.0

Aug/16 ALT 72/ AST 50

On treatment; Epclusa: 4 week VL results: UNDETECTED  (ALT:26)

 
Pablito


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Hi Ruby

I too did int/rib and it's so hard not to associate going through treatment again as something to worry about, but I finished Ecplupsa (and another drug called Vox) 12 weeks ago and it's a total walk in the park compared to int/rib...

....for example, if you had flu that would be ten times worse than the super-mild and short-lived sides from Eclupsa.

Sof/dac is a good combo but sof/vel (i.e. Ecplusa) has even better SVR rates so you've lucked out.

Pablo



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
JimmyK


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Hiya Ruby.

The best way to describe Epclusa is to say that is the sword you are holding in your PIC.

Now compare it to the one I just hung back on the wall. (Harvoni)

Bottom line. You got a bigger sword LOL.

 

JimmyK



Attachments
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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Tig


Admin

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Posts: 9270
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Hey Ruby,

As you can see, Canuck is rather excited about your chance to treat with Epclusa! That's because it works and works well. Never mind the fact that treatment time will be cut in half! I think you'll see a cost reduction as well. The insurance providers are excited about that too!

We have a lot of information here and the search function will help you find it. If you need assistance, let us know and we'll do our best to help. You're almost there!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Canuck


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Hi Ruby,

Welcome back again! I remember you well from your prior posts.

I am so glad to hear you can have the go head for sof/dac 24 weeks, but would be really glad if you have choice in treatment, i.e. possibe Epclusa.

I don't think I recalled you were Canadian tho, I just saw it now in your bio. 

I would be so sceamingly happy if some of us Canadian folk actually started getting Epclusa (SOF/VEL), by prescription, and not only by trial!!

Got my SOF/VEL/VOX, by trial (BC). webtomass and oombant also got theirs by trial in Canada. Pablito, by trial in UK. tkflex36 (Epclusa only) by US trial, Ivery in Alabama and CandaceV in Ohio got Epclusa (alone) by prescription! There a couple more in US trying to get it by prescription as well

If you search any of us by name you can see the threads/topics Epclusa people have started, most relate to SOF/VEL, but note many of us also received VOX in trials as a triple therapy.

Pablito and I posted quite a bit in "I'M IN! - Started the 8 week SOF/VEL/GS-9857 trial", under "Clinical Trial Participants" 

See also "GT3's and SOF/VEL trials", under "General Discussions".

I am so glad to see your post here and that you are so near to treatment now! smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Ruby Red


Senior Member

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Posts: 126
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It is so uplifting and encouraging  to read all the positive posts and the sharing of everyone's journey.  Thank you!

I haven't posted in a while because I was waiting for approval of Sol/Dak, which did happen on August 9th.  I was happy and a little anxious at the same time.  I believe the anxiety is a result of ghosts of treatment past (interferon/riba) but I'm working on that.

I'm on a bit of a delay....my Doc has suggested I try Epclusa since it has been released earlier than the expected date of Sept/16.  The Epclusa is a better way to go according to the stats considering my fibroscan. Of course I love the thought of being on treatment for 12 weeks with the Epclusa instead of 24 with Sol/Dak....who wouldn't  :)

So that's where I'm at :)  I'm hoping I will hear something tomorrow considering the insurance company has had all paperwork since August 17th.

I still believe in perfect timing and maybe because the wait for approval of the sol/dak took a little longer, means Epclusa will be my win.  

Any further info on Epclusa is very much welcomed

 



__________________

GT2 Diagnosed in 2007 vl 1.88E+1;

2010 vl 9.15E+5 Peg/Riba 2010 24wks: replicated

2014 vl 4.22E+6

2015-03-05 vl 1.53E+6

2016 Fibroscan F4 22.0

Waiting treatment/ On treatment: 14/09/16 Epclusa

10/06/16Fibroscan F4 22.0

Aug/16 ALT 72/ AST 50

On treatment; Epclusa: 4 week VL results: UNDETECTED  (ALT:26)

 
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