Hep C Discussion Forum

Aaaaw, that so neat!!!!! Now everybody's gunna want one of those! Now that makes for a good hair day! I am jealous not only of you hair, and guts, but I have only a scissor "cut out" of my und from a lab report, framed and mounted on my wall. When I was first being tested and found out I did have HCV, they also tested me for everything else, somehow, no one could find or tell me if I was HIV pos - the results were in limbo somewhere (and so was I) for months!!!! I was so frustrated by this, not knowing of the wayward HIV results (even though I would have been very suprized if I had been HIV pos) that by the time I finally got it, i was good and mad and relieved and told them I was going to frame it and put it on my wall. Never did - but had they given me any of my results so nicely as they had to you - for sure, it would be up on m wall!. I think they should give out badges too or icecream or something.

You make an ideal graduate of SVR, proven by this diploma.  C.

Here it is!

Awesome BB. Glad you are back to working out as I know first hand how that helps mentally as well as physically!

Hello Everyone......just been busy working and making it through the holidays. I am feeling great! I am just now back hard at boot camp again working out steady and building my strength back. I dont get those sick migraines anymore like i used too and my hair is feeling thicker again thank God! Coming out of that fog more and more.....so crazy! I will say it really is/was all worth it! You are all right about that! The support i got through this forum was golden. Thanks again friends!!!  

I love all of you .....I don't know what Id do without you!!!!!!!!!!!!!!! in my riba craized state of mind and all

BB,

Earlier I said Linux had that emergency treatment (to help with being riba-tized) ... I  searched and searched, but I can't find it - there was a picture of it in his thread (somewhere)!

So, I had to find a sub for you, I emptied the cupboard under my sink and found this ... a remedy I often use (for other things), it's kinda close but not the cigar Linux used.

Look under your sink for the spray can that says "Riba-Be-Gone", looks a little like this can.

The overpowering stench of riba can clear a room in a hurry alright, but be brave, go back in there, throw open all the doors and windows, and wait, it won't be long, and before you know it, you will be drinking in only long lovely wafts of fresh air - eventually, riba will be-gone  for good.

Canuck wrote:

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Heehee (it's NOT funny!) but "fitastrophy" haha, oh my!, you have always had such a way with words my dear - so ... was the "time-out" in your bedroom in SELF defense or was it strictly to protect "others"?

To protect the innocent - (I consider YOU an innocent bystander BTW) not your choice (or fault) you had to do "hard drugs". Riba WILL go away. Linux had a  thing for that (in event of a riba-emergency) I'll see if I can find it again and leave it with you at the end of this post.  

Ya, I wished you had not (necessarily) had to work (all along) through all parts of your treatment (and riba-time), but then again, perhaps some of the arduous activities were were taking on, throughout treatment, were helping you "some", psychologically, to distract and tough your way through and past riba-land, sorta helping to keep you sane, but still, even now, some time-off might not kill a person??

Riba-land is a weird place (I have come to believe), just when you think the ride may be over, perhaps it is not! I never did riba, but i found my "time" on treatment not a pleasant time, I can't really say why for sure - would be easier to understand if my regime had inculded riba! You have BEAUTIFUL hair, as I noted IMMEDIATELY on that wonderful pic of you and the new BB! No wonder you lament the hair thing, owning a head like that, I would NEVER notice what you have mentioned has been going on by the look of the lovely headfull you sport in that photo -  but I DO believe you, about the hair loss  (even tho I can't see it) - as I have had the same complaint, my hair has gone to shat too, but one can see it! I too wish my hair would behave! Wanna trade? Riba is a valid cause for hair trouble, stress too, sometimes just general chronic health troubles too, hard to say why hair loss occurs. Good you see some regrowth tho!

I have been buying "hope" in a bottle, hair remedies, topical this and thats, sups that all claim/promise hair health - kinda expensive too! - darn it - nope, dunt see nothin dif yet! 

Do you and daughter and babykins all bunk in together? I think you said that once, that you were all within the same household - so, hows' the babysitting going??

Hope this newer period of work stress eases off pretty soon. I would prefer to see you sleeping like this ...

 

 

I can't seen to locate Linux's riba remedy just right now - I'll keep looking for it and send it along when i relocate it.  C.

