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Post Info TOPIC: Party at Jill's House!


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RE: Party at Jill's House!
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Hi Jimmy...

Thanks so much, what a lovely comment.  And I`m so glad you did stumble upon this forum, in the time you`ve been here you`ve made such an impact on forum life with your great (and somewhat offbeat!) sense of humour, constant support and down to earth advice to fellow Dragon slayers, and I hope you`ll continue to do so for a long time to come.  You`re a good man, Jimmy, thanks for being here...  smile

Hi Mike...

You`ve been such an inspiration to me, and I`m sure to many others here too, and I can`t tell you how much I admire the way you cope with whatever life throws at you.  I wish you all the very best, from the bottom of my heart, and yes I will be keeping in touch.  Thanks Mike, for so much...  smile

 



__________________

Jill 

(69 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Moderator

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You were administrator when I got here, then moderator, and now member. It doesn't matter what your title is, you'll always be the 'Heart' of this forum in my mind. Thank you so much Jill for all the care, compassion and knowledge you have shared with me, and so many others, over the past years. Enjoy your new home and keep in touch! smile



__________________

57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

Mike

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Guru

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All I can remember is stumbling in here, knowing only that I had a Dragon and my Doctor was all the sudden, ( after years of just keeping an eye out ) talking about treatment.

You were one of the first people I ran into. Made it easy to stay.

A very patient and kind soul you have.

wink

Your Brother Jimmy



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



Guru

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What lovely comments, I feel quite humbled reading them, knowing what so many of you have been through to get where you are today.  Being involved with the forum over the years I`ve learned so much from our members about strength, courage and compassion, and I have the greatest respect for you all, my fellow warriors.

Hi Malcolm...

Wonderful to hear from you, our guiding light for so long!  Yes, it was such a pleasure and actually a real honour to meet you and Lani when you were in England, and I`m so glad I had that opportunity to chat with you both face to face.  A really lovely day, even if I did forget the ice cubes!  wink 

Take care of yourself, all very best wishes to you and your family, you deserve all the happiness that comes your way.  Huge thanks for everything. 

Hi SF...

Hello, and thanks for your kind words, much appreciated.  Yes, I`m just starting to really relax in my new home now, and I don`t intend to move again for a very long time, if then!  Looking through your latest posts, I see I owe you belated congrats on your one year anniversary of starting your Harvoni tx, what a milestone!  You`ve come so far since you joined us, and I`m very happy for you.   Also glad you`re still around.  I wish you all the best for a healthy and happy life... smile

 



__________________

Jill 

(69 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Guru

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RE: Party at Jill's House! (jk)
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Jill,

How did I miss this ... I suppose I have missed a number of things.

I want to thank you for your dedication and words of support that you have given to so many. You were always here for me and so many others in our hours of need and yes, we needed your support and that of all admins and past admins/mods and others just here taking the ride.

I wish you the best and please do enjoy your new home. I know it can be stressful in the move then a delight afterwards. I think you know how much you  are appreciated here and I will always look forward to you popping in and just saying hi and how you are doing.

Take good care and we will be thinking of you.

Cheers

SF

 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



Guru

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Jill,

You will always be in my thoughts. When I did my dreadful 48 weeks, you were there for me, with compassion and wise advice.

Meeting you in person was a great thrill for myself and Lani, and we hope you enjoy your new abode.

I know leaving the Forum is difficult as it was such a big part of our lives. Seeing the new treatments, I feel a profound sense of relief.

Enjoy life.

Love

Malcolm XX



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



Guru

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Hi Jaggles, how kind of you... thanks!

I remember when you first joined us, and I wish you all the best of luck with getting your treatment sorted out soon.  I know how frustrating it is waiting around, but with the new financial year approaching hopefully there`ll be more money in the NHS pot for treating Hep C sufferers with the best drug options.  The fact that Jane -n- Phil have both recently been approved for Epclusa must give you a lot of hope!

It`s exciting living in a different area now and I can`t wait to get out and about exploring, as well as all the home decorating I`m planning (!) but I`m sure I`ll still be popping in from time to time to see how you`re all going. 

Take care and thanks again... smile

 

 



__________________

Jill 

(69 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Senior Member

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Hi Jill, I just wanted to say thanks for making me so welcome when I found this forum . Your encouragment and supportive words, humour and kindness shone through. You will be missed ...I hope you pop back often but also good luck with your new home and the next chapter of you life... Lots of love and best wishes ...eternally grateful xxxx

J <3



__________________

HBV 1982 Resolved  / HCV Undiagnosed until Sept 2016

female U.K. AGE 53 Fibro score 6.9 

Viral load 3.5 million October 2016 

Geno 3

Treatment Epclusa

Undetected at 2, 4, 8 and 12 EOT , SVR 12 / 24

October 2016 Alt levels 190 now, July 2017 17

 



Guru

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Hello Matt... smile

Thanks so much for your kind words, I`m overwhelmed and moved more than I can find words to say... and also very happy to see you here again! 

