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Post Info TOPIC: fibroscan
Tiger


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RE: fibroscan
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Yes boss riba has made me moody as hell but not long now Abbvie 3d is a miracle drug saved me been tho a dark time,lucky me Vanessa and 3 young girls never got it sooo lucky.Was heroin user 20 odd years ago beat that as it almost took me away.Then hepc caught me cry 



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48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
Canuck


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Sorry Tiger,

Somehow I missed that - that you've been on riba as part of your 24 week treatment! Goodness! I just twigged now. Are you understating when you say you "have been moody"??!! Hope it has not been too bad for you! Only about 6 more weeks of it to finish!

I also missed seeing "ct", the first time round - that's very good, nice, that you got that too, in addition to the other tests and imaging. It is reassuring to have these tests done and to own a baseline of data you can always compare back to. Good work.  C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Tiger


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Hi they checked no HCC they say.Had us ct scan&mri scan.They are no longer checking AFP glad your wife is better,and hope your on the mend.

afp does worry me alot but like you say only slightly raised.guess they will scan me after treatment



-- Edited by Tiger on Monday 5th of September 2016 09:38:12 PM



-- Edited by Tiger on Monday 5th of September 2016 09:47:10 PM

__________________

48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
robertsamx


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Hi Tiger.     Looking at your numbers I'm interested in your AFP 42. Have your Doctors looked into that number? You being a F3-F4 they should be looking very closely at a MRI to see how things look inside your liver? You may want to ask about that!   Glad treatment is going fairly well for you, that Abbvie 3-D is great- It cured my wife!!    RC

                        NOTE: the AFP is just slightly elevated 



-- Edited by robertsamx on Monday 5th of September 2016 08:51:56 PM

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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Tiger


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Posts: 42
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Treatment is working well been moody while on itblankstare just under six weeks to go 



-- Edited by Tiger on Monday 5th of September 2016 05:35:23 PM

__________________

48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
Cinnamon Girl


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Thanks for filling in your signature details, Tiger, that`s very helpful information indeed and saves us asking you the same questions over again. 

I see you`ve written `EOT since week 4` though ... I think you meant to write`UND since week 4`... and congrats on that!  smile

(EOT = End of Treatment, UND = virus undetected) 

 

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tiger


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Posts: 42
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Cool beans thanks get down days but had big improvements toe pain is getting better.guess im lucky getting treatment sometimes every little ache and i think oh no.liver nurse seems to think liver can improve.

you are all good people



__________________

48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
Canuck


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Posts: 3249
Date:
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I would like to add that it is very good you have been able to get from your doc all of these assessment tests  - U/S, an MRI and a fibroscan - along with all your other bloodworks including the LFT's. All of those things, coupled TOGETHER with how long you have had HCV, and your symptoms, help to shape a fairly accurate "picture" (or medical guess) of where your liver is at. If you were to look at only this one fibroscan test alone, then generally, it is accepted that the higher your Fibroscan F score is (how hard your liver has tested) the higher the "probabilty"is of fibrosis and/or cirrhosis. Your one fibroscan test showed 15.1, which is over the F3 mark and into F4, which holds a higher "probability" of cirrhosis. The exact amount of damage your liver has sustained, is an "approximation, which has to based on and include all tests and factors.

In your favour, is your age, you are only 48, and you are being cured at a relatively young age, compared to many old folk here who have knowingly or unknowingly been packing HCV for 40 years or more!! 

Your liver health IS improving dramatically, as we speak, eradication of the offending virus, as indicated by your 4 week Und, the now normalized LFT's you mentioned, and perhaps as shown by the lessening of some of your symptoms, and, knowing that you have not been drinking for a year. The liver is an organ which (as well as kidneys, and some others, BTW), can show an amazing propensity for self-healing when coddled. Even after being quite insulted/damaged.

Yes, we have to do everything within our power to make our livers healthy again, treatment and healthy lifestyle is the very best things you can do, and you are doing it!

With repeated follow-up - repeated bloodworks, U/S's, MRI's, Fibroscans, I hope you will just continue to see improvements! I am betting you will see this!

Your foot/toes thing is interesting to me - what did your doc say about this?? You don't happen to have any other health conditions do you?

