Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: URGENT WARNING to those seeking Treatment for Hep C


Senior Member

Status: Offline
Posts: 230
Date:
URGENT WARNING to those seeking Treatment for Hep C
Permalink  
 


Nicky.....,
Nice....I love going places, too. I am looking forward to my next trip where I am free of the pesky HepC ( I hope) symptoms that have been dogging me for 2 years.
Still managed trips to Italy, France, Amsterdam, Germany, England, Scotland, Yellowstone, and a short one to Mendocino County. Hoping to saddle up my motorcycle when my 12 weeks of Epclusa is finished, if my medical people Ever Get Me Started. (Many delays...this lab and that lab and maybe some cases of Summer-itis)

They have the best coffee in Italy, as far as I can tell, although I make a mean French Press in the kitchen.


__________________

Lamont Cranston "Only the Shadow knows."

70 years old, retired IT Network support 33 years continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Started EPCLUSA 7/28/17

No Virus Detected on November 20, 2017 3 months after EOT



Member

Status: Offline
Posts: 7
Date:
Permalink  
 

Hello, thanks for the welcome!  I will be sharing my experiences in the new member area next week, I know many internet searchers want information and this forum IMO (in my opinion) is the best out there.  At this moment, I just woke up, just canceled my weekend travel plans to rest up for a big international trip next week.   No, I am not rich but have fantastic benefits from working with the airlines for 20 yrs.  No money, but the life of a flying, and on a limited budget gypsy.  (If I want, !).

I finished the 12weeks of Harvoni and I am so glad I did.  I am no longer toxic waste, I am undetected!  Anyway, I promise to post from an Internet cafe located in a 3rd world country while I down a fresh cafe' expresso.  I will have a full keyboard   Rather than this finger jabbing on an iPad I am doing now.  Stay well!  You souls on this message board are my new BFF. (Will not translate that one)!!!



__________________

Female, age 63, genotype 1a, treatment Harvoni 12 wks. Undetected at 4 wk. undetected at 11 wk. Completed course of treatment March 2017.  Experienced side effects During treatment and some residuals remained.  Regained energy!  

Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hi Nicky,

Thanks for the update and congratulations on your continued undetected status! That's wonderful news, not unexpected though. These are such effective treatments now, it's getting quite rare to hear of any failures. It's a wonderful thing!

You sound like quite the jet setter! I wish I could get away like that, it must be fun to get away to all of those places as often as you're able. Don't go wearing yourself out though! Travel has a way of lighting the candle on both ends. I do know that smile

I look forward to hearing more on your progress and of course all of the travel updates! Have fun and enjoy your success...

Stay in touch!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Member

Status: Offline
Posts: 7
Date:
Permalink  
 

Greetings, sorry I failed to check back in.  I had some horrific personal issues I had to deal with while on tx.  I was successful in completing the treatment, had some side effects, but I forged onward.  It was not easy!  But here I am, post treatment, virus undetected at 2 months after the last horsepill Harvoni.  I am so glad ....I will be posting more on this forum to share my experiences.  Thank you for wondering what happened to me.  Yes, I did travel, still do, as a matter of fact I decided not to take a short trip to New Mexico today so I could rest up for a longer trip after this Memorial Day weekend.  I will be going out of the country again and will be able to spend more time on this forum when I go to an Internet cafe that has actual computers.  (I am thumbing on my iPad on cellular broadband access as I type now)



__________________

Female, age 63, genotype 1a, treatment Harvoni 12 wks. Undetected at 4 wk. undetected at 11 wk. Completed course of treatment March 2017.  Experienced side effects During treatment and some residuals remained.  Regained energy!  



Senior Member

Status: Offline
Posts: 230
Date:
Permalink  
 

I have a friend in Austin who rides. So that's one.

I have a few, this one also serves as a coffee cup holder....

'98 Ducati 916 at Bovine Bakery in Point Reyes

If you need further proof of a lifelong addiction, here are the more recent entries... http://colevalley.net/photos/bikes/

 



__________________

Lamont Cranston "Only the Shadow knows."

70 years old, retired IT Network support 33 years continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Started EPCLUSA 7/28/17

No Virus Detected on November 20, 2017 3 months after EOT



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Hey Nicky!