-- Edited by Canuck on Saturday 11th of November 2017 10:34:47 PM

-- Edited by Canuck on Saturday 11th of November 2017 10:50:02 PM

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 Omgosh I wanna snuzzle that cute fluffy kitty in the pic .....

I am just loving having baby Astrid at home to kiss on when I get home from work everyday....Yes all the kids live in the downstairs and I upstairs so we have our own privacy but still get to have baby in arms reach 24/7. She is getting to be more fun as she smiles and is awake more now going on 2 months old. Certainly can help calm the riba ritual fits.......Water is certainly key and food too If I don't eat good I get that sickly feeling and fast. 

Heya Canuck,

    Well I thought I was out of the woods there for a bit but then I had that ole familiar riba fitastrophy one weekend that made me go lock myself in my bedroom for sure! It was like horrible! I had been running around at work more than ever after another co worker quit and I guess it caught up with me. Boy you don't dare slack off on drinking your fluids or your in big trouble. Sleep.......well you know how you get so tired and then you lay down and your eyes and mind go BINK! haha Some nights are good and some are not. You know that crazy cycle.....You just never know whats going to happen. The hair is still coming out....Id like that to stop asap lol but at least it coming back in. So I will hang in there and keep on keepin on....

Hello!!! How is everyone????? Sorry Ive been away and a bit out of touch, lots of changes at work lately. Hope all is well, I am always thinking about you all. Ive been doing ok feeling pretty good for the most part. Had some body aches and a low grade fever last couple of nights.....touch of the flu maybe bu still able to keep going. Hope Everyone is still in slaying mode and swords up! 

Congratulations on your UND, bb.

I have to jump in and tell you if your legs are bothering you at night, cramps or restlessness, squidginess... I highly recommend trying magnesium glycinate. I used to have such bad leg cramps, I often had to stand up for half the night. It was brutal.

Magnesium glycinate daily (well nightly) has completely eliminated my body restlessness and leg cramps and actually helps with insomnia and nerve pain as well.

Enjoy being a successful dragon slayer. Yay

Alison

Hey B.B.,

Just know it will get easier with each week and month post treatment. The Riba rage took its sweet time to resolve, several months for me, but it softened and wasn’t profound like it was on treatment. The thing that took a full year was the sun sensitivity. I normally tan pretty easy, but that year was the exception. I burned like forgotten burger on the grill every time I chanced it. Slather on the sunscreen! 

It’s worth the challenges you’re going through. I promise you that!

SVR is golden 

Thank you BB

Congrats BB,

I just LOVE your great big ole   UND!! And your teensie-weensie ALT of "6" - man, that ALT is soooo teeny I can hardly make it out! Beauty AST at 16 too. (What were some of your old/older ALT's/AST's?)

Man, you are almost the picture of perfect! - whal, cept' for shucking the last hee-bee jee-bee vestiges of that well-meaning but troublesome blue-meanie hitchhiker you were obligated to give a ride to a while back. Once rid of him, you will be riding mighty fine once again (better than ever actually).

Hm, not suprized some of your other bloods remain somewhat out of wack, similar to your last posted bloods? Prior Hgb 11.7, and many of those (H's and L's) should start to improve soon, as you recover.

Your best friends are still drinking LOTS of water to keep cleansing yourself, good gentle nutricious diet, rest and self-TLC.

Just about everything you put into your body is a burden on your liver, but we DO need the help of drugs sometimes - go by what your doc says. Terrible to go along without relief of something, for fear of doing something wrong - you are still left with a problem - just which is the lesser of the evils! I'm ALL for pain/symptom relief - just ask your doc what things you can or cannot take (if anything is forbidden or is prefered, when there is a choice).

Some of us, for various good reasons, such as having thin blood/bleeding/clotting/stomache issues might be told to avoid aspirin-based OTC things, others may be told to avoid doing too much tylenol-based OTC things on a damaged liver - just depends on your particular conditions and your docs preferences - it IS a judgement call your doc has to make for you based on your particular conditons - just ask them. Everything is a burden on your liver, including good food (if you want to look at it that way)!

