Hep C Discussion Forum

Say there. ..do you have to be a citizen to get services? Or could I fly there and get treatment? 50 dollars and a plane ticket would be way more affordable  than it is here. I wonder why this is such a problem for the USA? Makes me angry. They force us to get insurance then the insurance won't cover the proper treatments unless as I read below "you have one foot in the grave" .

Even though I haven't been very active on this forum in a long while it's good to know there are others who have trod the path and we can check in whenever, it would be a sad day if it ever went away.

Bb, Iris

ah! Well then, I did completely miss the memo! Ew, over. Hm, very sorry bout that. Woulda wished you well(er) sooner! Did it have to be a big one, (Murphy) ... wish it had been a next-to-weeny one! And here we were thinking the shift to the metformin/AC1 diet was hard to take. Good you are used to doing things in a big way. Steak and chips diet in full moderation now eh. Being forced into good habits IS one sure way we can change them. Cigs!!, I can hardly believe it - but good you can't afford them anymore. Sounds like you are well on your way to full compensating collateral recovery. I would not expect anything less from you. Very good you like golf (and fishing, given the new diet). Write home more often eh, jes so's we can keep up with ya! Heal well, don't work too hard, it's early days yet, only been 4-5 months post MI? Past the crunch, but steady as she goes bro. Man, the lessons our organs teach us. So glad you survived the insult so well. You musta scared a lot a folk tho, not excluding self! Tough as nails (for quite a few around here) comes in handy I see. Really glad you are OK and recovering.  C.   

Thanks for the replies.

Canuck, I had a big MI in August with AF. One lousy ruptured plaque completely blocked my LCA.

Life has changed- no more cigarettes, salt and heaps of fish!!

The cardiac rehab has improved my EF from 35% to 45-50%, so all is good. I'm really enjoying one on one structured exercise.

I had a last look at the Aussie Forum. Very little activity and no new members for 6 months. Back in the Interferon days, it was really buzzing.

I hope all the new drugs will be available to all.

Cheers. off to golf (35C!)

Hi Malcom, nice to hear from you. 2.5 years ago you needed to have one foot in the grave down under to get any chance of treatmenT. O how times have changed. What a good thing for all the Aussie. Thanks for your guidance in my early road to treatment, you were spot on in all your advice. I should have done 24 weeks sof/riba, but the trial arm I got was 16. Trial two you said that if I had ringing in my ears that I should not do 12 weeks sor/riba/peg, well I did it and the ringing got lots worse and to this day I have a constant ring at about 20 percent volume, will somebody please answer the phone already!  You bust your ass to cure the virus and then to go on to a heart attack, just doesnt seem fair.  Depending on how you look at it,shutting down the Aussie forum is a good sign of the times ahead for HCV cure. But hardly a minor treatable infection in my opinion.     Take care Malcom-  RC

Hi Mal,

Good to hear from you! I wasn’t aware that the AU forum was closing. I have just recently seen a huge increase in registrations here and now I wonder with your update, if they are signing up here. The odd thing is they’re registering, but not completing the process. Not sure why there are so many. Searching for answers and information I suppose, but no desire to chat which takes confirmation. The access to treatment is still quite a process here in the US. It’s nice to hear Australia has made it easy. 

I‘m not sure how long this type of forum will be needed by the masses. We have seen a significant drop in activity lately. Certainly the ease of these new treatments and the rates of success have made clearing/curing the virus almost guaranteed. I shudder to think about the things we all went through just a few years back. It has been four years in my case, that’s hard to believe. This forum was so helpful for me and you, Jill, Matt and Tim had the helm at the time. I remember talking a couple years ago about the future of our forum. We have certainly seen things improve, dramatically! The member participation will be the deciding factor and so far we are seeing a large number of daily page hits. As long as that holds up and the money lasts, I’ll keep the lights on. We have made so many good friends, I’d hate to see that connection end. I don’t know what I’d do with all the extra time if I wasn’t stalking the forum daily! 

I hope you’re continuing to see improvements with your heart and rehab. Cardiac rehab can be tough. Can you imagine having to do that on Riba? >>NO<< I think that might be almost impossible! Especially with a Hgb of 50-90... I’m glad you don’t have that to deal with, too. Fill us in when you can. I hope the family is doing well, give my best to Lani.

Talk to you soon,  Tig.      “Cheers!”