Nice to hear from you again. Are you still travelling? You must be week 11? by now. How are you doing anyway? Yup, we got nice folk, pics, fun and info here. Do post us some more and fill us in a bit, will be glad to hear how you have been doing. smile C.

 

Hey JK, Perhaps a nice wheel theme for the wedding? wink 

Image result for worlds largest wedding ice sculpture

(ooooor ...?) Related image



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Greetings Nicky and welcome.

It seems my thread title caught your attention. We are glad to have you. Check out the new members area and tell us a bit about what brought your here.

Ahhh the new people smell.

What SF said.

My Northern Sister thank you. Always such a dear and so eager to help folks here. I know I speak for everyone here when I say thank you. Ice sculptures in Houston Texas.  Gone like a fart in the wind.

Wendy my Sis you are technically right as usual. But let me say to have a good person trust me, is an honor.

Tig what can I say? Growing up, the handlebars on my Big Wheels were bigger. That right there is a neck ache waiting to happen. Now just imagine, standing in that position and reading, OUT LOUD, Gen 5:3 through 5:32 ! no As always the wise advice here, add water.

And then we have our new sister. wink

 

JimmyK

 

 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



Member

Status: Offline
Posts: 7
Date:
Permalink  
 

smilesmile  better (Somewhat) connection now.  Still nice image!



__________________

Female, age 63, genotype 1a, treatment Harvoni 12 wks. Undetected at 4 wk. undetected at 11 wk. Completed course of treatment March 2017.  Experienced side effects During treatment and some residuals remained.  Regained energy!  



Member

Status: Offline
Posts: 7
Date:
Permalink  
 

Great looking pulpit! On a slow connection and could not advance on other images etc.
Will check back on this site from a better hotspot later.

__________________

Female, age 63, genotype 1a, treatment Harvoni 12 wks. Undetected at 4 wk. undetected at 11 wk. Completed course of treatment March 2017.  Experienced side effects During treatment and some residuals remained.  Regained energy!  

Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

From the pulpit of JK, the Biker Bro in the know....

 



Attachments
__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

As usual, another amazingly awesome post by bro! Whom I technically don't know but trust



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Congratulations! ... I feel compelled to mention, ice scupltures are very nice. :) wink C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

biggrin



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Greetings,

When I say I know of what I speak, I know of what I speak. I would say "trust me" but the fact is, you don't know me.

To PROVE that you don't know me I ask you to take pause...

... think to yourself and ask the question; "Do I know this guy?". In fact; "Do I know anyone living in Texas?"

OH and if so, "Do I know any Bikers who live in Texas?"

Oh x 2 you know oo.

"Do I know any Christian Biker in Texas?"

Let me help you. No you don't. Shoot I know 2 and I live here.

 Sorry, that's right, the subject matter that brought you to this post.

(You know I really should fire someone. I mean to have gotten this far without someone saying; "Ummm Jimmy... ole buddy ole pal... ) Well you know like regular people and things.

The Subject Line:

The warning is valid and the title is as well. Fact is, if you seek treatment, be forewarned,....

 

..... you are going to live longer.

 

 

That includes, (in my case anyway) the need to plan for and PAY for your daughters wedding. DID THEY TELL YOU THAT WHEN YOU SOUGHT TREATMENT??

That's right, back in the day, I did not have to plan for such. Shoot I was going to die long before any of that stuff came up. Graduations, certain birthday milestones, weddings if ya had a girl, and BAIL if ya had a boy.

Ya know what, boys are definitely cheaper.

Disclaimer: If you raise a serial killer or some other such fruit is somehow the product of your loins.. well.... you probably seen it coming and could have had it have an accident in the tub somewhere along the lines. Don't cry about it now and NO you are not going to get any sympathy here.

I was trying to do some simple banking exercising. FFS check out the note to self I came up with!! ( Attached)

( OK taking time for folks to look at the stupid attachment.)

And a three and a two and a one....

 

Tap Tap Tap....Is this thing still on?

 

 

Ahh go ahead... I mean what the well you know...you read this?



-- Edited by JimmyK on Monday 20th of February 2017 06:24:40 PM

Attachments
__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."

Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.