Just remember, whatever you and your doc choose, what the malady IS, that it is intended for. Tylenol-based products (acetaminophen) is good for pain and fever, but Asprin-based products (acetylsalicylic acid) is good for pain, fever AND is an anti-inflammatory, which may be important for best relief - it all depends on the cause of your pain/grief, what you need, prior conditions, and the least amount of impact as far as "sides". He may give you the go-ahead for either/or, within reason, depending on what your needs are. (Asprin, Ibuprofen, Motrin, Nuprin, Aleve/naprosyn are similar in the family). 

How are both your babies doing? Your daughter must be so happy for you, that you are finished, cured and (for herself too) in that you are both looking forward to all these "new lives" and all it brings. 

I am very happy for you.  C.

Hi L-52.  I was told by my Dr's that it was ok to take up to2000mg a day. That was even with my old liver!   However I never felt comfortable using that amount, as a mater of fact I took very little and not very often.  I was told to stay away from Ibuprofen, its a no no.No ADVIL.

RC

Geez I have never heard of anyone with liver issues being told they can take that much Tylenol. Would like to see what Canuck, Mike, Tig and RC have to say .....

Hi BB,

I take aspirin when needed (not tylenol) and always the lowest amount possible. My prescribing docs all know my history and I always remind them. When searching for Rx for menopause, I came flat out and asked my liver doc if now cured of HCV could I take black cohash and was told to avoid it due to how hard on the liver it is. Yes the liver filters everything so we do need to keep that in mind. I still take my vitamins and herbal supplements. Just got a call today from new pcp and was told all blood-work was normal so that made me feel good. 

Released from riba jail, but "on condition", it will be a pain (for a while) to have to keep reporting to that awful riba probation officer. 

It's the shats being on riba probation. Keep resting, moving about (some very gentle exercise/walking/stretching/a wee bit of massage maybe), TLC, try to build your good diet back up, and keep flushing the toxins out of you with the fluids. I do hope the gut is calmed down now and will let you increase diet slow and steady again. A real reprieve from all of this would be good eh?, called for, you need and deserve good break! Feeling better will come tho.

Can you ask if you could take something at night to relax/relieve your aches and restless legs? Even just an OTC headche pill or something. C. 

Ya bb,

I like Wendy's "BRAT" diet, actually ... I never knew it was called that! even tho I tell people (bascially) the same thing, for a very upset gut (like you have with that bout of diarrhea). It is a very good thing to revert back to, back to the basics (when you are trying to stop diarrhea, recover from it, and still remain somewhat nourished and hydrated) - just very gentle, soft, non-irritating, easy to digest things, with little fat, (just some bulk, sugars, calories) and the pectin/soluable and insoluable fiber/and vit C in the applesauce are supposed to be a good things. The banana is ideal as well, for all the good things bananas offer. The reduced proteins derived from the rice and toast will carry you in a pinch for a while. My old Granny would try to get us kids to eat burnt toast! No butter, black and carbonized, I couldn't handle it, Granny's version of charcoal or ipicac I guess - yuk! 

The BRAT diet is a good standby, thank goodness we generally recover from a bad bout of diarrhea quite quickly, you soon get tired of the simplicity of rice and apple sauce! 

I hope you trying to get more wee naps in, and curtailing your activities (if you can) and as you threatened you were going to try to do - like I said ... don't you make us come down there and force-feed you burnt toast! C.

Hope you are feeling better today BB. Remember the brat diet maybe that will help. banana, rice, applesauce, toast. Drink some pepto to coat your tummy too. 

Thank u Canuck and RC! i dont know where id be without this forum......omgosh funny u said that RC cuz at the start i felt like my body was shaking like i swollowed a vibrator and not in a good way lol......and ya Canuck you nailed it ...our new baby coming did cause me to have lack of sleep that i could totally do on a normal day but riba sure rears her head to remind you (IM STILL HERE) weather u like it or not.......so bed rest and fluids for me alllllll weekend. dang! and here i thought i would be right back at boot camp afterwards....wishful thinking but absolutely no way yet. i will give my body the time it needs and flush riba down the toilet  lol  Riba.....its like this love/hate relationship and now Im sooo ready for a divorce....and wer fighting for who gets to keep the oxygen and strength. ha! 

