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Post Info TOPIC: Cutaneous vasculitis/cryoglobulinemia (Warning: graphic)


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RE: Cutaneous vasculitis/cryoglobulinemia (Warning: graphic)
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Sorry this is happening to you. disbelief At least it's good to know that it's a temporary thing. I can't believe that someone who is supposed to know how to handle these things can be so stupid. Very frustrating!  frustrated.gif  Hang in there!



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Guru

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Oh Juliet (Diana)... those ulcers must be so sore, poor you!  hmm  I can`t believe how insensitive your dermatologist was to you, as if prescribing a sedative would help, how ridiculous!

Thankfully you`re on your tx now, and let`s hope that once you`ve cleared the virus you`ll soon start to see a big difference! 

Thanks from me too for being brave enough to post these photos, it can`t have been easy for you, and if I was with you I`d give you a big hug.

Try not to be despondent, and don`t forget we`re here for you any time...  smile

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 

Tig


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Hi Diana,

Goodness, that looks uncomfortable! That's my "Duh" statement of the day. I'm sorry you have to deal with that. You have nothing to be embarrassed about, especially here. If we could help, you know we would. Thank you for sharing this, it most certainly is a good example for us to refer to. I really hope you experience quick improvement with that once SVR has been achieved. I expect you will notice some very positive results!

Wish I could recommend a good dermatologist, lol! Sounds like yours could use a few pointers on bedside manner. When the improvements begin, show them the SVR report and point out they were never "pimples" and see what the response is then. Time to educate the educated...

Good luck smile



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Although it's a bit embarrasing to post these horrific photos of the ulcers on my face, this condition is not an uncommon complication of HCV. Yet there's not much info on the Internet about it. It's more common to see ulcers like this on the legs, but they can occur anywhere.

If you see any "moon craters" like this on your skin, it's a good idea to see your heptologist about it.

 



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HCV genotype 3b, started my 12 weeks of Sovaldi/Daklinza on 10/15/16.
Probably infected 1 - 2 years ago, viral load 800,000, fibrosis stage 0.

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