Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: For the Florida Friends


Moderator

Status: Offline
Posts: 795
Date:
RE: For the Florida Friends
Permalink  
 


Tig,  I saw in the chatbox that you and Jimmy are dealing with roofing repairs and more? It sounds like a lot of displacement for many and yes, it is hard to imagine the devastation.  What happened at your place?

Jimmy?  How about you?

 

We had wacky storms in the PNW last weekend but not the storm of the century that was predicted. 

We've slayed some dragons, but I've never built an ark.  I'll look into some relief efforts.

 

Thanks for the update.

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Hi Tig,

beautiful autumn colours. It's strange seeing the Northern hemisphere photos all autumnal while we are goggling over cherry blossoms and warm gentle winds. I was very jealous of you at the start of your spring, but we all get our time don't we? 

Lots of family stuff happening over here -  some good, some not so good at all , either ways I'm feeling a bit fragile at the moment. Where's that wonder cure I thought I had and what else could be the matter with these incredibly complex, increasingly aging bags of water we all hobble around in? 

Much love,

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.

Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi Cheddy,

I saw your request for an update, so here's what I know. We were lucky... many weren't cry The destruction is beyond most people's comprehension when you see it in person. We all see news shows about the damage, but when you witness buildings, cars and lives destroyed from natural disasters in person, it reminds you of our fragility. That's when faith, friends and family are our biggest blessings. They get us through the best and worst of times. The care and concern I received from everyone here is truly appreciated. 

There remains a lot to do before the people affected by this storm (and all others) will be able to put it behind them. Some will have problems for an unknown amount of time. We have to do what we can to help our Brothers and Sisters in need. We can donate time, money and prayers to them, they desperately need our help...

 



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 

Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi All,

Just catching up and want to thank you for your thoughts and concern. Mother Nature shows us regularly that she can be moody. I really prefer her good side, lol! The Fall colors and crisp, cool air were Heavenly smile



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

So glad you were able to enjoy your time away, Tig, despite such widespread hurricane damage.  Times spent with our families are very precious and especially an event as joyful as a wedding.   Thanks for sharing those beautiful Autumnal photos, those rich colours must have been a joy to see.

And yes, I agree with SF, always good to see you back here! 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

Those pics are amazing and frightening at the same time. 

The power of Mother Nature. I am glad you had the chance to get away and you are all safe.

It's always good to see you back posting.

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *

Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi Syd,

Thanks for the kind words. We're all safe, but have seen shortages of fuel, food, power and water interruptions. At least we have a roof over our head, many don't. Blessings abound when you look beyond the damage.

The wedding allowed us to get away briefly and spend time with those we care most for. It was a beautiful location with Fall colors galore. Being a Florida boy, we are subject to many shades of green and humid heat. I grew up in the Pacific Northwest with all the splendor of 4 seasons, so this was a nice reminder.

 



Attachments
__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Hi Tig,

so glad you and you family are safe. Looking at the severity of the erosion, it seems very lucky that there weren't more casualties. Is your house still on solid ground? Those huge chunks of road just gone like paths in a kids sand pit look absolutely terrifying. 

hoping it was a lovely wedding and took your mind of the damage nearer to home for a while.

Love Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Oh my. Pics worth a thousand words. Wow! cry C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Moderator

Status: Offline
Posts: 795
Date:
Permalink  
 

Geez Tig.  That's some reaaaally high water.  What a challenge.  The Pacific Northwest looks arid by that comparison.  I'm glad you and yours are safe.  Anything we can do?  No, really.

Thanks to all of our friends in the heavy weather zone for checking in.  It's quite a bond we've made, isn't it.

All the best!

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Senior Member

Status: Offline
Posts: 218
Date:
Permalink  
 

Scary! I am glad everyone is safe!



__________________


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Good to hear from you, Tig, so glad to know you and your loved ones are safe!

Thanks for the pics... wow, what dreadful damage, and yes, I`m sure it could have been a lot worse... but certainly bad enough for so many folks.

Thanks for checking in... make sure to keep you chin up, and your head above water.... smile 

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

HOLY DEEPWATER BATMAN! no



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."

Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Thanks Wendy and Jimmy, it's really a sight to behold. This was from the rain alone! It continues to worsen from sheet flow. This is a bridge close to us. Look at the before and after. 



Attachments
__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Yes thanks for checking in. The pictures are good. Man that water is a powerful force.

I hope your place fared well.

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks for the update Tig we were all hoping and praying for you and your family. Let us know how your place fared once your home and settled. Hope everyone enjoyed the wedding and you can fill us in on that too when you can. 