Sorry bb.

You are STILL under the bad influence of riba, and will be for some time (I hate to remind you of this, but it does seem to be a fact, that the riba CAN take a while to dissipate from you.) Other riba do-ers here have attested to this, that at EOT, "maybe" within days, there is a "relief" (of sorts) mostly in knowing you never have to take another one of those strength-robbing, breath-taking, harm you to cure you, tough-love blue pills, but, you STILL have to treat yourself exactly like you are still on treatment and ON riba! For while anyway.

I am so glad you are finished, BUT, it is a perfect storm of wonderful life circumstances which I think IS contributing to how you are faring right now.

Your "baby" having a baby, and by C/S is guaranteed to be high-stress-caramba time, draining, exhausting and something which would understandably motivate you to push yourself to the max to be "up" for and deal with.

Trouble is you have just been through a LOT!, AND, you are still (technically) "on" riba. You are not in very good shape to run these physical, emotional marathons (yet).

Hospitals and their organisms can be "not good" places to subject yourself to when in a weakened state anyway! But I completely understand why you are there and pushing yourself to be there, for everyone, including youslef.

That is why I said prior to try to "pace" yourself (as best you could).

There will still be many things and tasks and "work' you will not be ideally well-equiped to do, for some time yet, and you still need to protect and nurture yourself during this riba-recovery period.

Stress, and lack of sleep AND add diarrhea are not good things to add to riba recovery.

You KNOW (already) you have overtaxed yourself - listen to your body - you will be no good to your daugter or anyone, if you overextend and get to operating at 0 out of 10, as opposed to the 3 or 4 out 10 you might have managed to reach while being freshly released from riba-jail.

Back to basics, water, quiet, rest, gatorade or pediolyte (something to combat loosing the eletrolytes with the diarrhea), chicken soup, gentle diet, out of the sun and heat, less stenuous activity (sorry) and treat yourself like you are still on riba! If the diarrhea does not stop right shortly, then you HAVE to seek medical advice. You are supposed to be doing slow recovery 101, not pushing to do marathons.

Water/electrolytes and maybe a plain tylenol for your body pain (if your doc told you prior that a tylenol or some other OTC pain-kiler would be OK for you). Try to get some sleep! Did you ever pick up any sleep aid or something the doc said you could take? Sleep is important (as you well know, from your lack of it). Try to rest, I know this is not an oppotune time to be under the weather - but riba is a **** - she is unforgiving, she takes her own sweet time, and can be spiteful if you dare to ignore her.

Keep letting us know how you are - fingers crossed the diarrhea at least lets up. C. 

Thanks Canuck,Wendyo and Observer.......Yes I did that chant too and I also looked at it this way.....The sooner I get this last bottle down that faster it will all be over and then NO MORE of these strength robbin, breath taken, toxic ribas ......UG! Boy they really take it out of ya don't they?! Time to rebuild and reenergize myself. I feel like I need to do a cleanse and then juice my way back with my cold press omega juicer! haha 

Wow congrats on that beautiful babykins, and you look so happy!

Glad you've finished your treatment you dragon slayer you ...did you have a hard time making yourself swallow those last ribas? I remember having to absolutely force myself to swallow those nasty blue pills in the last week...I chanted ...3 more days...then 2 then yay...

looking forward to seeing your numbers.

Alison

Hey Canuck! Loved the video, thanks! I am on the other side now, thank you Jesus!! I just had my last lab work done today and should get results by Monday and will share when I receive them. Nurse said I will do another lab in Dec just to make sure I am cured. I have been so busy the last few days as on my last day of V-Pak and Riba my Granddaughter was born just the night before and will share a pic....(you know I have to share a pic of that moment) Last Friday the Dr. scheduled my daughter a C section for Monday 9/11 because the baby was breach and had been for quite some time so this is what happened Monday night at 7:57 pm.  Of Course I have been up for a couple of days with cat naps here and there and so I am paying for it now but pushing thru and helping my daughter recover and breast feeding for new mommy's at first is always a challenge but is doing quite well and a healthy Baby from head to toe! "Hall lay lu yah!!" 

Ima wreck in this pic but who cares....I have a baby! lol