It`s been a real pleasure working with you too on the Admin team for so long, and I`d like to thank you also for everything you`ve done here.  You`ve reached out to so many of our members and done some great work on the forum, driven always by concern and care, and your thoughtful input is still very relevant.  As you can see from the Harvoni Treatment Train thread you started, and which has helped so many of our members connect and share mutual support, just one of many excellent ideas you`ve come up with over the years!  I know you don`t find the time to come here very often nowadays but your input is still most appreciated! 

Hi Canuck... as always, so full of kindness!  You bring a ray of sunshine with you with each and every post! 

Well folks, I finally moved into my new flat on Wednesday last week, and it`s already starting to feel and look like home.  It`s been a long time getting to this point, I`m sure I must have used one of the slowest, most inefficient, solicitors on the planet!  Lol  Anyway, it`s been worth the wait, I love living here already. 

All my very best wishes go out to you all...  smile  heart.gif

 



__________________

Jill 

(69 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Guru

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Aw, so well said Matt, and so true. Lovely, just like our CG. smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

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Hello Jill 

Our queen of forum, our Cinnamon girl, our mother of the forum and many more terms of endearment that could and should be said of a Jill has proved to all of us veteran members and new members that she has given every bit of her blood sweat and tears that anyone has ever has given to the purpose and vision of this love driven forum.

Love of people and purpose has driven her commitment of care revealed in words chosen in the most loving gracefull and caring way that I have every experienced on any forum in the world. Grace under fire and humility are hard to find qualities but working with Jill on the admin team has proven true to me she truly displayed them and knowing of the troubles and tribulations that sometimes present themselves I can truly say that Jill has enbodied those attributes. 

Few members can relate to writing over 5500 posts not mention hundreds of private messages responses from countless problems and concerns from the membership helping members that are under stress, depression, anxiety, confusion, disappointed, disturbed and demented with the patience of a loving mother. (Sorry Tig your close but not mom) 

So Jill thanks for all all your intense love for humanity proven true by all your countless hours and work for us forum members. The thoughts of your content will never be lost or forgotten because it dwells in the fabric of this very successful forum because of you and all that have come before you and all that will come after.

Thanks forever matt 

 



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 

Tig


Admin

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I enjoy reading all of the nice comments, Jill. We'll be waiting to hear the good news regarding your flat and the fun job of setting up an entirely new abode! You deserve to have the best of the best, you've done so much for others. I'll be looking forward to your continued contributions and support! Now get back to packing! smile



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Guru

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What lovely heartwarming comments, many thanks to all of you who have responded!

Hi Joann - Thanks for your kind words, I'm glad you're still around and I wish all the best for you. Hope life post SVR is treating you well!  

Hi Wendy - Thanks again, and please say hello back to Dave and hope he's well, we still miss him! 

Hi RC - Yes, it's been a while and I remember when you first joined us here.  You've certainty been through some unexpected twists and turns since then, and throughout everything you've still been a strong and supportive friend to us all, and managed to stay optimusic and upbeat  You truly are an inspiration!  I'll still be dropping by to see how things are going with your treatment, and I'll be thinking about you today.  Very best of luck! And all good wishes to you and your wonderful wife, Ragdoll. 

Jill xx

 



__________________

Jill 

(69 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Moderator

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Hi Jill

I go back 3 years and think of all the kind words spoken by you. Your touch around here will be deeply missed.  In my early days of treatment I coulden"t  wait to check in with the forum to see what you thought about how my treatment was going. You are a inspiration to all that drop by the forum. Thank you so much for keeping the wheels turning on the forum train all these years.  Your leaving it in good hands with TIG at the wheel!  I have kinda backed off the forum lately with all the stuff going on in my life & (treatment).I miss you already!!  RC



__________________

 M-61(3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18 https://aasldpubs.onlinelibrary.wiley.com/doi/pdf/10.1002/hep4.1280   



Guru

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You are welcome Jill and thanks for your kind words. 

Our ole pal Dave (Linux) said to tell you he wishes you the best and said hello to all the old gang

 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Senior Member

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You will always be our "cinnamon girl".  Thank you for your inate kindness, your voice of clarity and your eternal optimism.

You gave us so much more than you took.  

We are forever in your debt,

Joann

 



__________________

Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16



Guru

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Thanks so much for you good wishes, Wendy! 

Yes, it is hard to cut the ties we`ve all made here, definitely.  This is a wonderfully caring community and I`m very glad you`re still here, giving support and sharing the love.  You`ve become one of the mainstays of this forum over the time you`ve been here, and it`s people like you who help make it such a welcoming and safe haven. 

