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Tig


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RE: Greg Jeffreys
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Please feel free to discuss this using our private message function.



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Nirav


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@jcorum

 

I could help you get meds if the admins allow to post. 

 

I have helped many people to get hepc meds from India and also few people who came to India through Greg.

 

This is the pic when Greg came to India in June. 



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Nirav Sangoi
Tig


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Hello,

I‘m not able to answer your question regarding Greg Jeffreys delivery times. He should reply to your questions promptly. 

Will your son have a doctor following him here? You will need a prescription for the medication. Keep all of his test results handy. Save the official results to file, they may be required. Greg will be able to provide you all the details.

Your son needs to get treatment underway. If his health is getting worse as a result of advanced liver disease, time is important. The stigma isn‘t what it used to be, but it still exists because the word isn’t getting out there fast enough. Unfortunately with the opioid crisis, the incidence of HCV is on the rise. What he tells others is completely up to him. There are laws to protect him from any discrimination at work and privacy laws to keep his diagnosis as quiet as desired. 

Be sure to visit the thread with replies to your first post. When you hear from Greg, let us know what you find out. We have some information here on the forum about much of this. Be sure to use the search function at the top of the page. If you have any other questions, be sure to ask. Good luck!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Canuck


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Hi again to the Corums!

I hope both of you read the initial responses to the first thread that was started (also in New Member area) - New on here, son diagnosed 2 weeks ago with Hep C

In the first thread, we were trying to cover some basics for you - you are "ahead" of that post now, but still, there are some nuances in the old info offered that should not be overlooked as you speed forward. Basics such as Hep A/B immunizations, etc. 

Not feeling well, fear, the difficuties experienced in getting somewhere on the road to resolution are your biggest enemies.

Try to quell panic, be methodical and thorough.

As I mentioned in the other thread, I too was a GT3a, steatosis, F3 and had other issues going on, with fatigue and not feeling well. From diagnosis to treatment my wait was about 7 months, not pleasant but EVERYTHING turned out fine for me in the end.

Please do ask your son just to read for himself our thoughts on his matter, just in case he gleans any of our replies/thoughts helpful, he may find some of the basic info within the whole of this website quite valuable, should he decide to explore the site further.

So, as far as further info you received from your most recent specialists appointment - can you convey please, your docs opinion on what drugs he ideally wished to use, and why and for how long. Did he suggest Maviret only and for how long (8/12/16 weeks)? Did he consider and rule in or out other drug options, such as Epclusa (12 weeks), and if so why.

Can you please define/explain further what "P/K 8.9" means - maybe write it out in full, explain what this stands for, just so there is no misunderstanding? Did you receive any other new lab/test results. LFT's, a VL? It was only the ALT you have mentioned, at over 400?, do you have any further current labs - those would be helpful info. The F2 you mentioned (if it was derived from the fibroscan) did that have a kPa number with it or a CAP (fat) number with it? Perhaps you have also had a fibrosis blood test, such as a fibro-sure, or a fibro-test or an acti-test?? Labs such as ALT/AST/billirubin/GGT/alkaline phosphatase, AFP creatinine (and others) are good things to know the results of, especially anything that is showing up abnormal.

I was drug-tested too, multiple times before and during treatment, experienced uncomfortable discussions and questioning too - the priority (overriding all the unpleasant parts of this journey) is ultimately getting yourself free of the virus - it will happen.

Yes, explore all your options, but be very learned in your acts and decisions.

Try to quell panic, be methodical and thorough.

Hope to hear back from both of you soon. Tig, I am sure, will be along shortly for further response. C.

 

 

 



-- Edited by Canuck on Friday 2nd of March 2018 01:38:58 AM

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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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jcorum


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I posted on here a couple weeks ago that my son was diagnosed with Hep C. I am encouraging him to get on here but so far he has not. I told him he really needs support from those who have gone before him because he feels like crap. He is exhausted & it takes all he has to get thru his workday. He also feels like a leper because he knows the stigma hep c brings. I have gone to both appts with him to the Infectious Disease Specialist. The first time, the doctor was very matter of fact, not mean but not friendly either. Told my son before they started treatment they would drug test him to see if he has illegal drugs in his system and if so, they would not treat him. Well, the blood test they took that first day came back no illegal drugs in his system so the 2nd time we went to him to explain the results of the tests, the doctor was very friendly, very encouraging, ordered the Mavyret and never mentioned having to take a 2nd drug test before starting treatment. no

So, my son is on Medicaid thru Obamacare until his insurance kicks in at work. Thru missteps on his employers part, he missed his ability to get signed up for insurance and now has to wait til July to get signed up. His genotype is 3A. He has "severe steatosis" and and F2 scarring. Said his liver is functioning fine (PK 8.9) I see thru reading many posts that many have to fight with private insurance companies to get their meds paid for so he really doesn't want to wait until July to be covered by insurance then maybe spend months getting approved. He feels like he is wasting away from fatigue & is afraid he will lose his job.

So, he is going to contact Greg Jeffreys today thru his website about going thru him to get the generic Epclusa from India. Does anyone have any idea how long it takes to get that balling rolling? Would it be weeks, months, before he would have those meds in hand?



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