Take care of U,

wendy



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 

Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

The damage here in NC is terrible as well. Severe flooding, power is still out. Here's a few pictures of the road near my daughter's. Trees down everywhere. Could've been worse and we are grateful it wasn't. It has been a busy week for the family with a wedding, road trip and then back to South Florida to clean up another mess. I hope to be back on the forum with bells on next weekend! Thanks to everyone for your help and support. You're all number 1 in my book!



Attachments
__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Thanks for checking in Marjim. That "juicebar" is a pretty cool thing to do. wink

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



Veteran Member

Status: Offline
Posts: 58
Date:
Permalink  
 

We lost power for 2 days. Whole house generator  kicked in. Next door neighbor  ran a heavy-duty extension cord  across the yard so he could run his fridge. Set up a "juice bar" on our front porch so neighbors could recharge their phones.  Could have been  so much worse. 



__________________

Miriam

 

68 years old....Genotype  1a....did interferon/ ribaviron in 2002 (unsuccessful )....viral load before Harvoni 234,003.  Alt 30..fibrosis stage F2..  fibrosis score 0.48  ...started 12 week Harvoni 6/24/16. 

4 week bloodwork -undetected.  ALT 18, AST 20.

12 week bloodwork -undetected. 



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Great news Scruffy! Thanks!

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



Guru

Status: Offline
Posts: 500
Date:
Permalink  
 

Howdy

Hope all my fellow Floridians are ok. I live in Lake Worth I just took the storm shutters down :) I've been through much worse over the years. Thank God we didn't loose power. Last big one we were without power for 2 months that was my biggest fear.



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!

Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Good luck and stay safe everyone!!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Morning all,

Just some wind for me at this time, not much rain. Cannot say the same for the opposite coast. And Miriam you take care as he heads your way.



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Veteran Member

Status: Offline
Posts: 58
Date:
Permalink  
 

Stay safe all. We are in Myrtle Beach, sc. Have a whole house generator.  Will ride out the storm here..



__________________

Miriam

 

68 years old....Genotype  1a....did interferon/ ribaviron in 2002 (unsuccessful )....viral load before Harvoni 234,003.  Alt 30..fibrosis stage F2..  fibrosis score 0.48  ...started 12 week Harvoni 6/24/16. 

4 week bloodwork -undetected.  ALT 18, AST 20.

12 week bloodwork -undetected. 



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

By the time most folks see this it will have changed. But right now, the current off South Florida is almost acting as if there was an approaching tsunami.

The tide is fighting coming to shore.

http://www.earthcam.com/events/extremeweather/

I believe the storm surge will be pretty intense.

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Greetings,

Living here on The Gulf Coast, I have been studying Hurricanes for years. This one has some rather frightening possibilities.

From what I am seeing it could hug the coast just offshore, reach southern North Carolina, and then do a loop out to sea and double back and again cross the southern tip of Florida. Cross southern Florida and then back into The Gulf.

This is an incredibly serious storm. God Bless all.

 

JimmyK

 

 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks all. Just hoping Tig's house is ok I remember roof issue in the past. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Yes indeed, stay safe any of you in the Florida or surrounding areas.  As far as I`m aware Tig will be away from home long enough to miss the hurricane, and let`s hope everything`s calmed down by the time he`s back. 

Glad to hear you`re ok, Wendy, thanks for checking in.. take care! 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Moderator

Status: Offline
Posts: 795
Date:
Permalink  
 

Thanks Wendy. The trigger sounds bad enough.  Stay clear of the damage and stay dry. 

Tig was headed off to a wedding somewhere. Perhaps he'll stay away from home for a while?  I'm sure he'll give us a cyber shout.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

Please stay safe and please keep in touch as much as possible.

Waiting to hear  from Tig now ... Glad you are ok Wendy

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Thanks Wendy. It is great to hear from you.

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks all. 

I am on the other coast so I will see wind and rain not a direct hit thank God. We are already under a tropical storm watch. Praying for the folks of where this already has been and where its headed, as Syd said, Matthew looks like a nasty dude. I believe Tig is on the road, hoping not on the eastern shore! 

If you think of FL as a gun, with the panhandle the handle of the gun and south florida as the nose, I live where the trigger is. (to give you a visual and perspective) 

Keep you posted.

 

love ya,

wendy



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Wendy, Tig, 

keep safe. That Matthew's been one helluva guy. (Is he still called that when he gets to you?).

love you guys,

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.



Moderator

Status: Offline
Posts: 795
Date:
Permalink  
 

I second that.  Please update when you can and let us know what you are doing.

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

A rough night is at your door. Please keep us updated and know you are in our thoughts and prayers.

JimmyK

 



-- Edited by JimmyK on Wednesday 5th of October 2016 09:09:55 PM

__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."

Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.