And you`re quite right about the bike, I bought it second hand some years ago and really had no idea anyone would be interested in it.  I`ve actually sold quite a few things because I`m downsizing, but that was definitely the star sale!  And the cash will come in very useful when I`m doing up my new flat, ready for the house warming party!! Lol

Sending all very best wishes over to you, take care... love, Jill

 

 

 



__________________

Jill 

(69 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Guru

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Best of luck Jill in your new home. And as for the bike....one mans trash is another mans treasure (not that the bike was trash, but I think you get my point, you both made out!)

Your tireless research, posts, laughs and comfort found here have been a treasure my time online and thank you does not cut it. I know we will continue to hear from you as it is hard to cut the ties we have all made here even after SVR. 

Love,

wendy



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Guru

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Many thanks indeed, dear Tig and Canuck, your kind words mean more to me than I can say! 

When I joined this forum all that time ago I had no idea it would become such an important part of my life for so long, and that I would meet so many amazingly strong and brave people along the way, many of whom have become good friends.  It`s been an honour and a privilege to have been involved in the Admin team for many of those years too, which was certainly not something I had envisaged at the start! 

It`s also quite incredible to think back to those days when the only treatment option for HCV was the old Int + Riba combination, and I remember thinking how lucky I was as a GT3 that I only had to do 24 weeks, rather than the gruelling 48 wks that so many others had to go through, and often with low expectations of achieving SVR at the end.  Thankfully so much progress has been made since then, but this forum still has a very valuable role to play, and I know that it will continue to be a safe haven for anyone who needs the support and information that this community provides, with Tig leading and showing the way with a smile and open arms for all who need guidance.

Since clearing the virus my life has slowly improved, way beyond my expectations in fact, and so my life has moved on.  Quite literally too, with a house move just around the corner!  And of course, what do we do after a move, throw a house warming party of course!!  Everyone`s invited, bring snacks and ice cream!!  biggrin

I`m stepping down from my role as Moderator, but I`m not saying goodbye, I`ll still be popping in from time to time to see what`s happening and say hello. 

I wish each and everyone of our members the very best of health and happiness, and most of all, a life free from HCV.  And for all those on treatment or waiting to start, keep going and never give up, you can do this!!

All my very best wishes, Jill 

Ps -  My tricycle didn`t make it to the packing list, Canuck, I decided to see what it was worth and to my surprise I discovered it was quite a rare model which had only been manufactured for a few years, so I sold it for good price to a cycling enthusiast who had been searching for that particular model for 13 years!!  Life can be so strange sometimes!  smile

 

 

 

 

 

 



__________________

Jill 

(69 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Guru

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Posts: 2970
Date:
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Nicely said Tig!

It is bitter sweet news. But I am all for the party at Jill's new digs!!

Nice to know you will always be near Jill, and you are always near to my heart.

I thank you so much for being there, for me, and all this time. No one taught me better how to say "I am a former 3a".

You can always change your mind again you know, your perogative, when you are a Hall of Famer!!! You are a natural guiding light.

Until you grace us with your latest news or advice, I will wait right here, as I always do, and will hang on your every word.

I am so glad you are finished with the big move, I hope you are not having to still be living out of boxes tho. Did your tricycle make the move to the new place too?

Much love and good wishes, with my most ardent admiration, your friend. C. crysmilebiggrin



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


Admin

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Date:
Party at Jill's House!
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Hi Everyone,

It is with joy and some sadness that I announce to the Forum, our past Administrator and current Moderator, Jill - Cinnamon Girl, has decided to step down from those duties. She assures me that she will still grace our pages with her knowledge and friendship as often as possible. I'll hold you to that, Jill! 

Jill has been a pillar of strength here on the forum. She has been a member since August of 2010. She came here seeking support and information, as she was about to embark on her own battle with the GT3 Dragon. After 6 months of Interferon and Ribavirin and then having to wait 6 months to find out the results, she was cured!

She took the reins of the forum from the original owners instead of seeing this treasure trove of support and information go silent. We all owe her a debt of gratitude for her love and tireless work to advocate for all patients and families touched by this nasty disease. She lost her husband to HCC secondary to HCV, so her pain and commitment was deep. She is one of those people that has walked the walk and given so much. The measure of how many people she has helped along the way, is too great to quantify. 

Let me say thank you, Jill! Your work and compassion, has touched tens of thousands of lives around the globe. You deserve a place in the Hepatitis C Advocates Hall of Fame. You will always hold that status here.

Enjoy your new home and all the joy that brings. Again, thank you for guiding me and all the others to the HCV free life we have or soon will. You made our lives better by showing you cared and you did it from the heart

Best Wishes,            Tig xo



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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