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Hep C Discussion Forum -> Living With Hep C -> True Meaning of a Cure
Post Info TOPIC: True Meaning of a Cure
Loopy Lisa


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RE: True Meaning of a Cure
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Jaggles wrote:

I'm waiting for epclusa...I'm desperate...reading the article did make me realise I am not alone in how ill I feel. Put my face on every day and people around me who know me, even family don't understand what's happening inside me foggy head , my vision, muscle pain, joints all ache, headaches...can't face interferon treatment....my heart goes out to you all and as for me...I have started to pray I will get that call saying I can start xxxxx

 I think we all felt that at points. In the end I really wasn't too bothered about it. I never had any real stigma, I'm lucky for that, most people know its curable these days. I felt fatigue a lot, and then started training (since fallen off that wagon) and never felt better in my life. I cut out refined foods and my guts were lovely. I let the festive season seduce me though and back to all the old complaints. I found that to combat fatigue I had to move. It seems an odd solution but it built me up and helped relieve a lot of my symptoms. Sometimes its simple things like muscle loss etc that is contributing.... You'll be the on the treatment train soon, don't worry. :)



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Jaggles


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I'm waiting for epclusa...I'm desperate...reading the article did make me realise I am not alone in how ill I feel. Put my face on every day and people around me who know me, even family don't understand what's happening inside me foggy head , my vision, muscle pain, joints all ache, headaches...can't face interferon treatment....my heart goes out to you all and as for me...I have started to pray I will get that call saying I can start xxxxx

__________________

HBV 1982 Resolved  / HCV Undiagnosed until Sept 2016

female U.K. AGE 56

fibro score 6.9 

Viral load 3.5 million October 2016 

Geno 3

Treatment Epclusa

Undetected at 2, 4, 8 and 12 EOT , SVR 12 / 24

October 2016 Alt levels 190 now, July 2017 17

 
Shadowfax


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Thank you for sharing this. One thing I can say is that never ever did I feel stigmatized in all the years I had this.  I did not tell everyone I met of course and was not particularly proud of the way I got it but if I was asked, I told about my few times as a teen that I played with fire and got burned.  

SF 

stigmatized
stigmatized
stigmatized
stigmatized
stigmatized


__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
wendyo


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That really hit home. Thanks Tig. Mirrors my experience(s) with the old treatments and how I also developed long term insomnia. It truly helps when we know we are not alone. 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Phoenix17


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Thanks Tig! Liked the article. 



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Tig


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I found an interesting article and want to share it. It's one person's story on what the cure meant to him.

True Meaning



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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