Ah, I now see your sig line and other entries! GGT was high, as was AFP, so good to know this, and to know you have quit drinking. Nice dramatic drops in your ALT, and your bilirubin! smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Tiger


Member

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Posts: 42
Date:
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Thanks find it hard for people to understand told a couple of people big mistake not going to let this hepc win.

hope to be a stronger person post treatment,



__________________

48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
Cinnamon Girl


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Yes I know, it isn`t easy giving up drinking, most of us here have been through the same thing  You`re not alone, Tiger, and we`re here to help and give you support along the way. 

It will get easier, just hang on there, you`re doing really well... smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tiger


Member

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Posts: 42
Date:
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Cool have had massive improvements already guess it will take time to heal more



__________________

48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
Tiger


Member

Status: Offline
Posts: 42
Date:
Permalink  
 

Thanks not going to lie its been hard but had no choice x



__________________

48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
Cinnamon Girl


Guru

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Posts: 5629
Date:
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Hello Tiger,

I`m so glad you`ve given up drinking beer, any alcohol at all is very destructive for your liver, and especially when you have cirrhosis.  Staying sober will give your liver the best possible chance to heal, so well done!  That`s something to be very proud of! 

Once the Hep C infection is gone, then the healing process will begin, and over time it`s very likely that the condition of your liver will improve.  We`ve seen this happen with many of our members here, along with many other improvements in symptoms and energy levels.  

Keep going, and good luck,  you`re well on your way to SVR!! 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tiger


Member

Status: Offline
Posts: 42
Date:
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okay shall do gave up beer almost a year now



-- Edited by Tiger on Monday 5th of September 2016 03:55:44 PM



-- Edited by Tiger on Monday 5th of September 2016 03:57:53 PM

__________________

48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
Tig


Admin

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Posts: 9270
Date:
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Hi Dave,

Can you do us a favor, please? Use the red link in my signature and set up your own signature line. It helps to have a reference when replying to your posts. Your treatment start date, type of treatment, genotype,, labs, etc., are very useful. You can see what we have done and provided. If you need assistance or ideas, let me know.

Sounds like you were experiencing some effects from your liver disease. I have no doubt that your liver will be in a much happier place once you achieve these goals. You'll get there!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Tiger


Member

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Posts: 42
Date:
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okay thanks for your reply was confessed as didnt show on scan,my belly is a little big but has gone down since on treatment they checked my for ascites no sign they say.fingers crossed liver can improve.get pain in my toes weird hope that goes.some days are worse then others..

__________________

48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
Tig


Admin

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Hello,

Both your Fibroscan and CAP scores are elevated and in my opinion indicate cirrhosis. With cirrhosis you either have it or you don't. There really is no such thing as mild cirrhosis. You can have compensated cirrhosis, where your liver continues to function but is suffering from higher degrees of fibrosis (F4-scarring). A decompensated liver infers ESLD (End Stage Liver Disease) and requires serious intervention. A patient with compensated cirrhosis may not even know there is a problem, where a decompensated cirrhotic is generally quite ill with possible ascites, encephalopathy and failing health, to name a few.

Cirrhosis is progressive in nature, but treatment to cure HCV will often stop disease (cirrhotic) progression and will set your liver on a path to healing and can even bring about fibrosis regression. You need to concentrate on a healthy diet and work to reduce the strain on your liver as a result of the fatty liver diagnosis. 

Fibroscan Scorecard

 



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Tiger


Member

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Posts: 42
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Hi got fibro scan score of 15.1 kpa cap 353 large fatty liver on US Ct scan mri scan does mean mild cirrhosis due to fibroscan ?



-- Edited by Tiger on Monday 5th of September 2016 01:33:17 PM

__________________

48 yrs David geno1a RNA 8.82 treatment started 29/04/16 Abbvie 3D&Ribavirin 24 weeks results at start of treatment,Large fatty liver Fibroscan 15.1 KPA,CAP353

ALT208,ALP74,billirbin20,GGT238,AFP43.

result at 16 weeks ALT20,ALP72,billirubin11. UND since week 4 

Caught hepc around 25 yrs ago
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